Hi Ali

Just wondering if d day happened and your mums home? Hope so as that's when the real recovery begins. Fingers crossed and all the best

Vicki and Colin x

Hi Tina,

Colin has been off treatment for about 8weeks waiting for SCT. He has been very tired at times (I put a post on about fatigue is this normal). I thought that he would have bounced back quicker but like the others have said your body takes a battering with this blunt instrument called chemo. Colins' tiredness has gone in peaks and…[Read more]

Hi Ali,

Your mums doing a stormer, well done. The time seems to have flown by, but not for you guys. I know what you mean about worrying about things 'happening' at night or out of hours. They always seem to lol! Never mind.

I hope your mum is still on the up and it's amazing that she might be out thursday. Go on her, she's a real star. It…[Read more]

Hi bill,

Welcome to the forum…..you say you are 41, there seems to be a higher incidence of young people getting this condition! My partner Colin is not as young as you but he's gone through the myeloma 11 trial and is awaiting his SCT dates. I won't say it has been easy in any shape or form, but the medical teams are well clued up on the…[Read more]

Hi Charlie,

Glad to hear things are going ok. Forgot to say,Colin had loads of hiccups when he was taking dex. Tried all sorts. Wished we spotted the option with taking yoghurt! Glad you are coping ok. Any questions please ask…..we are still awaiting colins new SCT dates!

Keep on going 🙂

Vicki and Colin x

Hi all,

Thanks very much for your encouraging posts! And Helen…..happy first anniversary!

It's really good to hear from you guys that have been there. I did not realise that the fatigue would carry on, but then I suppose the blunt instrument of chemotherapy takes a bit of getting over. It has been quite a busy week as it was my mums…[Read more]

Hi Ali,

Wow big surprise if your mum comes out Tuesday or Wednesday, but if they think she up to it…..recovery always best at home. When Colin had an infection once his neutrophils were 0.4 and he was still allowed to stay at home. We were just careful with cooking food well, washing salads or giving the salad a miss, no soft cheeses…[Read more]

Good luck Wendy

Hope all goes well so that you can progress with your holiday plans….

Vicki

Hi Andy and steph,

Well really pleased for you to hear that there are some options, old and new. That's really great. It's good to have a boost so that you can keep the really positive attitude going. This forum is an absolutely godsend for those who have the condition , and those that watch this going on!

Best of luck with your next phase…[Read more]

Hi Ali,

Like the others tuning in to see how you are all doing. I hope your mum is not feeling too rough, and never mind about having a bad hair day, and not being able to wear any nice head dresses, it's only temporary and like you say this will all be a big blip in 12 months,.

Thinking of you

Vicki and Colin x

Hi,

Well done paul, that seems to have gone quick, but maybe not for you! I hope you continue to recover well, enjoy mull, and get yourself in tip top shape for the next stage.

Vicki and Colin

Hi Wendy,

Keep those light chains down, you were an inspiration running that 10k, and your holiday to Asia to look forward to!. Just because the light chain tests costs a lot should have no bearing on if you need it…..you should have it.

Best of luck

Vicki x

Hi Ali,

Just tuning in to wish you and your mum well. Hope the odd food combinations have become more appetising, and the menu more normal! I wondered how your mum has been feeling today, and whether her bloods are on the down stage before the wonderful return upwards, maybe early days yet? I hope the mouthwashes do the trick, they've not…[Read more]

Hi Mari,

Thanks for your reply, and we hope you had a good relaxing holiday. It was a bit of a blow when colins harvest did not happen, and I was especially concerned and wanted to round up the entire medical profession to see what they could do! We are much calmer now and in the waiting game to see if they will fund the extra injections. Colin…[Read more]

Dear, Dear Gill, I missed your original post, I have been very busy the last month and I only pop in and out on the forum at the moment. The rest of the gang have said everything better than I could say it is great to see them rally to your support, support you richly deserve.

I wish you and Stephen the very best and I sincerely hope the…[Read more]

Hi Ali,

That's for taking the time to give us some encouragement!, given that you have so much on at the moment.

Glad to hear your mum is doing ok so far, and hope that she doesn't feel so sick. If she can eat a bit that's all the battle to keep her strength up,,,,,hopefully she will enjoy lollies in the hot weather in the future, not just…[Read more]

Hi Dai,

Some good news, the hospital phoned yesterday to say that they are trying to fund the gcsf booster injection thingy. Won't know until the next week to ten days, but at least they are trying. It's like the Olympics here…..we got ourselves in the frMe of mind ready for the final (SCT) and then the date of the race changed!,. Will have…[Read more]

Hi Alison,

All ok with us, just waiting for revised dates and whether the booster injection for gcsf will be available, sorry your mum is feeling sick, that's the one thing that colins dreading. Glad to hear she has been able to eat a bit though. I suppose now she is on the treadmill called the SCT things will go up and down like a yo…[Read more]

Hi ann and peter,

Really glad that petered is feeling good at the moment. O I know what you mean, Colin is good at the moment too and you can almost get caught out and forget this mm thing!, until a temperature crops up, or time for tablets……

We have heard from the hospital and they are looking to try to get funding for the drug…[Read more]