Hi Chris, Yes, that would fit in. My first skeletal survey showed no other lesions other than the flipping great Tumour eating my neck.

Kindest regards – vasbyte

David

Keep going buddy – just keep bl**dy well going.

Kindest regards – Vasbyte

David

That is interesting about the IV bisphosphonates.

I take Loron, two tablets every day and have been taking them since Aug 2009. I have had no reaction or side effects from them at all.

From reading the posts over the years I can only remember a couple of other people mentioning they take Loron, I wonder why they proscribe different…[Read more]

Hello chris

My partner Colin was diagnosed in October 2011. He is also taking dexamethasone. Overall he is not too bad with this but like the others have said sometimes gets a bit grumpy (usual! So what's the difference ?). to be honest I just ignore it. He too has a disrupted sleep pattern and he gets up and reads for a bit, watches tv and the…[Read more]

Hi Jane,

Welcome.:-) My partner Colin was diagnosed on October 2011. He is on slightly different treatment to you but as many others have said it is a very individual condition and lots of variations on the treatment style. With very best wishes, keep focussed and your chin up. All will be well, it's just a bit of a rocky road.

Vicki

Hi Chris Welcome(?).

CDT is a very personal experience in that most people seem to have different reactions to the drugs. I got very short tempered, which is most unlike me because I do not normally have a temper at all, and I could not sleep the night I took Dex. These two things seem to be quite common in most people we used to call it…[Read more]

The knee bone is connected to the……………………..:-D. Keep going Dai, just keep dem bones going Man!!

Kindest regards – Vasbyte

David

Hello Dai

I have read a number of your posts and you seem so well informed. Colins consultant mentioned that he seemed to secret more light chains than pps. He started at 31000 light chains, with pp of 17. 31000 seems a massively high number when you talk about 540 as a high starting point……I do wonder how col could get to that figure with…[Read more]

Hi Jean,

Glad u found the post useful. From memory they gave us some special cream to rub in, so that should help. Radio therapy just sounded scary. The radiographers etc are lovely people and that helped so much. I was so stressed that I was trying to tell the consultant as much information as I could, she must have thought I was a babbling…[Read more]

Hi Ann and Peter,

Hope all going well. Re the radiotherapy. Colin did not lose any hair.his was a one off big dose.we don't know what a big dose actually meant but he had just the one session. As I said they gave him medication for potential sickness/upset tum. Colin said that he felt sick but not enough to have tablets. I recall we were told…[Read more]

That is a good point – [u][b]Drink Guinness [/b][/u];-)

kindest regards – vasbyte

David

Hi Ann & Peter,

Glad all went well today! Thought about you both. I have heard of light chain myeloma. Colins pp level was lower but his light chains were much higher. No one has said what sort of mm that col has but last month the consultant mentioned that he seemed to 'spurt' more light chains than pp's. Don't know what that means in…[Read more]

Sorry to hear your news Liz, the very best of luck to Kev in his treatment which I am sure will contain it.

Kindest regards – Vasbyte

David

It never stops does it:-) Pancytopenic :-S I have been on this site since 2009 and there always seems to be something new.

Best of luck, I hope it is not as bad as you fear.

Kindest regards – vasbyte

David

Hi Carol, I lost a son at 19 years of age, he would be 45 now and no doubt married with children – sadly that was not to be. For 18 months I could not speak his name without welling up with tears. I still think of him and even now I am begining to feel emotional as I write this.

I believe when you lose someone you love the pain does not go…[Read more]

Ann, very best of luck for Tuesday. Remember to write the questions down!. Colin hasn't been much better today, although we did go to my mums for a short while, which is an improvement. Let's hope he's better tomorrow.

Echo what you say about each day being different, hope it all goes well for you both

Vicki & Colin x

Hi Paul,

I've not heard of this pace treatment but hope it goes well for you and you can then move on to the next stage. Hope you and your family have a great weekend, weather super. Keep those thoughts positive. Remember mind over matter can work. 🙂

You have been so positive so far and remember there will always be other options I am…[Read more]

Hi Theresa and Ann,

Fantastic weather today. Not bad for the uk. It's been a really hard day today. Colin finished his steroids yesterday. He slept all last night and for most of today. Got up for about 5hours in total. Ate not too bad but he said he felt totally wiped out and we both had a few tears and I know he was thinking about what he…[Read more]

Sorry to hear things are not going to well Paul. You and Andy G seem to be on the same path.

Chins up and Vasbyte my friends.

KIndest regards

David

Hi Ann,

Good to hear from you. It is amazing how time flies. On the one hand it seems an age and on the other, a lifetime (even more so for Colin!),

Colin dex cycle is 4 days worth at the beginning of the cycle (20 tablets each day) and then something like day 12 for 4 days (same amounts). Colin sees the consultant once a month and has blood…[Read more]