Well done Andy, Just keep bl—y well going Myeloma does not like that at all:-D

kindest regards – VASBYTE

David

Hi Kerry, a belated welcome to the site.

Tom is right your best chance for info on this is our Myeloma Nurse. I have been on the site since 2009 and cannot remember anybody actually suffering from Osteonecrosis.

Did your Mother have smouldering myeloma for some years that went to full blown Myeloma or has she actually had Myeloma for 14…[Read more]

Hi Mike, I always hesitate about using the word welcome because none of us want to be here really, but you know what I mean I am sure, so welcome to the Club;-)

You will find bags of information on this site have a good look around and the really good thing is it is up to date. Most of the stats and info you will read on the net are at best…[Read more]

Hi ann and Peter

How are things going? Have not heard from you for a while?

Vicki and Colin x

Nioola,

Just catching up on your posts. I hope your dads hospital appointment went well today. I'm sorry to hear that he is suffering the side effects. When Colin was on induction treatment he did suffer with dex…..moody, tearful and up all hours of the night!

Hope all goes well. Is your dad going to hVe an SCT at the end of his induction…[Read more]

Hi Jane

As supporter I agree with Jean, if I feel Colin is not telling me stuff then I either run mind riot, Internet over drive etc, of make his life a misery by asking what's up, what can I do, how can I help every 5 mintutes! LOL. So I reckon it's easier for all concerned if you share a bit. A problem shared is a problem halved 🙂

Jean,…[Read more]

Thanks very much for your good wishes Jacqui and Joanne,

Keep everything crossed for us ! Surely it's got to be third time lucky 🙂

Vicki and Colin x

Sorry chris

I read your post on your thread first!. Thanks for your good wishes. We live in Gloucestershire so Colin is administering his own plerixafor at home tonight at 10pm which I am a bit nervous about and then we travel to Bristol in the morning. If the harvest starts and they think he needs more plerixafor we then have to go back from…[Read more]

Hi chris,

So pleased for you if that's the right word! Yes I can understand the range of emotions that you talk about! Your date is the same as colins, if the mega harvest you refer to works! We too panicked at colins first date and rushed about like mad things….we needn't have done that 🙂

Chris if you are still tuned in, Colin has felt…[Read more]

I loved your Waffle as you put it, like Tom and the others it brought a tear to my eye. I feel, through you, I have shared Stephen?s journey, one we will all have to make at some point, and I thank you for that.

My faith allows me to believe of an existence after death and in my world Stephen is looking down at you now and I am sure he is…[Read more]

Tina

Colin has not got to SCT yet but we are waiting…..I suggest iPod, iPad, kindle, smal DVD player if you have it…if not and none of those any good just want to say the very very best of luck 🙂

Vicki and Colin x

Pat and Jo,

Your posts about the leggings made me laugh! They don't suit everyone do they…..the jury is out for me at the moment, but I do know I'd get the same honest answer Colin :-).

Sorry you've been feeling rough pat but glad to hear its getting a bit better. Re your post about the treatment getting those mm cells, I used to say to…[Read more]

Jane

Colin sleeps loads. That's fine, as Tom says healing!. Colin seems to have bursts of energy and he will just run out of steam. He does a bit and rests a bit. Seems like the right thing to do. I'm sure your husband enjoys doing the jobs, make the most of it, then when you are better you can return the favour 🙂

Vicki and Colin x

Hi Tom,

Yep injections started yesterday morning, each day with the funded drug of prelixafor on Tuesday night at 10pm. Down to Bristol Wednesday for the third and final go. I am absolutely dreading it….I know this drug is supposed to be 80percent successful but the two other disappointment s have been so hard, for both of us in different way…[Read more]

Mari,

The good thing is that Stephen is home and they say that recovery is much better in your own bed and in familiar surroundings!. That's said though I remember eve posting that it's where the hard working starts!

I won't say keep your chin up, but thinking of you and would like to be as much support as possible if you find the time to…[Read more]

Andy

Thats wonderful news. You should have more sunny holidays and then those pps will be dropping again. So glad to hear that despite the cough and cold etc on your return.

We are back on the treadmill. Gcsf injections started yesterday, prelixafor Tuesday night and then we are down to Bristol on Wednesday for another gomat harvesting. I'm…[Read more]

Mary

Just picked up in the thread. You and Charlie are having a really rough time! Gosh there has been some eventful situations for you both to say the least…..no more shed roofing for either of you 🙂

I can't offer any help with the blood clot but I can offer you my experience about stress in supporting my partner. There were days when I…[Read more]

Hi Eve, better late than never as they say! Well done to both of you I will envy your trip to New Zealand, always on our agenda but never got there.

That is good news about Dia Tom, thanks

kindest regards – Vasbyte.

David

Hi Joanne

Sorry I'mjust catching up with posts too. I'm really sorry your dad had to go through that and you all are going through it with him! There is certainly no easy route through tis myeloma but we've all (watchers and sufferers) go to believe that it is do able, slim, Tom,david, debs, Helen, Ali's mum. I just go through the list every…[Read more]

Mari

Just wondering how things are going, and to say hi and hope all is well:-)

Vicki