Hi all,

Helen thanks for your advice, sorry you've still got the cough, blimey it's been going on. The wet weather in Cornwall won't help but hey we don't go to Cornwall for the weather, just the beautiful,scenery etc. We love it there. It seems like a long way away at the minute! I meant to bring coke in today Helen but was in a rush and…[Read more]

Hey Tom,

What a charming picture you paint! :-). I am sure that fills you with glee chris!. Sorry you've got the montezumas, however I seem to recall from dais post he had it for 2 days only, fingers crossed!

As for Colin they've got the sick feeling under control but the mouth is starting to play up so got this gel like mouthwash. He's…[Read more]

I know where you are all coming from, when I lost my Son, aged 19, in a car accident I just felt the world should stop spinning but it did not it just carried on. All that has been said by everybody here is so true. It took me 18 months to be able speak my late Sons name – Robert. That was 26 years ago now and I still put flowers on his grave…[Read more]

What a bummmer Keith.

Recently I had to chose between Radiotherapy which could "cure" my Advanced Prostate Cancer but could severely interfere with my bowels and everything else down there or Hormone Treatment where I could grow breasts and suffer hot sweats, amongst other unpleasant side effects, which would put the cancer on hold for 2…[Read more]

Mavis,

Great news and wishing you a lifetime remission 🙂 🙂 🙂

Well done and best of luck. Hooray!

Vicki and Colin xx

Hi both

Have a great holiday, if ever there is one deserved, it's now! 🙂

Vicki and Colin x

Hi chris,

Hope you are feeling ok, and montezumas revenge, if arrived is not too bad. Bet Lena will be glad to have you home :-). Hope you're enjoying the west wing. Hope the antibiotics are doing their job, best of luck. Nearly there for the upwards trend now. Your post made me laugh about the loo roll. At least I've got a sense of…[Read more]

Hi Mari, Tom and chris,

Hey chris, that's so kind of you to respond, especially in 'your condition'.you made me laugh about men sleeping through…..are you sure you've not met Colin before :-). Glad you are feeling a bit better and on the up. They seem to have got colins sicky feeling under control at the moment. Neutrophils 1.4 I think today,…[Read more]

Hey, What GREAT news – that is wonderful I am so please for you, just keep on going 😀 😎 😀

Kindest regards – vasbyte

David

Hi Peggy

My Colin had gcsf injections alone, for the first harvest attempt. That did not work for him. The next go he had cycloprime and gcsf…..that didnt work either. (he has always been stubborn!). His third attempt was gcsf and plerixafor, another injection that guarantees harvest. After all that he only got 2.07m which is enough for one…[Read more]

Hi chris,

Just a little note to say hi and hope things are going well for you. Hope you are enjoying your music. Sorry about the mouth, but the only way is up now as the song goes :-). It's good to compare notes although colins having a real rough ride. The preservative from the 16 bags of cells are making him feel very very sick!

Still glad…[Read more]

Hi Tina,

Can't really give you any advice as we are in the thick of it, at the moment, however just wanted to give you a few words of encouragement. It must be so hard, but just focus on a day at a time. I find that less scary than thinking about months ahead. As all the others have said you will turn a corner!

Vicki 🙂

Hi all,

Thanks for the advice 🙂 I do feel better for catching up on sleep this weekend! I'm here at hospital. Well we do not do things the easy way! Apparently week 1 is supposed to be the easy week, and people usually a bit bored, bit tired etc. Well since Thursday Colin has been feeling like the pits……his has felt so nauseous they've…[Read more]

Hi Chris,

Just tuning in to give you a bit of moral support. Hope you are not feeling too rough. Sorry the time is dragging but hey no pain no gain. Soon to out and about again.We are thinking of you x

Take care

Vicki 🙂

Hi All

Thanks for the good wishes, and Tom like the new onwards and upwards…..will do our best!

One thing I dont get..when colin had the big chemo on Tuesday evening, when they did his neutrophil count Wednesday it went up!. I checked what his neutrophil was yesterday and it has only just dropped a little bit from something like 4.08 to…[Read more]

Dear Sue

I am sorry to hear that Michael is coming to the end of his road. I am even sorrier that it was broken to you in an apparently brutal manner. Please do not feel you have to apologize for your posts you have absolutely no reason too. We are here for you.

Enjoy each other while you still have the chance.

My kindest regards ?…[Read more]

Rachel,

Not sure if you will get this and really sorry for a late reply. I don't look at the under 50s ever but it was something Dai said in a post that got me wondering. I was really shocked and upset when i realised it was outdoors paul. We are so so sorry. He posted some really helpful and positive comments when Colin was diagnosed. It was…[Read more]

Hey chris,

Thanks for the good wishes and hope that things are going well for you. It seems you are being looked after well so that's good. Hope Lena is doing ok. It's hard work watching someone sleep you know!. I'm doing the same ha ha!

Colins neutrophil count went up(is that right) after the melphalan. Typical,considering he could,not…[Read more]

Hi all,

Just catching up. At hospital with Colin as we speak. He has had the remainder of his stem cells returned today so all returned with no problems :-). The smell of sweetcorn is not as strong as I expected but still there and it does smell when I walk up the main ward! Our stem cell nurse Sian who helped with the return goes green every…[Read more]

Some really good replies on your topic Mary, reading them I think the thing that shines through is that ?Stress? is as individual as Myeloma.

My wife and I will have been married 50 years come Nov 24th and in those 50 years we, like you all, have had our ups and downs, nobody?s life is all milk and honey. We have had some pretty disastrous…[Read more]