Hi Ruth,
You have not mentioned an MRI Scan, cat scan or even an X-Ray, most myeloma sufferers get at least an X-Ray looking for lesions in the bones. As example of this at my last appointment I reported I had lower back pain and I had an X-Ray within the hour! Lower back appears to be a favourite spot of Myeloma.

If I had a temperature…[Read more]

Hi Sarah,
If your Mum is going to use a Laptop can I suggest you set up a Hotmail account. My hospital had a free wireless connection but its? Firewall would not allow me to ?send? email. You can get around this by using a Browser Mail application. I picked G Mail (part of Goggle) which was very easy to set up and use. I would recommend…[Read more]

Have you got access to my medical notes Min? 😀

Hi Andy,

I do not want to dampen your enthusiasm but generally the pp level goes down quite quickly at the beginning of CDT treatment then it tails off, the last little bits being difficult to kill off.

I did read somewhere that they used to treat, irradiate I think, the Stem Cells used in transplants but found that it did not make a lot of…[Read more]

Hi Andy, firstly welcome(?) to our merry band.

I am 68 diagnosed in July 2009, PP level 39. Before I had my SCT, in December, I was absolutely convinced it was the way to go but doubts have begun to creep in and my personal jury is out on it. I did not have the problems of pain and movement that some seem to have with this disease, I was…[Read more]

A good piece of advice I had was from the Ward Sister when I had my SCT. Listen to your body it will tell you when it is tired she said, and when it does YOU ARE DAMM WELL TIRED ? REST and do not be a bl***y hero! 😀 Advice I always follow.

Kindest regards

David

Hi Amelie,

From what my consultant said Blood PP and Bone Marrow measurements are two distinct and separate measurements. They use Bone Marrow measurement early on to confirm the type of MM but after that, in my type IgG, they do not need to take Bone Marrow again, unless something dramatic happened where they thought my myeloma type had…[Read more]

Nice to hear from you again Sarah glad everything is going so well for you.

Kindest regards

David

Hi Clara,

Your Dad has clearly the right mental attitude to tackle this disease, ?Damm the Torpedoes?, is dead right. I wish him and you the very best of luck. He will know when he cannot go to work but until then I would give him every encouragement to try.

I look forward to further posts on his progress.

Kindest regards

David

Hi Only Me or should we address you as Only You:-),

The general medical consensus at the moment I understand is that there is no hereditary link. My Consultant said no link when asked.

Although having said that there has been at least two, I think, cases on this web site of father/mother and offspring getting the decease so I suspect the…[Read more]

Hi Ladies, You know my wife has always taken off her bra every night for as far as I can remember! In the good old days it used ……….. are well too much information here I think.

Keep the liberation movement alive is what I say

Kindest regards
David

Hi Henry,
Welcome (?) to our little band!

No doubt you will but my advice is NOT to bother searching the internet for a magic bullet. I have read all the blogs about Cucumber, Cumin, Red Wine standing on your head whilst singing the Red Flag 😀 etc.. etc.. IF there was a magic bullet we would all have found it years ago ? sorry to be frank…[Read more]

Hi Ruth,
Welcome (?) to our little band! The advice about NOT searching the internet for answers is very good advice. IF there was a magic bullet out there loads of sufferers would have found it years ago ? sorry to be frank but there is not one. There are only two sites you need to visit one is the MacMillan site and the other is this one.…[Read more]

Hi Min, I think the reply you will get will reflect the individual nature of this decease and of course the individual nature of human beings. We are all basically the same but, apart from twins, do you ever see two people alike – rarely.
I am lucky you might say I have a Consultant who I have total confidence in. I do not try to tell him…[Read more]

Hi Jon,

The South African branch of my family gave me a good South African saying to use when things get a little tough. [i][b]Vasbyte[/b][/i] it means bite hard. I use it all the time now it has so much meaning in it if you think about it.

Kindest regards, vasbyte
David

Hi Jon, welcome (?) to the group.

I like you need it out in the open. I hate the whispered words said in a corner that you can just catch out of the corner of your eye. My wife and I have discussed my Myeloma down to where I want to die! Not that I intend to die for a few more years you understand. To support this openness I send a Medical…[Read more]

Hi Shirls, I was allowed to "mix with the human race" to use my Consultants words after the 6 weeks period. However I had, and still have for that matter, the same restrictions as yourself; avoid crowded places, people who have colds etc… . It has almost become habit now that I look around for people sniffing or coughing at the supermarket…[Read more]

Hi Annie, Welcome(?) to our little group.

I cannot help you specifically but thought I would just say hallo. You will find the forum very helpful and there are some great people on it. Look forward to your postings.

Kindest regards
David