They set up an account as you did. This is a hoax /scam of that I am sure. Annoying, frustrating but best completely ignored.

The Moderator does allow us to the freedom to develop what we want but at the end of the day that sort of thing will be removed ASAP, have no fear.

Kindest regards ? vasbyte

David

Ann and pete,

Good luck for the harvest….fingers and toes crossed for you. They are great at Southmead. A wonderful team who were very knowledgeable and supportive of me and Colin x. The hair thing was a big step for Colin too but surprisingly we've got used to it…..and cuts down on the hair gel requirements! Apparently almond oil rubbed…[Read more]

Hi Emma

Just wondering how you and your mum are doing?

Vicki

Hi Peter,

Colin is being treated in Gloucestershire. The hospital in Gloucester for blood visits, and the recent SCT and after checks done at the LINC unit in cheltenham. Great team! They don't want to see him for am couple of weeks now, but weekly blood tests!

Glad to hear you'll be able to get festivities and party over with. At least you…[Read more]

Wendy

Great news, so so pleased for you! Hooray. I seem to remember you were going to do an overseas holiday, somewhere like Vietnam? Did you or are you going? If you've been hope you had a great time. How does it work with injections for overseas hols?

Anyway great news re the bones. Happy Christmas 🙂

Vicki and Colin x

Stuart will delete them when he comes in on Monday no doubt.

Kindest reagards – vasbyte

David

Hi Charlie

Just wanted to say hi and glad to hear from you. Just to give you a bit of encouragement, Colin has had his SCT and whilst it wasnt easy, it seems to be paying dividends at the moment.

Keep your chin up and keep going:-)

Vicki and Colin x

Oh no this is turning into match of the day :-)……

Offside rule!, footballers, what can we say. Come on the arsenal 🙂

Jean, gosh I hope Frank doesn't have to wait til February. Like you we wanted it over, but when it came we were petrified :-(. Still not counting our chickens but Colin seems to be progressing well so fingers crossed.…[Read more]

Hi Peter,

Hope your back pain has settled! Funny you should say about chemo easing bone pain. A back specialist we spoke to said that there were many cases where back pain stopped after receiving chemotherapy!, bit extreme but if you get this extra benefit from your treatment that would be great!

Hope your Taste for red wine is returning.…[Read more]

Hi ann and pete, Jean and Frank,

So glad to hear from you guys and really hope that things are going well for you both!. It really does bring back some short term memories for Colin and his injections. The gcsf injections didn't cause Colin too much pain at all, hence why we had so many goes at getting the cells out!

Hope that pete and Frank…[Read more]

Hi Dai,

Just checking in and hoping that the new regime will work wonders for you :-). Go on you can do it….you deserve the success as you are so supportive of the rest of us!

Vicki and Colin x

Hi Sue, Firstly welcome to the site, not a thing you ever wanted but the people on here are good people and you will get lots of support I am sure. Secondly if you have any questions about Myeloma you have three avenues. One, the site forum, two, the site itself which has bags of UP-TO-DATE information and lastly the Myeloma UK Nurse – her…[Read more]

Hi Charlotte,

I agree with the others, if you have any concerns, ask for a pet scan if that's what's required. They can only say no, and if they do ask them to explain in full why one is not necessary! I am sure everything is ok but to reassure yourself it's worth it. Also with regard to blood tests I reckon they are pretty good at picking…[Read more]

Hi Jean,

Re avoiding infection before SCT, yes that's true because they won't do it if there is infection…..not in Gloucestershire anyway. I asked the SCT nurse about what if I got a cold etc. She said if Colin caught a cold they would probably still do it, but they wouldn't do SCT if he had ear infection or sore throat infection. A friend of…[Read more]

Hi Emma,

Really sorry to hear about your mums current situation. I won't say keep,calm or try not to worry because I'd be the same. Although not sure what the issues are, I know that the medical teams always give you the worse case scenarios and will never say 100percent that everything will be ok because they did not do that when I was so…[Read more]

I can only offer my support Emma.

3 years ago I faced the possibly of becoming a Quadriplegic. When the surgeon came in to discuss the operation I said to him, ?if it all goes tits up don?t bring me around, I am not having my wife wipe my bum?. He just said, ?fair enough? and walked out. The next time I saw him was sitting on the end of…[Read more]