Hi Dave, Welcome(?) to the forum.

If you want to keep in touch you will always be able to reach me on this site, I am a permanent fixture. I have to keep a check on the site to ensure the girls all behave themselves, they can get so unruly sometimes 😀 .

I was diagnosed on the 11th July 2009, collapsed 4th vertebrae in my neck ? pp level…[Read more]

Thanks Girls for your encouragement.

I would be on Cloud Nine if my PP had gone to zero Bridget but only on cloud 8 for pps at 2.2. I set high standards for my body to achieve.>:-)

Kindest regards

David

Thanks for the heads up Bridget on whether the pill boxes are suitable for Revlimid etc… I will check that with the Pharmacist if/when I get to that stage.

Thanks also for the offer of the Publisher chart Gill, however I am just no good with charts and tick boxes. I take the pill forget to tick the box then cannot remember whether I took the…[Read more]

Hi Eve, I assume you are referring to a chart to ensure you take your pills in the correct order and time. I use a Pill wallet I purchased in Boots, it only does one week but I find that is ok. Every Monday I pop all my pills into their little slots for use that week. I find it a great help, I have a terrible memory and sometimes I did not…[Read more]

Hi Andrew, welcome to our little group 🙂 Are you a carer or a sufferer?

kindest regards

David

Sorry I cannot help. I am sure I have heard mention of Myeloma XI trial before so perhaps someone might have some infor on it.

Kindest regards
David

I believe the sweats are a side effect of the CDT treatment. I also had them when on CDT and just after CDT. One minute I would be sweating next freezing cold, my poor old wife suffered from me throwing off the duvet or alternatively had this Ice block trying to cuddle up! I think the cold spells were worse. At the time I ended up wearing…[Read more]

I find the best way to find a post is to click on the users name e.g., Gaye, KWilson, or my own if I am looking for one of my posts, there it lists all the posts that that person has done, 10 per page.

This site I think is at a half way (?) stage it is not as good as some forums I have been on but it is clearly moving there. A better search…[Read more]

Hey Kevin, welcome back I was beginning to think you had left us, but I suppose the good times had to end >:-)

Kindest Regards

David

Hi Christopher, I give my blood sample at my surgery about four days before my hospital appointment. As others have said it does mean that you have all the data to discus at your appointment, which I very much prefer.

Kindest regards
David

Enjoyed your blog. You seem to be the other end of the spectrum with regard to Dex.

I had bags of energy on it but had to give up any thought of sleep the night I took the tablets, normally Fridays.

Cannot say I noticed a weight problem although I note several of the ladies complain of putting it on. At the moment, having just…[Read more]

Hi Norman, Read my "Musings from ward 9". It is on page three of the Treatments section. It wil give you a good idea of the basic process and I am sure will answer most if not all you questions.
Best of luck

Kindest regards

David

Welcome to our merry band Christopher.

8 years is excellent to hear. You are right about the 24 courses and then it is supplied free of charge to the NHS.

I had/have Thalidomide induced PN in my feet, I call it "spongy foot" because that is what it feels like. I say had/have because there is no doubt in my mind that it has eased over…[Read more]

I am getting slightly confused here, can you help me out Gaye! I thought RT, Radiotherapy, was used to kill off tumours and the like, how do they use it in the treatment of a fractured bone?

Sorry if I am being a bit of numpty:-S
Kindest regards

David

Well done in getting your redundancy.

I was one of those idiots who always said I was never going to stop working! How wrong and stupid I was. I did work until I was 65 and only stopped because the Taxman made it unprofitable to continue! But boy am I pleased he did so I have never been so happy.

My only regret is that this disease is…[Read more]

Hi Em and Tanya, Welcome to our little, but very active, group.

I know it is a very worrying time at the present and it is all so new to you but you have come to the right place for help, support and good advice. Take time to have a good look around the site it has lots of correct and up to date information which will take some of the fear…[Read more]