Tom,

When We read this…..hooray hooray hooray hooray. That's so so brilliant. You and young bride up the club now I bet. 🙂 now what's in that vodka. Must be something special. What a brilliant result and you deserve it after all the support you give the rest of us 🙂

Onwards and even more upwards :-)))

Vicki and Colin x

Hi Robin, I cannot come anywhere near your Dad?s terrible time. However, I was first diagnosed in July 2009. I broke my neck getting out of bed, luckily the Hospital was real switched on and after having surgery to put in internal scaffolding, to hold my head up, I am right as rain, as they say. (Never really understood that saying but there…[Read more]

It does sounds good Maureen, very soon he will be under your feet and in the way 😀 😀 . All the best to you both

Kindest regards – vasbyte

David

RED PEE 😎 Where have I been since 2009! Never heard of it before so I must have completly missed those posts! What ever next. Oh, welcome to the site.

Kindest regards – vasbyte

David

Yes, I think you are right Pat and I certainly know what you mean.

I drove to Exeter for lunch and coffees with my Wife, our Son and Daughter and their partners yesterday and had a great time it was a real nice day – not the weather, the company.

I felt good.

Kindest regards ? vasbyte

David

That is great news Tom. 4 months my golly gosh! I visit my Consultant next
Friday 22nd. Tomorrow I give my sample of blood to see what is going on:-P – hold on it is tomorrow already!

At the moment I cannot sleep so I am taking this time to catch up on the posts. I have been taking Tramadol every night to ease a pain in my chest…[Read more]

Hope you guys never need them 🙂

At lest you have them in the bag though 🙁

Vicki and Colin x

Hi jean and frank,

Try not to think of the pps! The consultant never mentioned what Colin's was before we went for sct so we had no idea! Megan is right about the cleansing, we couldn't get our heads around the fact that they were putting old infected cells back in. When we saw the stem cells nurse she explained to us. Firstly there is the…[Read more]

Trish

Just wanted to say sorry to hear of the relapse…..I do believe this velcade is a very positive drug. Still I can understand how fed up you both must feel. One year isn't long enough 🙁

Thoughts are with you, on a positive note these drugs are getting better and better!

Vicki and Colin x

Hi carryann,

Infections 🙁 Colin did have a lot of them and we sort of knew when it was time to go to hospital. When there are children around its difficult cos they pick up all sorts, but as Tom said they are the grandchildren. It can be isolating to suddenly stop doing something because of mm, and that it so frustrating. We did not have many…[Read more]

Hi Trish, Sorry to hear about the relapse. I am in the same boat, but my SCT lasted 2 years which was six months longer than predicted (best guess at the time). I have just started relapsing and at the moment it is a gentle curve up, I am now on 6.7 pp. You never know it may just decide to go down, who knows for sure with this awful…[Read more]

Hi carryann

Hope you are feeling ok. You really have been through the mill. I found that making notes throughout the cycle prompted questions to ask the consultant, for example if Colin felt very sick, couldn't sleep in the night, got emotional or grumpy on the dex, went dizzy or had cramp in his hands. Usually asked things like is that normal,…[Read more]

Hi Vanessa

Sorry I can't really help on the detail. I know that there are lots of thoughts about acts, whether even they are the best route of using I think what they call novel agents in treatment, and there are lots of them being tested. At the moment though I think the balance is erring on the side of scts being a good option. I don't know…[Read more]

Hi jean and frank,

Sorry you've had no date yet…..hope you are both keeping well :-). I'm worrying Colin has relapsed before we've even had his bone marrow assessment results. This mm worry messes with my brain I reckon 🙁

Before his sct Colin had not treatment from mid July til he went in for sct end of October 2012 but they never…[Read more]

Good. Luck tebebe

It's always worrying when you start treatment. My partner and I were very worried but we both new it had to be done because it was the only option to best the myeloma. It was a battle between the tablets and feel well or not so well but keep battling 😉

Our thoughts and prayers are with you 🙂

Vicki and Colin x

Ann and Pete

Great news with the stem cells…..that prelixafor is wonder drug isn't it! Glad to hear things are on the move, but like you say it's scary all the same. Keep up posted on how things are going, and like I said before although an individual journey I'm sure there are common questions we all ask and worry about so ask away 🙂

We…[Read more]

Good luck joe and thank you for your efforts. Mm needs to be on the map so that it can be reclassified into a critical illness not a terminal one. Sadly not in time for your dad but you are a hero to carry on doing what you are.

🙂

Hey faith

Well done you, it's good to hear stories like this. It gives me such hope for my partner Colin who had his sct in oct/nov 2012. Keep going and good health to you 🙂

Vicki and Colin x

Hi Dai

Sorry to hear you are having a little stay in hospital! The hospital food can't be the attractions and you must get home as there is rugby on the telly at the weekend! Janet will have a nice meal for you,relax chill and wait for cycle three….keep going Dai we rely on you for updates 🙂

Vicki and Colin x

+1 Dai. (I notice the youngsters put +1 when they agree with something on a forum so being every young I thought I would too).

Kindest regards – Vasbyte

David