Hi all

Well you guys made me laugh! No gas and air, southern softies! 🙂 :-). You might be right, but I won't mention it to Colin as he's still grimacing at the thought of the bmb and we are still awaiting the results which is nerve wracking!

Thankfully the snow has gone but its v cold, not as much as up north! I'm trying hard not to fuss…[Read more]

Hey Dai,

Good news re the side effects! Lets hope the bloods are good, out of hospital is always good 🙂

Vicki and Colin x

Daniel

You are a star! Also so glad to hear that your dad is making some improvement. The medical teams are great at what they do so you both have faith in them, along with the drugs and things will improve :-). Keep talking on here dan it really helped me when I was so worried about Colin and everyone's supportive and helpful.

Keep going…[Read more]

Hi carryann.

Welcome to the forum. My partner Colin was diagnosed in October 2011 and had an sct in November 2012. The key thing I would say is to stay positive, ask as many questions as you need to, be particular about taking your meds and recording how you feel and what you eat. We tracked this consistently so when we went to see the…[Read more]

Hi Dai

As usual a very comprehensive response about what's occurring elsewhere in the US and encouragement for others. I will catch up on your post but hopefully things are going well for you?

Vanessa, hopefully some of these posts are giving you and Stewart encouragement? We fully understand why Stewart might get low, as they can't do what…[Read more]

Peter

Glad to hear you have got through your sct, well done you! You have always been so positive and clearly that pays dividends! Colin lost all his hair, not eyebrows though. Since coming out of hospital the last month has seen a real growth spurt in the hair, beard growth etc, so it will come. Hopefully you will continue us to improve slowly…[Read more]

Hi Megan,

Glad to hear you and Phil are doing ok. That's great and no infections! Don't worry about being trigger happy with the thermometer……I still am :-)! With regard to the fatigue and sleeping through the night. Colin still gets very tired, it seems to go in fits and starts….he does a little bit too much and the bang, wiped out for a…[Read more]

My sincere condolences to you, no doubt you have some good memories of your Dad ? keep hold of them. From what you say at least he did not suffer the trials of this awful decease.

May your God walk with you at this difficult time.

Kindest regards ? vasbyte

David

Congratulations to all concerned.

We have 7 Grandchildren, 9 to 19, and they have been a great source of love, fun and amusement over the years. I never knew my parents/grandparents, the war, and It has been a great source of love and comfort to me to re-establish my family. My oldest Grandchild is now 19 and the first one to fly the nest…[Read more]

Hi Tom,

Yes we did. Typical out here in the country a foot of snow…..22 miles away in town, nothing 🙂

The bmb was the usual painful numbing affair, with gas and air…..and a cup of tea for both of us afterwards! Colin had his tea and biscuit because he had all the physical pain, and mine was for the mental anguish and the nurse feeling…[Read more]

Hello Vanessa,

This disease is a shocker isn't it! And you both with a baby! :-/. Hey it is hard. It's difficult to know where to turn I release that, my partner Colin was diagnosed aged 55 and he'd not had anything wrong up until some back pain emerged, I too like you have felt mad, cheated for him and me, very very sad and sometimes not…[Read more]

Hi graham,

Welcome to the forum! 🙂 my partner Colin was diagnosed aged 55 in October 2011, we went through the induction treatment, that's the chemo tablets, steroids and a tablet called revlimid for 21 days of the cycle. It was tough at times, he felt good sometimes and poorly others. He did manage to go to work and other times work for…[Read more]

Yes Tom, I echo all of the thoughts above. I read that staging is not used any more!

No one mentioned staging to us and as far as I'm concerned I don't want to know. Just treat the mm and get it out of the body! Lots of effort but let's keep it going! I do understand how it's worrying though as I do enough worrying for the both so us…[Read more]

Jean and frank,

Is frank not going for the sct now? It's a really blow when you have to wait so long in between because it gives us all time to think!

Vicki and Colin x

John

I echo toms thoughts, wow doing all that by yourself and back to work. I know what you mean about the bills but aren't there any interim benefits that you could claim so that you give yourself time to recover a bit more? You must get so tired? My partner Colin has myeloma.

Are you asking about the randomisation because you will be…[Read more]

Hi ozzy

Yes my partner had a husky voice when he was on dexamethasone. We weren't sure whether that was due to that or the chemo drugs. It soon went though. His voice also seemed a bit higher than his normal tone.

Hope things work out well for you. Hope the snows not too bad where you are!

Vicki and Colin

Hi Tina,

Colin had the rash early on in his induction treatment. He was also prescribed anti histamine, he take a 10mg tablet of cetirizine every day even now. I'm convinced that stopped some of the itchy rashes as potential during sct. Perhaps you might mention this to your consultant, see what they think?

Best of luck

Vicki and Colin x

Hi Lisa

My partner Colin has just had an sct. I am always checking him temperature, whether he wants to or not ha ha! 🙂 Colin tells me he knows wye he needs it done but like the others if something is hanging about like infection I'd take it at least once a day. With regard to acts there are some schools of thought to say they aren't…[Read more]

Good luck Tom, hope the dex doesn't keep you awake too much!

It is always a blow when the reality of mdedication strikes but its the hammer that cracks the mm condition on the head 🙂

Keep going 🙂

Vicki and Colin 🙂

Oh great liz, glad to hear things are on the move. We aren't, the snows bad 🙂

Hopefully we can get to the hospital tomorrow for Colin's bone marrow assessment, yuk v painful for him. Hopefully they will have some good news for us. Its just the waiting!

Hope all goes well, keep yourselves warm and safe

Vicki and Colin x