Hi David

Just wanted to wish you well with your consultants visit tomorrow 🙂

Vicki and Colin x

3 pp, that is good news Tina keep it up.

Yes, the loo is a problem for all of us I suspect. When I go anywhere my first concern is public toilets or the nearest Cafe or Pub!

Kindest regards – vasbyte

David

Best of luck to you both, I am sure everything will be ok. Now is the time to Vasbyte 🙂

Kindest regards

David

Hi Primrose, welcome to the site.

Kindest reagrds – vasbyte

David

I think you are right there Dia. I treat drinking the 3 ltrs a day as a separate issue from other fluids, almost like taking pills if you get what I mean.

Kindest regards ? vasbyte

David

p.s. I meant to add that I had Thrush ( a persistent urinary infection) prior to diagnosis. It is in fact one of the symptoms of Myeloma. I have not…[Read more]

Hi all,

David perky mite, read your musings. That is so helpful and in a lot of ways reassuring

Keith, thanks for your post. As I have said before it's good to hear it from people who have been there. I will also try to remember the tips like ice lollies, I also recall from somewhere that pineapple is also good. Sorry that you did not get a…[Read more]

Hi ann and Peter,

Very glad to hear that the heart problem has turned out to be a non problem, like you say one less thing to worry about!. Colin had a lot of breathlessness and lethargy. I'm sure as the treatment moves on he will get better in that regard. That says Colin manages to go to work at least 3 times in a week at the moment, either…[Read more]

Hello only me,

I have read your post and I am so sad for you, your mum and your family. I love my mum dearly and can only imagine what you are going through. There are no words of comfort that can ease this, but hopefully your mum can slip away quietly into a place of no pain or discomfort. Our thoughts and prayers are with you and your family…[Read more]

Hi there,

Just caught up with the post. You have had a real nightmare and thank goodness you have been diagnosed and now onto the treatment. My pattern Colin was diagnosed last October, unlike you, with few symptoms and discovered by a random blood test. Whilst I would not say we were relaxed with the treatment ( we found it all very…[Read more]

Hi Keith, the holiday sounded good! Best of luck with the new treatment.

Kindest reagrds – vasbyte

David

the email address does not work!

The following message to <enquiry@loveproductions.co.uk> was undeliverable.
The reason for the problem:
5.1.0 – Unknown address error 554-'Service unavailable; Client host [out1.ip04ir2.opaltelecom.net] blocked using Barracuda Reputation;…[Read more]

Welcome Judd, This is a great site and you will find all the information you need to take you on your journey, which will have its ups and downs. Have a good look around the site. Also there is a Myeloma UK nurse on call, free to call.

I have had Myeloma since June/July 2009. My neck broke getting out of bed and that was the first symptom I…[Read more]

Dai,

This latest post just about sums everything up. It made me feel such a mix of emotions, but I can tell that the post came from the heart. Thank you so much. I am sure we will ask lots of questions to both the medical team and you 'fellow mm'ers.

For today we will try to have a 'normal' day and ponder some more later x

David (perky…[Read more]

Hi Vicki, Have a look at my "Musings from Ward 9". Click on Treatment, scroll down to the bottom and click on page 3, you should find it on there.

Kindest reagards

David

Hello Dai,

Thanks so much for this very informative and detailed post. Considering we knew SCT was the next stage it has certainly shaken us up over the last couple of days and colin seems to be having some peaks and troughs of nerves. I'm not sure what I feel like. It is so helpful to have contact with someone like you because not only have…[Read more]

Dear Siobahn,

What can I say that others have not already said, we are all so sad at your news. She was a good friend to me and I shall always remember her with affection.

My deepest sympathy

David

Stephen,

Thank you so much. Colin has read your blog and found it so so helpful. We hope it goes well for you, we will be thinking of you. I am sure there are lots of questions so any info will be greatly received.

Keep in touch 🙂

Vicki and Colin xx

Tom and all

Thanks so much. He has read these posts and I think it has helped. He was actually singing in the bathroom! , not a good sound LOL, but it's nice to hear him sounding a bit happy.

I can t tell you have much this is helping both of us. Stephen has also done some brilliant posts re harvest etc and we will reply to him too…[Read more]

Hi Andy,debs,helen, gill,eve,

Thanks very much for your positive responses and honest comments. Its so good to hear that it made a difference. I can tell that it is very much on colins mind at the minute. I am sure we will go over this a lot in the next few weeks. I have shared your positive thoughts with him and he appreciates it greatly. We…[Read more]

Oh dear,

I spent a lot of time thinking about you yesterday. It's really rubbish isn't it. It would be almost a relief if it was just! mM wouldn't it and who would have thought any of us would say that. Not sleeping does not help with the lack of energy that all the worry takes out of you doesn't it. I really hope your mum is feeling a bit…[Read more]