the very best of luck what ever it is Kay.

Kindest regards

David

You know Sarah this site can make me so sad sometimes, not depressed sad just sad that some people can be so cruel or others can have such rotten luck that nothing seems to go right for them. And, it makes me realise that although I have a terminal cancer which will, if the No 4 bus does not get me first, be responsible for my death I have been…[Read more]

Hi Laura, Welcome(?) to our group. As has been said you are in the right place.

You probably have been researching on the web to find out more about Myeloma, a lot of it is quite scary and out of date. You have bags of good information on this site and they will send you a free information pack that will give you all the details about…[Read more]

Hi Kay, welcome to our little band, sorry you had to join us:-/

I think the Consultants have seen it all before and therefore tend to assume things will take the "normal" (if you can use such a word when talking about Myeloma) route.

I am not a denial person but I can fully understand why some do take that attitude. ParaProtien is the…[Read more]

Well done Tom, and Ron for that matter.
When you say you have "lost" posts do you mean you cannot remember which section you put them in or you post and they just disappear? I have yet to lose, into the ether, a post and I post quite frequently.

I have just received my report from my last visit to my consultant. It is real great when you…[Read more]

I have had PN in both feet following Thalidomide (CDT) treatment, which finished around Feb 2010. I call it sponge foot because that is what it feels like. It does not bother me and I can live with it at the moment. I have been informed, by one of the many consultatants I have seen since diagnosis in July 2009, that it MAY go away but not to…[Read more]

Having had a dose of Shingles, that delayed my SCT, just before Christmas I can assure you I do not want another one. I take the anti-viral tablet and like all men I am not a tablet fan:-/

kindest regards

David

NO, NO Sarah, conkers are used to keep spiders away. My wife religiously collects them every year, drills a little hole in then, and then puts them in corners all around the house. I have got to be honest it does seem to work.

Since coming home from SCT my legs at night have felt "funny" like there is no blood circulating below the knees,…[Read more]

Very interesting, I can trace my family back to 1645, but, I would suspect, that the last 4 generations are the only ones that the cause of death can be really confirmed. Nobody died of cancer as far as I can ascertain, having said that, I am the first [u]male[/u] Marriott to live past 55 for the last 3 generations so perhaps they did not live…[Read more]

you are a ahead of me again Gaye 😉 David

You are a real inspiration of what a person can achieve if he wants to get off his a*se and "just do it". Great. Now where did I put my penny whistle?

Kindest regards

David

Well done Roz, a sad occasion I know but very well done. They will respond to your generous donation I am sure

Kindest regards

David

Congratulations to all concerned 😀

Thanks Sean, yes, now I understand, how very disappointing for you.

I went to the hospital Macmillan Nurse as well. A tip my friend do not be a bl**dy hero. If you need help at night say so, enough said.

Kindest regards

David

I have not received any such email. That sounds wrong you are right to be very wary Dai

kindest Regards

david

I cannot help with information on your mum's pending "infusion".

I take Loron – Sodium Clodronate every day to "bind the bones and stop calcium leaching off them" or at least that is what I think it is for 😀 I have been taking these for at lease 18 months now. No side affects as far as I can ascertain.

kindest…[Read more]

Good luck with the Trial you two I hope all goes well.

Kindest regards
David

My wife says when you stand in front of the mirror you gotta turn sideways for it to have a real affect:'-( :'-( 😉

Welcome back Shirls nice to hear everything is going well. Take it easy now:-)

kindest regards

David