Tom do a search for "Musings from ward 9". I did a post whilst in ward 9 at Musgrove Hospital and I up dated it every day during my SCT. You might find it interesting.

Kindest regards – vasbyte

David

Just a quick welcome Tom, Got to take the wifey in to her "Xmas Lunch with the Girls".

I was diagnosed Jul 09 with a Single Plassewhatsit. It ate the 4th vertebrae in my neck and my head is now held up with internal scaffolding ? brilliant job. I have gone through the Sct, Nov/Dec 2010, and I am now on a plateau at 2.8 pp, I never did go…[Read more]

Hope today went well Keith 🙂

Vicki and Colin x

Hey chris,

Good to hear from you and glad that you and Lena are having some good times! Careful not to over do it now!

Colin is doing good too, touch wood. However now I am back at work he's got free licence to over do it and then is totally clapped out by the time I get home from work:-). still it's great to know the SCT is done, hope Lena…[Read more]

Hey Peter,

Who is the show off then!, that's brilliant. Colin only managed just over 2 million in total so you are a star. Going off red wine……just think you will have a few bottles to catch up on when you get better post SCT. Remember don't over do it….I'm having a job restraining Colin (not literally) :-), now that he feels a bit…[Read more]

Hi Dai,

Good luck with this new set of treatments :-), come on beat it into touch like the c diff……you do tell a good story and Although it's not funny you make beating c diff entertaining 😉

I know nothing about this bendamustine, but all I know is that you've got to hang about for manège sake, and the rest of us because for me I get…[Read more]

Blimey Jean and Frank,

That's a bolt out of the blue eh!. Sorry about the united but if that's man it'd then no loss there LOL (sorry Frank!).

It is weird when the SCT cycle starts, I can remember saying to friends how nervous we both were and they said, but that's what you've been bravely working towards! And they are right, however it…[Read more]

Yes ted, keep the fluid intake up!. Helen's description of the light chains was much more eloquent…….medical background see!

Good lick with your results ted and no need to beat the 31000 record!

Vicki and Colin x

Hey Megan,

Just noticed Phil has his cells harvested…..that is great and wishing you all the luck for the 17th. Start a thread up so that we can keep up and also give you both the support you will need 🙂

Vicki and Colin x

Hi Tom,

Welcome seems a funny word, but this forum is so helpful to you all as those with the condition and us supporters, who give some help where we can.

My partner Colin was diagnosed in 2011 and has been on the myeloma x1 trial, resulting in an SCT at the end of October early November 2012!. it's not the same treatment as you but he is…[Read more]

Firstly happy belated birthday to your 3 year old cells Tom……you do look young for your age :-), long long long may it continue!

Liz and kev sorry to hear of kev's little stay on hospital…..never good but hope the abs do the trick!

Keep the party going Tom and get that hair cut 🙂

Vicki and Colin x

John, I just curled up at that, my level of humour to a T. It has got me in so much trouble in the past as I expect it did your Dad.

When I was being told I had Advanced Prostate Cancer I said to the Consultant, ?Can you keep me alive until Myeloma kills me?. He answered very seriously, ?Yes, I am sure we can?. It then dawned on him what I…[Read more]

Sorry Charlie I cannot help. I had a PE from a DVT in my leg about a year before I was diagnosed but that is no help to you. Have you tried the Myeloma Nurse?

Kindest regards – Vasbyte

David

There has been much discussion whether it (6 pints of water) includes tea and coffee etc… Some say it does others it does not.

When I was diagnosed in July 2009 I was told in no uncertain terms that it is 6 pints of water a day and that means water and that was by the Consultant! Being an ex military man(and well trained by the wife) I am…[Read more]

And a big APPY birthday to them as well Tom. Mine are now 2 years old.

Kindest regards – vasbyte

David

Yes I think Tom is right Babs, I have never heard of vorinostat.

Kind regards – vasbyte

David

Ah Ali, that's lovely. Nice photo of them both.

You resemble your mum :-). She looks like a real bundle of fun!

Nice to put a face to a name….

Colins line came out today, so free of all gadgets! Hooray. So relieved. Bloods doing good and we are told he can eat normal food now, even Stilton! However we are saving that pleasure just in…[Read more]

Hi ted,

Colin was told his pps were17 at the start of his diagnosis, but his light chains were 31000. (yes that's 31 thousand!). The consultants never really explained the difference or significance of each, but I think the light chains are significant due to floating about and affecting the kidneys……I could be wrong and not…[Read more]

Hello marija,

Welcome to the forum. My partner Colin was diagnosed in october 2011 and just had a transplant in October 2012, came home end of november 2012. This forum has been a huge help to blvd of us, either for me asking supporter questions, or on behalf of Colin as regards mm. I won't say I'm still not upset or worried but you sort of…[Read more]

Hi all,

Thanks Helen, Mavis and Dai for your good wishes. I'm still on tenterhooks waiting for something untoward to happen. I reckon Ali has a web cam in our living room because she said she had visions of me sticking thermometer in colins ear when he is asleep……not far wrong ther! 🙂

Ali, Colin is still very tired but is capable of…[Read more]