Great News Eve, Go for the Cruise, set your mind that you are going to do it and go, go, go. We have just booked a flight to Alicanti, Spain for a week in Apr/May. It is Mo's Brother's 80th Birthday.

Kindest regards – Vasbyte

David

Hi Nicola Just wanted to say how I admire what you are doing for your Dad, it cannot be pleasant, my very best wishes for you and him.

Like most Myeloma sufferers I have had constipation and therefore can empathise with your Dad. I really on lots of roughage in my diet, I have never eaten so much greens and fruit.

My kindest regards ?…[Read more]

Hi Kay, Sorry to hear your SCT did not work as well as it might have. I have PN in my feet; I call it "spongy foot" because that is what it feels like. I don't get any pain with it, it is just there. I have had this from around Jan 10, I am not sure now when it started exactly!

Kindest regards – Vasbyte

David

Firstly Welcome (?) to our group and the forum, not a group you no doubt wished to join but here we all are.

I am 1 year post SCT now and I am leading a near normal life. I get tired sometimes in the afternoon, when I just sit down in my reclining chair and have a kip>:-) However, I am not really sure whether it is old age, I am 69, or…[Read more]

My Dear Michelle, I wish I could give you a set of easy answers that would solve all your problems but, alas, I cannot.

I lost my 19 year old son in a car accident, he was on his own and he died almost instantly at the scene one bleak October night. If he had to die how I wished he could have lived just for an hour until my wife and I could…[Read more]

Hi Chris, I have been away at my Daughters for the Christmas period and have just found your posts. As I have said it was a pity we could not have met at the Beacon Centre this morning, however if you want to meet for a chat Mo and I will be more than happy.

Your feelings, emotions and perhaps anger at your situation are about par for the…[Read more]

Hi Chris, unfortunately I did not read your post until I had returned from the Beacon Centre. If you want to meet and have a chat Mo and I would be more than happy.

Kindest regards ? vasbyte

David

Welcome (?) to the group Lynda. I suffer from Myeloma and my wife is the career however I just would like to wish you and Pete well, I am sure you will not only learn a great deal about Myeloma from this site but you will meet some really nice people.

Kindest regards – vasbyte

David

Hi Wendy, I have not corresponded on this discussion because it is way out of my league and knowledge.

The only information I had was that in Little Rock, Arkansas there is a hospital that specializes in this type treatment. Apparently the story is the founder of Wal-Mart, the big American Supermarket that bought ASDA, had Myeloma and he had…[Read more]

Hi Gary & Hara, Welcome (?) to the club. For me the key is talking about it when people want to talk about it and not allowing the "elephant in the room" scenario. I do get a little down some days, not so much depression just that I just do not feel my normal happy self.

I found your post very interesting Hara, 10 years remission well done.…[Read more]

Sounds great well done to the both of you – now relaxe and have a very happy Christmas and New Year.

kindest Regards Vasbyte

David

I am pleased you have an outcome that suits everybody. My very best wishes to him.

Kindest regards – vasbyte

David

I know exactly what you mean Eve. I have had hearing problems since leaving the forces, in any group it is very trying. I cannot concentrate on what everybody is saying and miss a lot of what is said. Nowadays I try to grasp the core of what is being said and then just nod and smile. I get fed up with keep asking people what they have said,…[Read more]

Yes, very interesting they were certainly upbeat about the drugs being presented and no doubt part of the progression in finding "treatment" if not a "Cure".

Thanks and a Merry Christmas and a safe new year.

Kindest regards – vasbyte

David

Great Min, I think you are right. hey ho and away we go………

kindest regards – Vasbyte

David

Last night I determined I would remember what happened. And I remembered I did go to the pharmacy to collect my prescription on Thursday and was told that it would be ready Friday – I then forgot to collect it. So I am pleased that I managed to sort that out in my mind.

However, I went to collect my scripts today to be told the Surgery had…[Read more]

Hi Keith, Both my wife and I had the chesty cough after the flu jab and I have heard of several others who have had the same 🙁 .

I hope it clears up soon for you, kindest regards – Vasbyte

David

Human beings are such strange things, so diverse. I am totally up front about my illness with anyone who wants to talk about it, including strangers in the waiting room of life, so to speak. My wife would really rather not know I think. When I explain to her what is going on with me I always add the line, "I have to tell you this it may be…[Read more]