I am going across to the hospital for a Blood Transfusion this morning. My HB has dropped below 10.

I think they were going to leave it for awhile originally but I have a trip planned to London, this Sunday for one week, I am going to see War Horse, a boat trip on the Thames and the London Eye before dropping in on my Sister for her Birthday.…[Read more]

I wish Keith the best of luck and my thoughts will be with him.

May his God walk beside him now.

Kindest regards – vasbyte

David

Oh bugger Helen

I really thought your last post was so positive and that may be it was a blip!. How come they have changed their tune so quickly. As Tom said entitled to some soul searching and then bat that damn thing right back into oblivion!!

Its such a blow for you:-(

Love and hugs

Vicki and COlin xx

Hi Mandy

Colin had his SCT in November 2011. Like you he had a really rough ride during his induction treatment. He was in and out of hospital with infections and temperatures, virtually every month for 7 months. Antibitoics etc etc. It was a really long haul. However that said the trial was worth it and he got to SCT and remission!. He also…[Read more]

Well Hi there Richard and welcome to the forum.

I was diagnosed in July 2009. Like you I have had the SCT etc… but it gave me 2 1/2 years remission and I am just starting Velcade, in fact this is my first week. How long were you on Velcade before they switched you to Revlimid?

I am going in for a blood transfusion tomorrow, my first,…[Read more]

Hi jacqui,

Yes we go to EJU, and we are now moved to a Wednesday afternoon clinic. All good today and they want to see us again in two months. Colin's back is still bad so thinking what to do next, but they are referring to back specialist. :-). Glad Geoff is seeing Nicky. Colin sometimes says its like a dream (nightmare more like :-(), being…[Read more]

Dear sue,

Our thoughts are with you and Keith. He is a man of great strength and fortitude, who has and is a great comfort. Should this be a final journey, peace and tranquility will await x

Vicki and Colin

Spot on OFF TOPIC 😀 😀

Kindest Regards – Vasbyte

David

Oh jacqui, what a dilemma! But if that is what Geoff wants, go with it!

Colin was very very emotional leading up to sct….and like Geoff, although he wouldn't admit it, his nerves were bad too. He had some terrible panic attacks. He saw the clinical psychologist before he went in for sct. Colin was very anti that before but I persuaded him…[Read more]

Hi Ali,

Glad to hear your mums out of hospital! 🙂 its difficult isn't it knowing who to contact. I asked the consultant when we had our first visit after sct and she said continue to contact them for now. So last week when Colin was really really tired we phoned the chemo helpline and went in for blood test. We felt a bit guilty as they are…[Read more]

Hi jacqui and jeff

How are things? Did you get some reassurance?

Vicki and Colin x

Tom,

Good luck. It's strange, but when Colin got,told we were going to,sct it was a huge boost but scary too. It's what had been worked for but when it came to,it we were scared. You can do it as you've got this far 🙂

Vicki and Colin x

Hi Helen,

Yes colin has started to take it easier, a little less tired but is sleeping when he needs to. Got back pain at the moment, he's reduced his meds due to it being morphine based and the pain specialist is going to give him another drug which is not morphine based and can be Taken long term. I do worry about any pain as I always link to…[Read more]

Eve,

Translate attitude for leaving no stone unturned to make sure slim gets the right results. I don't care either…..bet the hospital staff think I am mrs 20(no 100) questions but that helps me to help Colin. Hope you and slim are getting some good nights sleep.

That helps so much, take care both 🙂

Vicki and Colin x

Mary and Charlie,

Relax!!! Just be thorough with cleaning like normal but taking care of handles and surfaces as they are where bugs get transmitted most. Neutrophils are the immune system getting stronger and normally hospitals say 0.5 and patient can go home. It's just like when you are having treatment, the neutrophils go up and down. When…[Read more]

No more need for a onesie then Tom ha ha

Vicki and Colin x

Hi Ali,

How's your mum doing? Hope she is feeling a lot better. Isn't she due to go on holiday soon?

Best wishes….Colin less tired but now his back is playing up. He is cutting down on painkillers due to pain specialist advice due to being morphine based, they are planning to put him on something else. He says its muscle pain…..but I…[Read more]

Ann

As you can see a huge support on this site….wishing you all the best with your treatment 🙂 Colin has never said why me but it does make you wonder, but then why anyone. You and your husband have had a tough time, so you ae due some good times now!

Ann and Pete, glad you guys are doing well. Hope Peter is making a slow but sure…[Read more]

Welcome Ann, you will meet lots of good people here. I was diagnosed in July 2009. Had my STC in No 2010. MM has now reared its ugly head again and I have just started on 2nd line treatment Velcade with Dex. Apart from the odd bouts of bone pain, which can floor me, I am going well.

I wish you all the best of luck.

Pete : are you our…[Read more]

Hi Sue, I have just started taking Velcade and Dex so am way behind you I am afraid. However, have you actually read the information that comes with the medicines. A lot of people just read the instructions on the Script or Box.

I was busy taking my medicines the other day, I had not been to the toilet for a couple of days so decided to add…[Read more]