Keep going Andy, I just have this feeling that you are going to crack it my friend.

Kindest regards – Vasbyte

David

Hi ann and Peter

Sorry to hear about your travel insurance. They get you all ways with feeble reasons!. Poor Pete.

We bit the bullet and went to Cornwall for two days to so e friends, Colin did really well considering we had a little temperature visit to the hospital on tuesday last and he's on antibiotics now! Sorry to hear they are being…[Read more]

Hi Andy and steph,

Just catching up. We bit the bullet and went away to Cornwall for two days, weather rubbish but good to get away.

At least you know where you are with the mm now, and it sounds like you have the top man on your case. Mavis is right re the back pain, it took ages to get the right does for Colin, they sent us to the…[Read more]

Hi Stephen and all,

Just catching up. Colin and I bit the bullet and went to Cornwall for a couple of days break! First time we've been away since he was diagnosed last October. A bit nervous before we went as he seems to pick up infections all the time, but it was worth it (weather rubbish!). Glad things are goin ok for you Stephen, we were…[Read more]

Hi Andy and wife (sorry what is her name?),

Thanks for your kind words….don't know how we cope with it really, but we are both stubborn ha ha, and don't like something to beat us!. We have tried to keep a bit of humour as well, though that's not easy. We said we were going to treat it like a project, needless to say I ended up demoted as…[Read more]

Hello only me,

We are sorry to hear your sad news. As I hear and know, there is no one like your mum. Our thoughts are with you and your family at this sad time.

Vicki and Colin x

It is a very good idea and in fact I had the Myeloma UK diary but it fell by the wayside I am afriad. I do wish I had the ability to keep a diary. I have tried many times in my life but I am just not "clerical". Give me a hammer and screwdriver and I am ok but a pen makes me shudder.

Kindest regards – vasbyte

David

I would really love to join you Dai but I have a funeral to attend in Barnstaple and I shall be getting ready or making my way there then.

Bridget was a lovely lady and I am pleased I met her. She always had a kind word and sound friendly advice. You could almost feel the smile in her posts. Love to you Bridget I am sure you are in God?s…[Read more]

Hi Alethea

Welcome 🙂 My partner Colin was diagnosed in October 2011. it was a complete bolt out of the blue. We have certainly been on a roller coaster….lots of hospital visits …..even today for a temperature and he has been off treatment for 4 wks now waiting SCT! The positive of what I'm saying is the medical teams are great at…[Read more]

Hi Andy,
🙂 🙂
We are with Dai and David. We asked the hard question at the beginning. How long and got told the 5 year average. We were then met by the trial nurse and I cried from one end of the hospital to the other…..that's not me to cry in public. That said we knew that worst, however it's become the challenge to avoid. Our catch…[Read more]

Dia has hit the important questions I think. However it depends on how hard you want to bite the bullet.

I insisted, and I mean insisted, on a Prognosis right from the very start. "If all goes well 2 to 3 years" I was told in July 2009. The question I would be asking is what treatments are now available to me and what is the prognosis if…[Read more]

Hi Alison,

Just wanted to wish your Mum all the best with this next stage. We have an appt to see the specialist nurse on 9th July so not too far behind. Hope all goes well, keep us posted if you can.

Vicki and Colin x:-)

Hi helen,

Just a quick line to say we hope you are feeling better after your gastro trouble. I get the impression it's best to take your time on this recovery trail. By they way Tom is right about the hair, it looks good. Still can't persuade Colin to go blond after SCT!

Vicki and Colin x

Hi only me,

We just wanted to drop you a quick line to say we are thinking of you, your Mum and family. Our thoughts and prayers are with you

Vicki and Colin

Hi Mavis, Just picked up your good news, WONDERFUL. I never reached Zero pp it must be lovely feeling. I cannot help with withdrawal systems from CDT I did not have any that I can recollect at all.

Keep strong now and enjoy yourself.

Kindest regards – Vasbyte

David

Hi Keith,

I have asked Colin how he was on revlimid. He had 7 cycles of it along with dex and cyclphosmhide. The first cycle he was very very tired and spent a couple of days in bed at one point. He went though peaks and troughs of having energy and being able to go to work on and off, but then completely wiped out by six thirty at night. There…[Read more]

I might try that instead of Citybond, sounds more up to date.

Thanks

Kindest regards – vasbyte

David

Hi penny

Will try and work out your blog, but best wishes for tomorrow and onwards xxxx

Vicki and Colin

Stephen

Best wishes for tomorrow xxx

Vicki and Colin xx