Hi Vicki and Colin

Thanks for checking in!

I was thinking about Colins appointment tomorrow. Plan B will be a good one im sure! I have said all along we are very fortunate that there is a plan b,c,d etc.

If they can give Mum something for the acid burning in her stomach tomorrow at her appointment in clinic she will feel much better.…[Read more]

Hi Etta

Good luck for your SCT tomorrow. I will be thinking of you. My Mum is home now, spent 16 days in hospital. Despite being tired, which is inevitable shes doing well.

Love Alison xx

Hi Helen

Apart from the trip back to hospital on Friday night – Mums got another thrombosis. She had to stop her clexane injections as her platelets were low, and it suddenly appeared on her leg. She phoned the bleep doctor who told her to go to the receiving unit. All sorted, she has to take a lower dosage as shes lost a little bit of…[Read more]

Hi Wendy

Thats great news! 😀

Helen, definately a party! Great news too!:-)

Love Ali x

Hi Everyone

Mum was not allowed to go home yesterday as she still had quite bad tummy troubles:-(

The good news is she is home today:-D I think the extra night in hospital was worth it though. Although she is very tired, she looks much better and brighter. She has eaten a fair bit more than she has in the hospital. Shes been able to have…[Read more]

Hi

Vicki and Colin, I know you had a false start with collection, but im sure it will be 2nd time lucky for you. Please keep us informed about the hospital appointment on Monday.

Well, I cant quite believe it but Mum (all being well) will be out of hospital tomorrow (wed). That will be 14 days since she had the melphalan. She is certainly…[Read more]

Hi Dai

I can always rely on sound advice from you guys. Thanks ever so…

Its kind of easy for me to have time away from the MM. I have young family so they keep me entertained as you can imagine 🙂 kids have a wonderful knack of taking your mind off of things for a while.

I worry slightly though as my Dad still works, and he works…[Read more]

Hi Chaps

Helen.Yep my Mum is the same age as you and has had the same treatment as you, thats why I always hope for a reply from you, and im sure we will be discussing things for many years to come!

Mums platelets are still low at 9, shes to have her 3rd lot again tonight. Neutrophils 0.3. Shes abit shaky tonight and short of breath as…[Read more]

Hi Etta,

Good luck with your "line in " tomorrow. Mum will have been in hospital for 2 weeks as of tomorrow and we both said tonight that the time has flown by. Im sorry if at times I have sounded negative but as a bystander watching the person you love go through so much its very upsetting. Mum has just got on with it – theres no other way…[Read more]

Dear All

Just a quickie tonight.

Had a much better visit today. Mum was brighter, did not sleep in the time that Dad and I were there and we could hold a conversation. She,d been nibbling at a homemade cake id sent in and we came away feeling better than we have done in days:-)

D&V not stopped but a little better,she still feels…[Read more]

Hi Rach

I have replied to your other post, seeing that one first! x

Love Ali x

Hi Everyone

Well, this is day 11. I must say the last couple of days have been a real eye opener for Dad and I. I thought we were prepared……Mums having a tough time of it. Bloods 0 since Friday, platelets 4 as of yesterday. She had 2 bags of platelets last night. Nurses were waiting yesterday for temperature to spike to give…[Read more]

Hi Rach

My Mum was diagnosed last November – she was 57 at the time and 58 now. She had 6 cycles or RCD and is now on day 11 of her SCT. I am 37 if you need to chat private message me, or you can find me on facebook. Perhaps we could help each other as your Mum is a few weeks ahead of mine.

Love Alison xx

Hi Paul

Welcome home and well done!

Enjoy being at home and your own bed!

Rest up and take care

Love Alison x

Hi Helen

Thanks for your reply, thats just the type of info I hoped for.

So, day 8 after the chemo is today – thursday. I know everyone is different but I like to have a rough idea of when things are likely to happen.

I see you have booked a hol to Venice Helen, how lovely, thats a place I would love to go. We will have to make do with…[Read more]

Hi

Just an update on Mum. Well, what can I say? Shes having a tough time at the moment and I suppose for the last couple of days. D&V and loss of appetite. Its 6 days since her stem cells were returned so we understand that this is completely normal and the doctors are happy enough with how things are progressing. Its just not nice to be a…[Read more]

Hi Vicki and Colin

Just to let you know another fairly good day for Mum. Still feeling nauseous and sleepy today, but perked up this evening. Shes still eating – although she struggled at tea time with the weird spag bol with potatoes and veg combo, said she fancied a bacon sarnie so Dad said hed take her in whatever she fancies tomorrow and…[Read more]

Hi everyone

Vicki, Im sure they will sort it for Colin to use plerixafor, its so unfair the options are not the same for all, purely due to funding. Fingers crossed it will be soon. Just to let you know re the time Colin has had off his treatment. Mum had her last RCD in April so has had a good long wait for this next stage and her PP levels…[Read more]

Hi everyone

Thanks for your replies and advice – means alot!:-)

Mum was much brighter this morning – had a good nights sleep after having a little blue antisickness pill under her tongue last night. She had fish and chips for lunch and enjoyed it. When I left her at 2.30pm I could tell she was ready for a snooze(though she would never say…[Read more]

Dear Teresa

Im so sorry to hear your sad news about Peter.
Love Alison xx