Hi Alison

That's great for your mum.well done to her! Showing off LOL! I hope Colin gets as many. He is due to start the injections on Saturday evening with harvest planned for 25/26th July. Really pleased and hope your mum is feeling pleased with herself. 😀 🙂 . Keep us posted.

Vicki and Colin x

Hi Karen,

Like the others I am not medical, but can only share my experience, my partner Colin was diagnosed with myeloma last October 2011, having had few symptoms, following a random blood test. His bloods revealed a paraprotein presence and indeed bence jones free light chains. I believe the light chains are a kind of waste product filtered…[Read more]

Best of luck Tom. Not a show I watch but I will when you are on 😉

kindest regards – vasbyte

David

Hi keith,

Glad to hear you are making sone progress…..easy for me to say, no pain no gain ha ha !

Good luck with your consultation Dai

Vicki and Colin x

Hi Suea,

Just wanted to add our thoughts to the others. As far as I am concerned I would leave no stone un turned, unless of course my partner adamantly did not want it.the medical teams are fantastic but it has to be joint decisions, trying everything! Go for it and I hope all goes well x

Vicki and Colin x

Hi Tom,

Thanks for the advice, much appreciated. Since Colin has been off treatment waiting for the big one, in the first 4 weeks he said he felt so tired and was a bit disappointed that he did not feel better. Well touching wood, how that's changed this week! He said he felt something 'change in his body', he's been back to near normal, tired…[Read more]

Hi Stephen,

Have been thinking about you! Glad to hear you are doing well and things aren't too bad. Your time in isolation has gone fast! Well, for us anyway, maybe not you 😀 Not long before you are home maybe? Keep going, onwards and upwards as Tom would say

Vicki and Colin x

Hi Etta

Good luck to you and good luck with SCT.I hope you are well recovered to visit your family in Oz. How fantastic. We are dreaming of a nice long hot holiday, but would make do with anywhere, as long as Colin is fit and healthy. Sounds like a few of us will be going through it one way or another in the next few weeks x

Vicki and Colin…[Read more]

Hello penny,

My partner was diagnosed in october 2011,our first experience of myeloma, as we had never heard of it. Up to now Colin has been able to work either from home or at work. He works an hour and 10 minutes away so the drive is arduous in itself. However colins employers have been excellent, as have mine when I have needed to take time,…[Read more]

Hi all,

Once again thanks for the advice re the lollies, and recounting your experiences. The info about the hickman line really helped Colin so thanks!

Mari, I hope you and Stephen enjoy your holiday! Colin and I were too apprehensive to travel anywhere as early on he had some cracking infections and a really bed rigour where I had to call…[Read more]

Hey well done Helen,

You have well and truly beaten this mm into submission and the new hairstyle to boot. Keep on going!

Vicki and Colin x

Hello Jen,

Fatigue thing is very common. Colin could sleep on a clothes line, i am sure!. Really glad your dad is responding and hope your boys are better soon. Always better safe than sorry. I am sure my new name is Mrs Dettox because I disinfect anything within an inch of it's life to keep the bugs at bay!:-)

Vicki x

Hi Beverley

Welcome! My partner Colin was diagnosed with mm last october 2011 and did not have smouldering myeloma. (well as far as we are aware!). I can't really offer any advice other than to agree with the others and be supporting andnencouraging when you need it:-) The friends on this site are well known for it!

Colin has finished his…[Read more]

Hi etta

Just been keeping up with your posts and stem cell harvest. Good luck with the rest of the SCT. Colin is a bit behind you and harvest is due 25/26july. Fingers crossed and best of luck

Vicki and Colin x

Dear all 🙂

We just wanted to say thanks for all of the support, information and guidance. It is so good to know that we are not alone. We've had a couple of wobbles today in terms of worry and anxiety, gone through the do we really need to do SCT thing, and recognising that this is the best option. Our provisional dates are :

Line in…[Read more]

Hi theresa

Colin had terrible back pain but ironically not at the point where he had the vertebrae fracture. This was love down at the bottom left of his back. Before diagnosis for mm Colin has always had back problems and had surgery about 10 or so years ago. So the pain relief was more about the lower back and we were told that the MRI was…[Read more]

Hi Dai,

You even make being I'll sound entertaining. Hope you are feeling better soon 🙂 🙂

Vicki and Colin x

That is a good idea Helen but I do not think I will have the time to sort it all out. Just about every month we are away somewhere, this month is the Scilly Isle next month Minorca and so on. But I might adapt it somehow.

Kindest regards – vasbyte

David

Thanks for the suggestions Girls. Nothing from the Boys but ahh well!

We actually renewed our vows on our 35th. I wanted to do it on our 25th but the wife is not a romantic like me 🙁

However, for our 35th I add a holiday in Singapore, Seychelles and Mauritius. We had the four original bridesmaids; they could not get into their dresses…[Read more]