Hi Eve, never had a private email I will open it when the wife is not about :-)). Actually my Doc mentioned RIVAROXABAN and he wrote to my Consultant about it.

Mistakes are to test the edit system – Which Worked – YIPEEE

kindest regards – vasbyte

David

Tom just spotted your blood results, not a clue where I am on this forum! I think figures look good….novice though 🙂

Vicki and Colin x

Hey Tom,

How’s the treatment going? You are amazing! You are a real star and we all need a dose of your positivity…..roll on long remission to you!

Helen, great to hear you are out the other side….result 🙂

Jean and frank, hope all going wll for you guys. Got to get all the messages in as it’s so hard to log in:-)

Vicki and Colin x

Andy

Hope you are feeling better after your stay in hospital…..soon to be back not the drugs to keep the mm at bay? Your thoughts in mm are always thoughtful,and sensible, and boy have you gone through the mill. A beacon for us all…..hope you have the holidays plan as you need more beer and sun to have a go at the pps!

Peter as a long…[Read more]

Hi all

Apart from all of the other detail, eve, one of the messages that I did pick up was that slim is no longer being treated. I’m sorry to hear this as he has gone through so. Ugh, as have you in another sort of way. Wishing you both all the best.

Our experiences have been very positive and we have both been very grateful,for all of the…[Read more]

Firstly David not impressed with the first diagnosis of ‘nothing to worry about!’ Glad you sought a second opinion! When Colin was on revlimid he had to do an injection every day to keep the flow of blood going. I think revlimid side effect is blood clots. He was just lucky that time he was on it 🙂

Hope things are going better for you…[Read more]

Hi Tom,

Jus wondering how you are doing….hope the holiday went well and you are feeling ok? :-). Still struggling with this site as it takes 10 goes to get in!

Hope all ok with you jean and frank 🙂

Vicki and colin

Hi there

Glad to hear Charlie got through the sct, that’s great, shame about the hiccup and collapse! Hope all is well now? Can’t offer any information about the hospital but wishing you all the best with your move and Charlie’s ongoing improvement x

Vicki and Colin x

Hi there,

Just logged in to say hi and wish you all the best with the treatment regime. My partner Colin was diagnosed in October 2011. Like Megan we are still careful about what food we eat and I still get nervous if we have prawns! Colin had a transplant in November 2012 and thankfully so far still in remission.

It’s a tough road for the…[Read more]

Hy guys and gals, or are we all now just guys?

Had an exciting weekend spending many hours waiting in my local hospital. I have a DVT just above the right knee and am now on Clexane injections, indefinitely I am told by the Pharmacist ! They are now consulting the Hematology dept to find out if will affect my treatment with Revlimide. Anybody got…[Read more]

Wow, France and Greece you are getting about. When we went to France last last August they wanted £700 for a week Insurance, that was with the relevant French E111(?) card.

You have a great time.

Kindest regards – vasbyte

David

Well done Kevin just keep going :-)))

kindest regards – Vasbyte

david

Hi Maureen, I have tried with quotes from them all, but Myeloma with Prostate neither of which is in remission is a big no no for them.

Have a great stay at Gleneagles, I have never been there but when I watch the golf it looks a great place.

I have just booked the Rickett Suite at the Union Jack Club in Waterloo, it is their top suite I tried…[Read more]

Best of Luck Tom. I got pulled off of Velcade after 3 Doses, PN big time. I am now on Rev/Dex which seems to be working well although I must admit to getting really peed off with the Dex!

Anyway – onwards and upwards.

kindest regards

David – Vasbyt

Every time I go to see a Consultant I get a copy of letter he/she then send to my Doctor. This I find jogs my memory of what has been said and generally explains a lot more. It would certainly give a reason for stopping a form of treatment, do you not get this? The list of questions to ask is absolutely essential and very good advice, some…[Read more]

Hey Andy and Helen

Great to hear from you….despite the technical problems you are often in my thoughts. As on other posts we have been busy relocating Colin’s mum nearer us. We are hoping for a holiday abroad soon, Colin’s next appt is 5th February so if all goes well there we are off…..somewhere pending travel insurance issues and as long as…[Read more]

Hello all

We too have the log in troubles…..if that we the only thing eh! Not been on for a while as we are moving Colin’s mum down to live closer to us…..to tired to do too much typing tonight and Colin is snoring to my right! 🙂 just wanted to say hi all and hope you are all still battling on 🙂

Where’s that sun!

Vicki and Colin x

Hi all

Thank goodness I’m not the only one with logging in problems! First of all, happy new year all. Apart from the login in issues we’ve been busy. Colin’s mum is moving down close to us and so we too have been doing the packing, and all the other things that go with it! D day is this next Monday so fingers crossed.

Tom hope you have a great…[Read more]