Vicki replied to the topic to SCT or Not to SCT in the forum General 11 years, 7 months ago
Hi Clare
Don't have any experience of brats but my partner had sct last November 2012. He was very poorly no doubt and it isn't pleasant, but he got through it. He is still recovering and gets very tired however we were scared before hand. We went for it because it was Colin's final decision and I supported him. I wouldn't say it's easy but any…[Read more]
Vicki replied to the topic Long haul travel in the forum General 11 years, 7 months ago
Blimey
I'm exhausted just thinking about it liz….medication, injections, thermometers….clacton on sea sounds good (no offence to clacton :-)). You have a great time, all the usual precautions and a bit extra from the consultant 🙂
Enjoy
Vicki and Colin x
Vicki replied to the topic Lightly chained to the Roller Coaster Ride in the forum General 11 years, 7 months ago
Hi Helen
So pleased to hear that your back is no mm, those slipped discs are painful too though! Glad to hear you've got a solution with the hair. Have you considered different colour….again but with less peroxide in. I am sure there are Eco bleaches cos there was that scare about pregnant women dying hair? Not seen my hairdresser friend but…[Read more]
Vicki replied to the topic 70 Today in the forum Off topic 11 years, 7 months ago
Hi jean and frank,
Frank happy birthday to you 🙂 🙂 🙂 and so glad you and your family were able to enjoy a meal. Great! Hope you are ok too jean and hopefully settling into a bit of normality…..whatever that is 🙂
Onwards and upwards as Tom would say 🙂
Vicki and colinxx
Vicki replied to the topic Date for SCT in the forum Treatment 11 years, 7 months ago
Jacqui and Geoff,
Last lap now before the getting better bit, slowly and surely. Not an easy ride but get the hard bit over and you can start looking to the future. If brother in law has any worries or questions he can post on geoffs behalf….and I old stagers can help where we can 🙂
Who says onwards and upwards 🙂
Vicki and Colin x
Vicki replied to the topic Keith Hindmarch in the forum General 11 years, 7 months ago
Keith and sue
Thoughts and prayers are with you….you are a fighter Keith, one last go! Whatever is best for you
Vicki and Colin x
Vicki replied to the topic ANOTHER SCT JOURNEY ABOUT TO START in the forum General 11 years, 7 months ago
Good luck with the harvest and sct Scott. Have you had a sct before or your first go? We hope you will sail through it….no pain no gain 🙂 easy for me to say.
All the best
Colin and Vicki xx
Perkymite replied to the topic Elephant In The Room in the forum End of Life and Grief 11 years, 7 months ago
Hi Gill and Eve, I for one am not upset by your posts. I read them as I would read my wife's posts in the future if you can understand what I mean. I have said to Mo she must carry on and live a another life and when with luck she kisses my great Grandsons/daughters head I will be there, my spirit will not leave her side. And, I am sure, that…[Read more]
Perkymite started the topic On Tour. in the forum Off topic 11 years, 7 months ago
Hi all, I am off on tour of London and the South Coast until the 7th May. Have a healthy week one and all.
Kindest regards – vasbyte
David
Perkymite replied to the topic After Stem Cell in the forum General 11 years, 7 months ago
Hi Guys and Gals, I do not know where I lost this post but reading it I have missed a whole lot of questions —:-| Sorry. All seem to have been answered by other more generous souls – thanks.
Kindest regards – vasbyte
David
Perkymite replied to the topic New in the forum Newcomers 11 years, 7 months ago
Hi Jan, I actually use 2 pill boxes. One I keep for pain killers and the other I use for medications.
Kindest regards – vasbyte
David
Vicki replied to the topic Anxiety in the forum Side-effects 11 years, 7 months ago
Good luck with your operation Mandy….think nice thoughts. You have the support and thoughts of your friends and family….and we cyber friends. It's a long haul but be stubborn…..Mandy 1 myeloma 0 …..:-)
Vicki and Colin xxx
Vicki replied to the topic Lightly chained to the Roller Coaster Ride in the forum General 11 years, 7 months ago
Hi Helen,
Re the hair…..can't you have a colour on it that has less bleach in it? There must be Eco friendly blonde colours out there as some people are allergic to the bleach. I will ask my friend hair dresser and see what she says….worth spending even more money on the hair and shoes etc if it makes you feel better. Get your daughter to…[Read more]
Vicki replied to the topic Lightly chained to the Roller Coaster Ride in the forum General 11 years, 7 months ago
Hi Emma,
So glad to hear you mum is out of hospital and treatment has been effective 🙂 I can understand your mum needing to build her confidence but she has done so well, I also understand your worry about when is it going to come back 🙁 I am the same for Colin but trying so hard to push it from my mind so that we can enjoy ourselves…[Read more]
Perkymite replied to the topic Elephant In The Room in the forum End of Life and Grief 11 years, 7 months ago
Yes, you are so right Jan.
I have found the same,it is really a series of little things that are said and on passed on. My wife actually asked what I wanted doing with my rings actually. But there are other silly little (you might say) things. For instance my Granddaughter (9 years of age)went to a great deal of trouble to pick me out a…[Read more]
Vicki replied to the topic Lightly chained to the Roller Coaster Ride in the forum General 11 years, 7 months ago
Good luck with the velcade Helen!,
If its caught early maybe it can damn well stay down down down 🙂 very thoughtful you are about your boots for your daughter!! You'll need to get Another pair as you'll wear these out damn it 🙂
Vicki and Colin x
Vicki replied to the topic Mums reaction to Zometa infusion and Thalidomide with injection of Warfarin? in the forum General 11 years, 7 months ago
Hi sandie
Sorry cant help with the zometa query but hope your mum is feeling better soooon 🙂
Vicki and Colin x
Vicki replied to the topic My Velcade Journey in the forum Treatment 11 years, 7 months ago
David
Hope you have a great trip to London, and equally hope your pain management is resolved. That's the one thing that gets Colin down! Pain!! So hope you can become a s pain free as possible. Never mind the weather just enjoy your trip 🙂
Vicki and Colin x
Vicki replied to the topic Being Thankful! in the forum General 11 years, 7 months ago
Here here Mavis!! 🙂
And thanks to all you guys who post on here…it keeps me on the straight and narrow! 🙂
Have a great weekend, and well done Mavis, long may your remission continue!
Vicki and Colin x
Perkymite replied to the topic My Velcade Journey in the forum Treatment 11 years, 7 months ago
Hi Ladies, Yes I saw the Palliative Care nurse today and she has now switched me onto Morphine based drugs, but retaining the Paracetamol. I take 40mg every 12 hours which is a lot easier. My backup has changed to zormorth which I place under my tongue when in pain. Hopefully this will hold it all in check until my next assessment on the…[Read more]