Hi Susan

My partner Colin was diagnosed in October 2011, culminating in a transplant in October, early nov 2012. We were scared from the start, read all things scary on the Internet and then found this site, a godsend. It has helped me as Colin's supporter, and Colin, although I'm the one that does all the posting!

It is very daunting, no…[Read more]

Hello tebebe

Sorry you've had to join this happy band but hey now you are here you will find lots of support! My partner Colin was diagnosed in October 2011 and had a stem cell transplant in 2012 (October-November). I am not familiar with amyloid but never mind, if there are any questions we can help you with please ask. It must be very hard to…[Read more]

Dai

Just wanted to say hi and hope you are feeling good and the treatment working. Failure not an option. Colin has his 100 days bone marrow assessment next Thursday to see how well we are doing. Fingers crossed for us 🙂

Vicki and Colin x

Hi kev and liz

Sorry to hear about the infection…..time to bin it into touch and get those ribs sorted. Not good weather to be out and about anyway, we are snowed in here! Slowly but surely the medical team and kev will back this mm into a corner. Go for it and take care 🙂

Vicki and Colin x

Andy

Glad to hear you are feeling well and yet again those pps have dropped…..doesn't matter 2 a cycle is good. Maybe this mm is giving up the ghost as you and the treatment continue to battle it. Another Greek holiday and that sunshine should just about finish it off I reckon!

Keep going and take care

Vicki and Colin 🙂

Hi Peter

Was thinking about you……good luck with your sct. Keep us posted. You are in the best place….weather rubbish here in the Forest of Dean. Snowed in 🙂

You know what the benchmark is but we all know Tom is super human 🙂

Vicki and Colin x

Hey Tina

Well done you!

Keep this going and may you have a long long long remission

Vicki and Colin

Sarah Jane

Good luck with you sct…..do and thread it's easier so that we can be supportive. I know when Colin was going through his it was a godsend to us both.

Take care

Vicki and Colin x

Hi David,
Sorry to hear you are relapsing, could it be a blip? I hear this velcade injection can do wonders. Someone my mum knows got a 10 year remission from sct then velcade whacked it into touch again after two injections…..maybe the velcade in ejection is just the job.

Keep warm and well….snowed in here in the Forest of Dean…[Read more]

Hi all,

Helen, thanks all went well and at least Colin was able to go! Sorry to hear you've been feeling so rough on and off. It's the time of year for it. I read one of your other posts about being angry you have this mm….it's hard not too isn't it as life seems a constant battle. Still as long as we are battling, we are here so that's good…[Read more]

Hello Lesley,

My partner Colin is on the myeloma x1 trial. He took revlimid, dexamethasone and cyclophosmahide for 7 cycles and that took him into remission. He then had a stem cell transplant in early November 2012 and is recovering. Over those 7 cycles it was hard sometimes and Colin felt unwell sometimes, with a few infections inter…[Read more]

Hi Lesley, I have not been on this trial but several of our regulars are on it and I am sure they will give you chapter and verse shortly.

All the very best of luck

Kindest regards – vasbyte

David

That is great news Tina. Now have some fun 😀 and long may it last.

Kindest regards -vasbyte

David

Hi jacqui,

I see that you said Sean Macpherson is leaving, well that's a surprise. New Zealand eh! Certainly a long way from Gloucester! Glad geoffs pps have got down to 2.5, who knows a couple more cycles and he could be zero!. Colin went to see the sct nurse today. Bloods all ok, he is due for a bone marrow assessment on 24th January to see…[Read more]

Hi Wendy, I am in the same boat as you although I am PPs and not Kappa. My SCT lasted 2 years which is 6 months longer than predicted at the time.

I have gone from 3.5 to 6.7 but it was over 3 months. I have now been given a 2 month appointment, 22 Feb 13, to see what is happening. The Consultant's letter to my GP indicated that I am…[Read more]

Hi Ali,

Glad all is well. Colin's hair is really soft and fluffy. Someone recommended almond oil to rub in to get better quality hair? Ref your mums hair, judi dench style isn't too bad is it? Curly…that would be Colin's nightmare. Like your mum he has a selection of hats to wear out in this cold weather. He got an ear infection a while ago…[Read more]

Hi Ali and Helen,

Glad to hear you both had good Christmases! How right your 9 year old is Ali! Sorry to hear your mum had a hospital visit. How's she doing now?

We had a good Christmas and new year too which was surprising given that Colin's dad passed away just before Christmas. What I was wondering is that Colin has been doing really…[Read more]

Hi Sarah Jane, The ones I monitor for my own piece of mind are:

WBC – White Blood Count Mine 7.9 range for a male 4.2 – 10.8
HB – Haemoglobin Mine 13.1 range for a male 13.5 – 17.5
Plts – Platelets Mine 300 range for a male 150 – 400
N – Neutrophils forgot to get this one

PP – Paraprotiens…[Read more]

Hi Sarah Jane

Hope you got your print out and results were good!

Keep going

Vicki and Colin x