Vicki replied to the topic My Dad in the forum General 11 years, 8 months ago
Hi Laura,
As jean said, read Colin's sct….I am Vicki of Vicki and Colin 🙂
We had never heard of mm before diagnosis, but boy do we now! There's no getting away from it, it's hard sometimes and scary and it really makes you feel angry, cheated etc….however, the induction treatment prepares you for sct. Colin had quite a few infections…[Read more]
Vicki replied to the topic Tenterhooks in the forum General 11 years, 8 months ago
Dai,
Like the others have said….all bases crossed and keeping our fingers crossed for you. It's a difficult one as the others have said…..a fine balance between normal life and taking the sensible option. Hope you manage to avoid it and we see no posts from the WARD!
Ali, sorry to hear little lad been poorly, always best to keep bugs…[Read more]
Vicki replied to the topic Our Journey in the forum Newcomers 11 years, 8 months ago
Phoebe,
What can I say, you guys are inspirational and you are both a great team
Vicki and Colin x
Vicki replied to the topic Franks SCT take 2 in the forum Treatment 11 years, 8 months ago
Jean,
I know what you mean about not wanting someone ill but shouldn't something be happening. I remember it all being very quiet at first, Colin felt sick and that was about it. I wondered why his bloods hadn't dropped like a stone and it seemed like an age for them to start going down. It was normal. I don't know what we expected, some kind…[Read more]
Vicki replied to the topic Pete's SCT – Done – now the recovery!!! in the forum Treatment 11 years, 8 months ago
Hi Ann and Pete
Glad to hear that things are on the mend a bit, the eating will come soon enough! It just feels like there will never be any improvement but then it just happens! It's always slow but sure. You take it easy too Ann, it's easy to forget yourself…..I know! 🙂
Vicki and Colin x
Vicki replied to the topic Pete's SCT – Done – now the recovery!!! in the forum Treatment 11 years, 8 months ago
Ann
I soooo understand how you are feeling. I had a few good cry sessions when Colin was in, and one with the nurses. Embarrassed but couldn't help it. It's a very emotional draining period for both of you. We can't think back even now!. It's so hard because you can't do anything and you want to make it right…
Has Pete tried the ice pops…[Read more]
Vicki replied to the topic Franks SCT take 2 in the forum Treatment 11 years, 8 months ago
Hi jean
Try not to worry too much though i worried if Colin didn't phone me. Colin slept virtually all the time I was there. I watched tv and I think I know the relocation relocation programmes off by heart! Colin felt sick most of the time, but as far as I know was only sick once or twice in total.
It's best when there is sleeping because…[Read more]
Vicki replied to the topic kidney failure and sct in the forum Treatment 11 years, 8 months ago
Hi Rebecca
Sorry I can't help you with your questions, but just wanted to wish you luck
Vicki and Colin x
Vicki replied to the topic Information/Experience on relapse and velcade in the forum General 11 years, 8 months ago
Dan
Your dad must be very proud of you! You are an absolute star, so young and dealing with all this. I am much much older than you, and I have found it tough. Please try to get some help, as you will burn yourself out with exams and everything! And you'd be no use to your dad then ! Get a break too because you can have a bit of a relax and…[Read more]
Vicki replied to the topic Last Chance Saloon in the forum Treatment 11 years, 8 months ago
Keith
Just caught up with these posts 🙂 you must feel rubbish! Really hoping that you will be able to grab this by the scruff of the neck! It's so hard to battle when you are tired…..however if you can, let's get goin 🙂 don't worry about your heat, just keep the battle going. Where there is life there is always hope 🙂 🙂
Vicki and…
Vicki replied to the topic Bend and stretch for Cycle 3. in the forum Treatment 11 years, 8 months ago
Come on Dai, no weary…you are our inspiration! Anyway numbers going in the right direction so it's working 🙂
Nicer weather coming soon, make us all feel a bit better, slow but sure 🙂
Vicki and Colin x
Vicki replied to the topic Good response to Velcade in the forum Treatment 11 years, 8 months ago
Best of luck ozzy and keep going with the improvements. Bet no one would have sct if there was another banker guaranteed process!
Vicki and Colin x
Vicki replied to the topic Revlimid Question in the forum Treatment 11 years, 8 months ago
Hi Jill
Like Helen etc Colin had bouts of constipation and diahorrea. We were told that being constipated can cause a back up in the bowel that can then cause diahorrea when things become free! Too much information I know but it was clear that upset tummy after bouts of constipation. What they did was give him a light laxative to keep things…[Read more]
Vicki replied to the topic Pete's SCT – Done – now the recovery!!! in the forum Treatment 11 years, 8 months ago
Ann and Pete
Thinking of you both…..as the others have said its doable, but b hard and it takes a chunk out of both of you for different reasons. Focus on the future and have a few things in mind to look forward to. The simple things will be wonderful as it never seems like you'll get there….a simple walk, a meal together, a meal out etc.…[Read more]
Vicki replied to the topic Garry's SCT journey in the forum Treatment 11 years, 8 months ago
Hi all
Peter well done with your sct and keep doing but don't over do it…how the heck can you e at work one month ish on? You are super human! Me would be nagging you to slow down, bet mrs Peter is!
Helen, glad to hear that Gary has his cells back, what a great moment! And the thing with the cat, that must be so hard! Best to check but…[Read more]
Vicki replied to the topic Trying to tell us something? in the forum Treatment 11 years, 8 months ago
Hi all
Jean and frank so glad the cells went back. I wish I could have been there when Colin had his, but couldn't and they didn't invite me to that party. I cried when he told me they'd gone back in! As Helen says its a huge moment! I so hope you and frank are doing ok, it's been such a wait for you both ! now the cells are back in the immune…[Read more]
Perkymite replied to the topic Trying to tell us something? in the forum Treatment 11 years, 8 months ago
I think Frank's attitude to infection is dead right. You cannot and I stress CANNOT be too careful for at least the first 3 months after a SCT.
Give him my best wishes for a safe and successful journey.
Kindest regards – vasbyte
David
Vicki replied to the topic Question…..maintenance treatment in the forum General 11 years, 8 months ago
Hi Tina,
Hope you are progressing well and feeling better each day 🙂 I don't know how they work it you know….I suppose they are checking general remission averages, based on the masses of who takes it and who doesn't? Who knows. Colin elected not to take it in the end, his call and hopefully not affecting his remission rates…….
Hey…[Read more]
Vicki replied to the topic Sam has relapsed. in the forum General 11 years, 8 months ago
Tom you are hilarious!
Brightens our day…..would it be posh crisps and nuts or just common peanuts haha! 🙂
Vicki and Colin x
Vicki replied to the topic New to this in the forum Newcomers 11 years, 8 months ago
Hi Jane
Sorry you were having a downer, hope you are feeling better a bit now! The waiting before treatment starts is nerve wracking and frustrating, wanting to get on with it, but being scared Colin for himself, and me for both of us! How to cope, what will happen etc…..but you do cope because you have too! It's the lifeline to make things…[Read more]