Hi Peggy,

Good luck to you!, Colin as you might know had his SCT done just recently so it's fresh in my mind. He took in DVD player, kindle, iPad, some writing paper. I would say he used each of them only a small amount as tiredness and concentration wained, as did from time to time not feeling up to it!. There is a tv in the room and that…[Read more]

Blimey Sarah and Henry,

What a rigmarole! I know what you mean about the care Sarah, you only want the best. Fortunately for us ours has been faultless, however Colin has had to rein me in a few times when I'm on the verge of trying to be doctor!. It's also very frustrating when it comes down to money….we had the same thing with the…[Read more]

Wonderful news Eve, thanks. I am really so pleased for you both. Photos, photos PLEASE.

KIndest regards – vasbyte

David

Hi all,

Good news with SCT nurse today! We are told the below results are very good, and his line can come out Monday, they did not have time to do it today;

Haemoglobin up to 12.7 (13 is the lower end of normal)
Platelets, up from 41 to 90 (about half way to normal)
Total White cell count 3.4 (3.6 is lower end of normal)
Neutrophils 1.9…[Read more]

Hi Carol,

Just wanted to say hi, sorry you've had a relapse. I'm glad to read your new treatment regime is going well and you feel more positive. We will always be grateful for the words of support you gave Colin and I at the beginning of his treatment and hope we can support you in return! 🙂

Colin had his SCT a month ago, so far so…[Read more]

Hi Tina,

May. Ot be much help, but question, have your mouth ulcers etc gone altogether yet? Could that be a cause? Colin was given muguard to do mouthwashes and the good old fashioned salt and water mouthwash a few times a day? Wonder if that might help. Also do you have a really dry mouth as that might also be a cause, I remebr the hospital…[Read more]

Dai,

If anyone can do it you can. Your poetic words, even in relation to c diff, should be a reward to get some success and cessation for your ongoing tummy trouble. You have had a lot to contend with. And yes I agree revlimid can't work if it's not in your system. They need to give you another go…..I'm for starting the Dai for revlimid and…[Read more]

Hi Keith, really enjoyed your post. Keep going buddy just keep going.

Kindest Regards – vasbyte

David

Hi all,

Whimps we are southern softies, too cold to go for a walk today :-), so we are saving it! Tom, I like the idea of us having an award, V C sounds good enough! Colin definitely deserves it, as I was only the small part player but by gosh that was hard enough! 🙂

Jill, I hope your mum Is continuing to do well on her treatment, at 83…[Read more]

Hi Emma & Ali,

Emma just a quick note to wish your mum well on her treatment, and so glad her kidneys have improved too. A huge bonus. This time last year colin had done one cycle and started the second. It felt like a massive mountain but it was surprising how we soon got into the swing…..not normal but a new normal!

Like Ali we didn't…[Read more]

Ann and Pete,

Always ask away……will help where we can. And yes we are still at home……it's great. Be prepared for Pete to sleep a lot and you to feel nervous at every twitch, sniff or flush of the face!

Chris."…….would be great to meet up with you both when we've got more energy in the new year!

Vicki & Colin x

Dai,

That was a lovely post, I imagined it all as it conjured up a lovely image of you and Janet :-). Colin said it all seemed very strange and even now……yep we are still at home!, colin will look at the birds, wander around the house and basically value it all as a new beginning.

Ali, is there a web cam at home…..how did you know I…[Read more]

Andy

That's not the news you wanted and struggling hrough that bxxx weather!. It's amazing how 7m people and there isn't a match. But it just goes to show that it is a risky business and they need all the factors to be right…..no consolation I know. I'm a great believer in medical advancement and reckon in the next few months more donors will…[Read more]

Andy, I think Dai has got it just about right!

Keep fighting my friend you just never know what is around the corner. July 2009 I was told in no uncertain terms that I would not make my 50th Wedding Anniversary. I have just had a great weekend with my children and am looking forward to a Ten Pin Bowling and Pizza night with my grandchildren…[Read more]

Hi Helen, My Daughter with my Wife behind her are on the left. I am on the right with my son behind me.

We have just come back from a beech bar, where we had a great curry, and are getting ready to go home tomorrow. I struggled a bit getting up the hill:-) .

A completely different anniversary for us but probably the best anniversary we…[Read more]

Hey Tom! Lol, can't believe youve got that pain too 🙁

Well we are home :-), have been since 330pm, had supper, col asleep and me not relaxed waiting for the next issue!. Steroids seem to have worked a fair bit.. Colin has been very emotional since being home and weve both had a few tears!. He said it felt strange to be hear? Did you guys feel…[Read more]

Andy

Just spotted this post! What great results. See I put it down to that holiday in Greece, the minor blip was cos you came back to blighty and it had to get used to the cols weather again! Sorry about the potassium, Colin hated those tablets too. He couldn't keep them down, but unlike Dai he has a weak stomach! Oh and a bit of good news, we…[Read more]

Stewart and vanessa,

Hello, sorry to hear your diagnosis. My partner Colin was diagnosed October 2011 and had his SCT beginning 29/10/12. He was discharged Tuesday but he had a little infection blip so we had to go back in Tuesday night. He's probably coming home to tomorrow.

He was on the myeloma 11 trial, having cycles of cyclophosmahide,…[Read more]

Andy

Thanks, have they found a donor match for you then? I remember reading an entry on the myeloma beacon site from a man who had donor transplant. Yes I think it's rough but he seemed so much better and making bit improvements. Also like the own cell transplant I observed how experienced and knowledgable all the staff are…..not much…[Read more]

Dai you are so funny! That made me laugh.

Tina give yourself a pat on the back. I thought Colin would never eat anything again. When he ate a small pot of fruit in syrup I nearly did a victory sprint round the hospital. I get the impression from the others that it's a long slow progress and they've really stressed that to us at the hospital so…[Read more]