[duncanParticipant]

Hi all,

I know we are few in number, either newly diagnosed or veteran, always nice to and willing to share info and experiences.

If your new and searching i know there is not much information around, its not all  doom and gloom ,try to stay positive

I wil get an email if anyone posts, i will get back to you so do not worry if this is an old dated post .

 

 

[blessthischickParticipant]

Hello Duncan

Just wondering if you have heard of Amyloidosis Awareness on Facebook? It’s a great site with links to other ones. I am being checked regularly for Al Amy after the found some Amy tissue in my skin. Take care.

🙂 x

[duncanParticipant]

Hi,

Thanks for the post , no i hadn’t , i go to the royal free every  6 months and a cardio thoracic surgeon lasers my out in plymouth on a regular basis.

 

Thanks for the info on Amyloidosis Awareness on  face book i will check it out.

Bye for now

 

Duncan

 

 

[Author]

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