no – it all went again.

But I did not get the internal error message – a step forward I think. do you want me to re-install with CTRL/F5?

regards
David

nope did not work

Coughs seem to be the in thing at the moment!

I have the tickle cough as well but it is unusual in that I can go all day without a problem only to start coughing as soon as I go to bed. I have just woken up, dex affect, at 3:30 am and I immediately started coughing. I have now been on my computer, which is now alive and well, and the cough is…[Read more]

Best of Luck for the new Drug, what do you take with it, Dex.

We are planning a trip to London in early March.

kindest regards – vasbyt

David

Hello Carole

Merry Christmas! Ultimately the decision has to be yours. My partner Colin had the transplant. He had this in November 2013. At the time it was hard going andnthere are days now when Colin gets anxious when he thinks but to it. However we took the view that we would grasp everything to give him as many chances as possible! I spend a…[Read more]

Hi All, I have been off air for awhile, computer went belly up! I had to reinstall windows 7. Not finished yet I am working through the various programmes some of which are real trouble.

Any way I thought I would reinstate the Myeloma site and at the same time to take the opportunity to wish you all a very Happy Christmas and a prosperous and…[Read more]

Hi nick

Welcome to the forum. My Larner Colin was diagnosed age 56, no interim just straight into mm. One back bone fracture which was amazing given the level of his light chains (31000) and pps were 17. It was a real shocker! Luckily no kidney damage. Colinnhad 7 cycles of revlimid, cyclophosmahide and dexamethasone. It was tough as he had lots…[Read more]

Hey all

Well done chris glad you are doing ok! Hope you are continuing to feel well. Colin still gets very tired but am convinced that’s to Do with the fact he’s on heavy duty pain killers for the initial back fracture. That’s got him down as he gets confident, does a lot and then is wiped out for 3 or 4 days. For me the worry is mm on the…[Read more]

Hi Tom,

I’m having real problems logging into the new site. I’m so sorry to hear your news…..your drug free remission has always been something I think of when I get down! You are a real positive guy so here’s hoping for you that that next phase of treatment will whack mm into touch again! Tom you have clearly not been drinking enough vodka for…[Read more]

Firstly hey chris how are you doing post sct….Colin still gets very tired but qualify that with doing too much and then wiped out for three days!

Hey all welcome if you are new to the site and hi to the old stagers. This is really a tough road to follow for supporter because you feel helpless and sufferer because its a tough lot of treatment.…[Read more]

Hi there,

My tip is be positive, think positive and try to only read sites like this. The rest scare you. I know it’s hard to be positive sometimes as it can look bleak, however try to as it will make you and hopefully your dad feel better. Remember 70 is the new 60 🙂

Good luck with the treatment.

Vicki and Colin

Hello all

A happy Christmas to you all, enjoy every moment. Life is for living. Take care and enjoy xx

Dear Janet and family,

I’ve had trouble logging in and have only just read this very sad news. To you all I send our condolences. Dai’s ability to paint a picture of his circumstances, even when they were some what messy….cdiff stories, could always inject a sense of humour. He was so encouraging and enormously knowledgeable. These words don’t…[Read more]

Ohno dammit I can’t believe this! I’ve not been able to log on and have only just got the hang of this. Oh bugger, i feel really upset….what happened. Dai was an absolute inspiration, and poor Janet. I feel sad for Dai. He was a huge encourager. I am sorry sorry. A great guy, poetic and so descriptive. Who could forget the cdiff stories.

I am…[Read more]

Hey graham,

Good luck with your treatment. It has taken me a long time to get the hang of the new forum and even longer to work out how to login! Wishing you all the best

Vicki and Colin x

Hi guys, As you are aware from my previous posts I am just hopeless in this sort of situation, just can’t get the words right on paper for some reason.

Can I just second what you have said and just add that I held him in such high regard that I still find it hard to come to terms with the fact that he has gone.

kindest Regards – vasbyte

David