Hey jean and frank,

Frank must have a built in sport radar….waking up for football and then rugby LOL! It's hard to see frank with the tummy troubles and not eating but it will pass. And his neutrophils are past the magic zero which Is great :-). As debs said things will speed up and frank will make a sure slow improvement. Be careful for…[Read more]

Hi Norma,

Best wishes for Monday……do not keep the challenges to yourself! This is what the good friends, family and this forum are about. Providing the help and support that you and the ones closest to you needs. It is a very individual condition, mm, but one that is treatable. It must be hard when you have the lupus as well but keep…[Read more]

Hello Tanya and dad,

So very sorry to hear of the difficulties you are doing through……is your dad able to look objectively at the situation? Is there a problem with alcohol? How would he react to someone coming to see him about it? The trouble is, he has to be the first one to admit it if there is a problem

Making it difficult for the…[Read more]

Getting back on topic 😀 😀

When I was originally diagnosed in July 2009 I asked for a prognosis. I specifically said I did not want any bull sh*t I had things I must do for my wife and I want to know what time I realistically had left. What is more I wanted only useful time, time I could do things in and not time spent in a stupor.…[Read more]

You are right Ted about communication. I noted that, if a little surprised, the Haematologist consultant asked me what went on at the radiotherapy consultation. I had expected him to know! He did not disagree with the course I had taken but on the other hand he did not say he agreed, which is slightly odd looking back on it. I think I will…[Read more]

Hi Norma, Welcome to the forum; it is a funny old place not a place you want to be but on the other hand you can meet some real nice people and make some good friends. I wish you well on your appointment Monday.

I think it is going to be a long night for me again. I have just come off Tramadol, which makes you sleep for the world, and I…[Read more]

Jean and frank,

Just popping in to say thinking of you….hope frank is feeling a little better. Glad he's not a rugby fan….we are not happy with the latest England result!….sorry Dai 🙁

Vicki and colin

Hooray

So pleased to hear you are home Pete…..and a glass of lager! Well done you. You have done well, just relax and take time to get better slowly. It will soon come and you will be out on that golf course! At least you managed to stay at home….we were back in the same day first time round 😉 I've been rough all week, just starting to…[Read more]

Well done Garry, you made it….what a result and beat toms days! 🙂 who is a show off then!

Remember to take your time, build up slowly and improvements will come. It has been a hard road but the real recovery begins at home 🙂

Vicki and Colin x

Hi there,

Good luck to your mum and her treatment. Colin had back ache and the diagnosis of mm two months later! Like everyone else it was a dreadful shock and a real roller coaster ride due tot the induction treatment and infections that followed. However Colin had a good response had he had a transplant in November 2012. Now well on the road…[Read more]

Hi there,

Welcome to the site, not a place of choice, but a comfort none the less. Congratulations on your complete remission, take each day as it comes. As Andy says they are all a blessing. Take it easy and build yourself up gradually

Vicki and Colin c

This is an interesting debate – thanks Ted. I have MMG and had the usual treatments ending in a SCT in Dec 2010. My MM is now relapsing and subject to the results of a full body MRI scan I am moving onto second line treatment, Velcade and Dex (oh Happy Days). The appointment to decide this is in 3 weeks time to the day.

6 months ago I was…[Read more]

A trip to Greece wow 😎 can I come in the luggage. I also love the Lakes, did some walking there many years ago ? not a Wainwright mind you!

That all sounds great to me Andy, considering your start point and the journey you have had.

All the very best on your holidays ? enjoy them.

Kindest regards ? vasbyte – David

Hi jean and frank,

We feel for you, that time period of tummy trouble, sickness, pain etc is awful. I felt so helpless and Colin so wretched.it feels like it is never going to pass, but when the worst does pass it seemed to quite quickly in Colin's case. I also remember days when I had to help Colin dress, wash etc as he was just not up to…[Read more]

Hi Ann and Peter

Well, is he home then. ? Hope you are both ok. This is where the true recovery begins, and Ann you finding out how tired you are too! I found that Colin began to eat slowly and surely, some ups and downs with the tummy troubles….even now! However the strength will start to retun if Pete is patient it's so exciting and…[Read more]

Hey. Jacqui,

Well done, Geoff for his results and you for the support :-). Great, are you seeing Sian Middleton? Se is absolutely lovely and a great support. She probably thinks I M mad, so many questions! They are very supportive at the LINC and down at Bristol if you are having cells harvested there!

Keep up posted, Vicki and Colin x

Louisa

Hope your dad is continuing on the mend. It does take a long time for things to settle down and it seems like an age when they are in hospital! Colin hardly ate anything the whole time he was in hospital, was in a lot of pain, had said syringe driver and felt sick and tummy trouble! However once his bloods started on the up he did seem…[Read more]

Hi George,

This has got to be a decision for your family, especially your dad alone……Colin took revlimid when he was having induction treatment and he was very successful on it. I would just say listen to what the consultants say and your dad has got to go on a gut feeling

Best of luck

Vicki and Colin x

Andy and steph,

Good to hear from you Andy, wondered what you had been up to. Glad it's not infection hospital visits! Those pps are pesky aren't they! Still so glad they have gone down again though! Hope you have a great time in the lakes, well as for Greece am certain that sunshine will make those pps come down still further! Colin is doing…[Read more]

Hi Tina, Have you got back your taste buds?

The plan most seem to use is to go for very small portions of your favourite food on small plates and then gradually increase the quantitiy of food.

I got my taste buds back on Christmas Day after my SCT in Nov/Dec 2010. But I did not have a great desire to eat. Unfortunately I cannot remember…[Read more]