Thanks for the kind words Eve, and of course you are right. I have a wonderful caring Son and Daughter and they have tried to reassure me that they will look after their Mum I am not to worry. And, Mo is a strong willed lady but I still shed the odd tear when I think of her waking up alone. Whether I am shedding that tear for me I do wonder…[Read more]

How interesting Eve, I was in the Army for 17 years, 15 of them in the parachute Brigade. I was invalid out in 1978. I took the same attitude to Slim on my diagnosis. My biggest regret is that I will not be there for my wife when she needs me in the furture, and that thought makes me weep everytime.

Kindest reagrds – Vasbyte

David

yes, very interesting. I am the first Male, in my family, to live past 55 in three generations that includes uncles. As far as I can ascertain, and you can never be sure about the diagnosis of death years ago, my brother, who died at 52 was the first to die of a cancer. My other brothers died of a Brain clot, 55, and Tuberculosis,19.

As…[Read more]

That is really quite an incredible amount to raise at a coffee morning, well done.

Kindest reagrds – Vasbyte

David

If I remember correctly mine were down for at least 7 days, I cannot remember exactly how long but I know the Nurses voted me the most boring patient on the ward – because nothing was happening:-D

kindest regards – ~Vasbyte

David

Actually Tom, I did originally offer my body for research but the Consultant said it would not be suitable and would I please ensure I was taken off the donor register 😀 😀 😀

Nobody wants me boo hooo 🙁

Kindest reagards – Vasbyte

David

Hi Vicki,

Do not forget it is [b]Complan[/b] not ordinary milk shakes, this will build his body up you might need to get it proscribed by the hospital although I think you can buy it at Boots.

If he can eat a Penguin his throat cannot be too bad at this stage. The bad taste is par for the course all of his taste buds have been…[Read more]

Hi, I had my SCT 11/12 months ago. I had a bad throat and everything tasted foul after my Stem Cells were returned and I could not eat.

The Tai cleaning lady came up with a suggestion for me. Complan made with full cream milk, add a small jelly and two scoops of ice cream plus, if you can take it, a banana or mandarin orange. Wisk the lot up…[Read more]

Min, that sounds realy great. I loved the touch with the flower.

At one time of course it was perfectly normal to lay the body out on the dinning room table, but things have moved on and now it is a Chapel of Rest at the FDs. Progress, I do not know. To each his own.

kindest regards – vasbyte

David

We cremated Marilyn on Friday. I took a major part in coordinating the Funeral, the family were simply to distraught.

Marilyn was not a church going Christian, however, she did have some belief however small and as the local vicar said, ?99% Christians do not now go to church but that does not mean they are not entitled to a Christian…[Read more]

You have done fantastically well Tom, must be the Red Wine and Cucumbers;-) Keep going buddy you are an inspiration to us all.

Kindest regards ? Vasbyte

David

My sincere condolences Gina, I wish you and your family well.

Kindest regards ? vasbyte

David

Hi Min, We were in the Maldives just before the Tsunamai on Sun Island. We were celbrating our wedding annivesary, November. Great Place every body should go there once if they can, mind you the last time we went the place was overun by Russians and if you thought the Germans were rude you have not seen anything:-D .

Kindest regards -…[Read more]

Keep Strong Chelle I know it is hard. I have the Myeloma in our family but my wife is great she is a real brick and keeps me on the straight and narrow path we have to walk. Facing this "thing" without her would have been a nightmare and so I know how important you are to Phil.

Kindest reagards – Vasbyte

David

I am not an "Ah Humbug" man and I do enjoy Christmas but the magic went somwhat when I discovered last year that my wife buys my Christmas present and it is not delivered by Father Christmas:-S 😀 😀

Kindest Regards – Vasbyte

David

Hi Amelie, I am assuming you are referring to the Paraprotien number and if that is the case 5 is not that high, mine went up to 33!. Lately I note people referring to a Bone Myeloma measurement that is in percentages and again 5% would not appear to be high.

Every time I have talked to my Consultant about my Paraprotien measurement I have…[Read more]

Hi Dave, Welcome (?) to our little group. Myeloma affects everybody differently so you cannot set out any rules or firm guide lines. Everybody goes roughly alone the same path but that is about it. The good thing is that the group here has a wide experience of Myeloma and somebody will have been there before you. You sound as if you have…[Read more]

That is interesting I had a DVT and a following PE about 3 years ago. As it happened I had to go to a chiropodist some months later and she comented on my very dry feet and ankles.

Kindest regards – vasbyte

David

Yes, it is about 6 days if my memory serves me right. 0.5 is the go home point for neutrophils I believe but do not forget the rest of the blood measurements have to be correct as well such as White Blood Cell count.

It is a difficult time; I know what you and your mum are going through, having been there and bought the t shirt myself. Just…[Read more]