Well done Shirls, just keep going 🙂 .

Gill talking about her dog's KC name of Courageous Cutey reminded me of my late Collies, Guinness, KC name ?Doubtful Russell?.

Guinness came from a long line of show dogs, indeed he had a KC winner for a granddaddy I believe. However, he was wall eyed (one blue and one brown) and very big for a…[Read more]

Hi Kay, I am pleased everything is back to normal that is as normal as it can be of course. Are you back on the Allopurinol?

I am taking a drug called co-Trimoxazole; I take 2 twice a day on Saturday and Sunday. They are an anti-biotic. I was warned they might have some serious side effects but so far alls I have had is a series of small…[Read more]

Hi Angie,
Welcome to our little group. They try to get the measure of cancer, Paraprotien, down until if it is not detectable it is in a plateau phase i.e. stable at a low figure, below 5 seems to be the norm. They will also seek to ensure that your Mum's other blood measurements are in good shape too such as platelets. This being ok she…[Read more]

Hi Keith, I generally type my "missives" in Microsoft Office Word then copy and paste. This site does not have a spell checker and I cannot live without one!
Kindest regards
David

Hi Webb Team/Admin,

Just a thought could you expand the Personal Profile section to include a small "who are you" section. I note that a member has started the "Who are you" posting again and it would be nice to have that sort of information in the profile so you could look it up when reading a post.
Kindest regards

David

Actually, that is a very, very good idea Mavis. 😛

Kindest regards

David

yes – it did brighten my day:-D
cheers

David

Yes Amelie, that is what a very experienced Consultant said to me. The Paraprotien level norm for most people is between 0 and 5. And, I still believe that to be the case. It is just where does the Bone Marrow measurement fit into all of this!

At my last appointment I asked if I would be required to give a Bone Marrow sample and my…[Read more]

Yes, it is one of my questions for my next appointment.

Since asking this question it would seem the two measurements (bone Marrow Myeloma activity and Paraprotien activity in the blood stream) are independent however I do not know. I always thought that one reflected the other but it would appear not so!

kindest regards
David

I did ask about this at my last appointment. My Consultants words to me were "You can now mix with the human race, just avoid people with colds etc if you can and be fussy about hygiene – otherwise enjoy life". And, yes, colds and bugs in general are more dangerous to an MM sufferer as you would expect them to be.

for a bit of fun (must get myself a life sometime!) I googled it and it came up with this:-

[i]Falsely attributed to Gaius Petronius Arbiter. Quote is from Charlton Ogburn, Jr. (1911-1998), in Harper's Magazine, "Merrill's Marauders: The truth about an incredible adventure" (Jan 1957)[/i]:-S

Gaius Petronius Arbiter did exist and he was a…[Read more]

Thanks to everybody that replied.

If you read all the posts and from the information I have from other local sufferers it just reinforces the individual nature of this decease. I have yet to find two people who are similar never mind the same. I thought there might be a pattern of PP measurement after an SCT , but far from it! Ahh well…[Read more]

Hi John,

I understand, and everybody is different and each hospital has their own way of doing things, that the normal process is that you have CDT (chemo) to reduce the number of Myeloma cells in your body, generally measured by Paraprotien but not always. Once they are down to a level acceptable to your Consultant he/she then puts you in…[Read more]

whoa there. No, you are in remission I just got confused, sorry:-D

Hi Gill,
I was very interested in your Bone Marrow being myeloma clear when your Paraprotien level was 4. I thought PP was a measure of the myeloma cells in your blood and hence bone marrow. Have a got something wrong here, which would not be unusual for me!

kindest regards

David

Hi Keith, do you know why it has gone or has it just gone of its own volition?

kindest regards

David