Hi gill,

Hope that the radiotherapy has helped Stephens back. Colin had only one large dose of radio at the beginning. They warned us about burns and gave us some cream that I had to rub in every day. The burn has gone but like outdoors Paul there is a patch of brown skin about 3cm x 3cm. Seemed to do the trick so is well worth the scar….

Vicki 🙂

Hi all, Thanks for all the support Guys and Gals, I will say it again "you are a bunch of diamonds".

Peter, I was told that they are two separate trains going down adjacent tracks and as such treatment should not overlap. The question of course is which one will hit the buffers first Having said that they are apparently just starting to use…[Read more]

Thanks all,

Colin has just had day 2……and no pain yet! Come on you stem cells or my worry beads will be out soon!.

He seems a lot brighter, more perky, eating well and has been to work today. Glad you mentioned when the pain might come.me being me, wondered why it did not come about 10 seconds after the first injection LOL.

I had a…[Read more]

Hi Ali,

Great news, your mum seems to be doing great…..and glad to hear slow but sure progress. With of course a little bit of resting in between…. At least the weather is quite mild now, so hopefully there aren't too many about. I've got this image of you being surrounded by ironing and the kids up to their ears in jelly beans! Result for…[Read more]

Hi Megan and Phil

Sorry you had to join the club but welcome anyway. My partner Colin was diagnosed age 55, so older than Phil but the shocked was like a train hitting us!. Colin had back pain and a random blood test revealed the worst case scenario. We did not even know this mm thing existed, and frightened ourselves silly with all the other…[Read more]

Hi ted,

Great news for you….keep that mm at bay.

Hi Kevin and ange, my partner Colin was diagnosed October 2011 and as I have said many times a complete bolt out of the blue. I still find it hard to come to terms with sometimes, and colins the one with mm!. That said the hospital staff at Glos royal have been great. There is no doubt that…[Read more]

Hi Keith,

That all looks like good news to me, the bloods are down so the treatments working. I hope they can sort the sugars out. My uncle had type two diabetes (not myeloma related thank goodness) but he controlled his with diet. Hope this can work out for you too.

Vicki and Colin x

Hi Ali, Tom

Hey you are right Ali, in the end my uncle called in and somehow he managed to take over a bit and gave me a hand! I ended up being more of the labourer and tea maker, however still managed to get paint on my trousers, hands and oh on my ear!

Yes gcsfs start this evening, there aren't many times I hope for Colin to have pain but…[Read more]

Ali,

That sounds very positive progress for your mum. Glad to hear she has got out a bit. That must be very heartening for your mum as well as the rest of the family. Your mums sounds like a real trooper. You must all be very proud of her 🙂

Vicki and Colin

Hi Charlotte, Sorry to have missed your post earlier but I have been busy lately and have just come back from a nice week in Menorca with my Grand children.

Firstly I recommended that you do not go surfing the web for info and cures. All the information you want is on this excellent site. Have a look at the personal stories. Most Stats…[Read more]

Hi Tom,

Thanks that's reassuring to know…..and glad your still on top form. I have shared these posts with Colin and he has felt more positive too. He has felt a bit better today, 🙂 despite the weather! And overall an improvement. I hope Colin has had the can't be assed moment, or maybe that's post SCT and then feeling good clicks into…[Read more]

Thanks Eliz,

It has been quite a tough couple of days. Colin felt really poorly yesterday, sick, tired and I think really generally fed up of feeling I'll. Today he looked a bit better but has been very very emotional. I do wonder whether it was a reaction to Friday, or maybe the drugs. I hate to see him upset and feel really helpless that I…[Read more]

Hi jacqui,

We live in the forest of Dean. My partner colin was diagnosed age 55. We go to GRH for appointments. Colin is on myeloma 11 trial. He had 7 cycles of cyclophosphamide, dexamethasone and revlimid. The dex made him feel emotial, a bit moody and he had real problems sleeping. He did not mention tingling or anything, he did feel very…[Read more]

Hi all, Thanks all for the support and good wishes you are a real bag of diamonds.

I will let you know how I get on with the MRI Scan although I am not expecting the results until Fri 7th Sep.

You are right Tom, Onwards and Upwards vasbyting all the damm way!

Kindest regards ? vasbyte

David

Hi Ali,

Hope you had a great birthday. Wondered how your mum was doing? Colin has had a rough day following his cyclo priming, but is eating quite well so I'm happy 🙂

Vicki and Colin x

Hey thats great news for your mum, and you Jill,

This mm thing is hard at any age but your mum at 83. What a fighter. Keep on going and keep well x

Vicki and Colin x

Hi all, Many thanks for the good wishes.

It did not come as a surprise though. When I was being diagnosed with MM 3years ago I had to have 2 cat scans in quick succession. At the time there was a major row between the consultant radiologist and the haematology consultant about the number of scans I was havingin a short period of time. This…[Read more]

Hi Scott

I really hope this drug works for you. Like you say this condition is a real roller coaster. I am pleased to hear you can still play golf. Colin used to play and awful lot of gold so this will give him some heart that it's still possible to play golf with mm!

Good luck to you

Vicki and Colin x

Hi Tom,

Thanks for the support, will pass on your best to Colin. Well he's home, said he felt washed out and a bit swim my and like he wasn't here if that makes sense. Just packed him off to bed with sickness tablet and some other ones to do with the bladder. Then I can wake him up with another sicky type table at 9pm and another one we are…[Read more]

Well what a blinking day so far!

Went to hospital 0930am today. Appointment 10am. Colin went in at 1115, and they did obs(I assume blood test stuff!). We then found out that his neutrophil count at the hospital last Monday had been 0.6, so there a possibility no chemo today. That's the first up and down of the roller coaster. THEN, neutrophils…[Read more]