Hi Paul

How's it going?

Vicki and Colin

Hi Alison

Hope your mum is doing well. Have been thinking about it all week. I hope she will get through it with minimum problems. In a funny sort of way we want colins to come forward and then we don't. Keep us posted if you can.

Good luck 🙂 🙂

Vicki and Colin x

Hi Charlie

Glad you chose the trial and best of luck with it. Remember keep positive. I am sure that none of our friends on here who are sufferers do not want it and neither do we as the partners. It is definitely a whole new lifestyle and learning to get a grip of it! No easy and won't be,but go for stand keep your chin up

Vicki and Colin x

Glad to hear things are on the up Eve, enjoy the holiday!

Vicki and Colin x

Dai,

It does appear to be a bit of a post code lottery! Colins first attempt at harvest, like Chris' failed. He has not been offered,nor was it even mentioned about the option of the prefelixor (sorry spelling!).in fact when I mentioned in to our consultant during the conversation about the harvest she told us it was not available in the south…[Read more]

Your post Eve has brightened up my early morning, it now being 2.17 a.m. You tell Slim to keep going the way he is and he will be alright. I agree with everybody else book the holiday 😎

Kindest regards – vasbyte

David

Well I hope they sort you out Dia. It must be really debilitating.

I am having one of my rare, nowadays anyway, sleepless nights; I had a kip early on this afternoon which is unusual for me nowadays as I am always so busy. So I think that is the culprit.

Anyway, chin up buddy I am sure you can beat this, you have everything else that…[Read more]

Good luck for tomorrow Charlie,

See our post in the sting above. Michelles post is very upbeat and it has given us some heart here as well.

This mm thing, if it can't be beat is here to be tamed!. Our catch phrase is failure is not an option so go for it Charlie!

Vicki and Colin x

Chris,

Do not be disheartened! That is exactly what happened to Colin as well. Day 1 we wnt and his count was 5. There was a man there, not sure what he had but his count was less than 1!. Day 2 we went and colins count had only risen to 7, so that was first attempt failed.

We understood from the nurse and the doctor that this is a very…[Read more]

Hi all,

Thanks for the encouragement. We are a lot calmer now.

Ali, thanks for the information,that's good to know. With regard to the cycloprime, did your mums hair just fall out or was it a gradual thing where it calm out a handful at a time. It would be useful to know so that I can prepare Colin or cut his hair ha ha! That's a useful tip…[Read more]

Hello pennie and 'batter boy',

I have read your posts with interest. I can't be of great help to you, but you have both been a help to us.

My partner Colin was diagnosed in October 2011, age 55 and has now following treatment awaiting an SCT sometime in the next month. When he was diagnosed we were so concerned about the prognosis we had…[Read more]

Hello chris,

Good luck to you. My partner Colin was diagnosed with mm last October and is now waiting for SCT. Last week we went for stem cell harvest at south mead too. Colin did not have cyclopriming, and the first go did not work. However we think cycle is the next plan.

As reassurance the staff and doctor there, debbie the nurse and dr…[Read more]

Hi Charlie,

As colins partner. I can only really comment on what he has said to me and what I have observed. At first Colin was very scared, before taking any of the drugs, just reading the literature!. That said we bit the bullet and went for it. He had days where he felt lightheaded, sometimes breathless, very tired by early evening, at the…[Read more]

Hi Chris, I could not agree with you more, the facilities and Staff at the Beacon Centre are first class.

I wish you the very best of luck with your Harvest, I had to have two goes at it. At the first I only got something like 1.4 mil although I cannot remember the number exactly. I managed to get 2.4, in total, from the second harvest. I…[Read more]

Welcome Michele.

Your good news is good to hear and being positive is definitely the right attitude. Since my diagnosis in Jul 2009 my wife and I have taken the absolute maximum out of every hour, it sounds as if you are doing the same.

I look forward to hearing more from you. Got to go I am helping sorting out all the "Junk" we have…[Read more]

Hi all,

Yes it has been a bit of a downer! What we thought odd was that Colin had one more injection to go and they did not bother with it, and told us not to come back on the Friday. I do wonder whether if he had had the injection on the thursday night he might have been ok to go on the Friday….we won't know.

Tom, he had 4 injections in…[Read more]

Hi Charlie, I have only just picked up on this thread, I drop in and read the post nowadays but I am so busy I never seem to have time to settle down and reply:-) However something Eve said made me think I should comment.

[i]Lets start with transport,you can get financial help,also you do not say your age,but [b]you will be entitled to…[Read more]

Hi all,

It has been another one of those days:-0 Unfortunately the cell count only went up to 7. We had one more injection for tonight but they have decided not to bother with that and told us not to go back tomorrow. So it's the worst of all worlds. The consultant is not avaible to discuss until next Wednesday so we do not know what the…[Read more]

Hi sherif,

That's a great response for your mum especially after a few cycles. That's great. This site is very good to ask questions, and the nurse is very helpful. I know others have asked Ellen lots of questions…..

Hope everything goes well

Vicki

Mike,

I see that you are in the forest of Dean. Colin and I are too. We also go to Glos royal. This is where Colin goes for his monthly check up and blood test and an appointment with the consultant. At diagnosis we saw Dr Sean Macpherson. We've also seen Dr Johnny, Dr Frewin and Dr Chavda, all of whom we cannot fault, are prepared to answer…[Read more]