Hi Mari

Im up and just about to get ready for todays events. Like Stephen , Mums got to be at hospital for 8.30am, at least the hospital is not too far (30 minute drive). The committee- spelling? at this time in a morning! (me and my Dad) are going along for support. Dads off work this week and I have put a days annual leave in. I have…[Read more]

Hi Mari,

I hope all is going to plan and you are both all set for Monday. My Mum (Margaret!) is very tired in the afternoon and is getting pain in her back and down her legs but we were assured yesterday that this is quite normal. We have got to be at daycase for between 8am – 8.30am – so much for a lie in! Plerixafor has been mentioned but i…[Read more]

Hi Etta

Another hurdle over, well done for your collection! A holiday to Oz sounds fantastic, where abouts do your daughters live? I lived there for a while, wish we were having some of their weather at the moment! Rest up now! xx

Hi Mari, my Mums name is Margaret. She doesnt post on here, prefering to know only as much as is necessary.…[Read more]

Hi Helen

Hoorah and well done! It was the "booked a holiday" part that made me giggle the most! Good for you 😀

Love Alison x

Hi Mari,

Mums at City Hospital in Nottingham.
Speaking to her on the phone last night and shes been looking at some of the medication she has to take, one says she cannot drive and another says she cannot drink milk. Cant understand the latter one as on Monday (collection day) shes been told to have a milky breakfast. Looks like another…[Read more]

Hi Dai

Sorry to hear your feeling poorly.

Hope it passes soon

Love Ali x

Hi Helen

Yes shes on the myeloma xi trial. Rev/Dex/Cyclophosphomide to start with. Mum doesnt sleep well either – even before the Myeloma. Its always a talking point, how much shes been awake at night, my Nana is the same (oh what ive got to look forward to!) Hoping after the SCT is over she will get the Revlimid as maintenence although I…[Read more]

HI Tom

Yes he did enjoy the bacon and eggs, dont think Mum could quite manage it though lol! xx

Hi Vicki and Colin

Im glad you got on ok at the hospital today. Its good to meet the nurses isnt it?, they are all really nice and easy to talk to.

Yes, its going to be a very busy couple of months now. Will be sick of hospitals!

Mum is ok thanks. Very tired but has stopped feel sick now, it came in waves over the weekend, but today…[Read more]

Hi Stephen

My Mum is not far behind you (pretty similar to Mari and Stephen). I do hope your transplant remains uneventful and I do love your choice of music!. Please, if your able to keep updating us – sending best wishes and hugs.

Love Ali x

HI Eve

I hope that Slim is doing much better now, are things settling down abit for you? Yes, I bet he is really upset at not going into shops!

I find it very hard to take it easy! at the best of times. Im lucky I suppose that I have my two lovely kids and a very supportive hubby at home to take my mind off of things. My work have been…[Read more]

Hi Helen,

I know when Mum was on Rev/Dex she had a hard time sleeping at the right time! Is there a possibility of adding a sleeping pill to your meds? I know Mums planning on asking if she gets the Rev maintenance treatment after SCT. Surely you would feel better after a good nights sleep?. I know im like a bear with a sore head if I dont…[Read more]

Hi Vicky and Colin

Just wishing all goes well on Monday for your appt with the nurse.

Love Ali x

Hi Helen

I can totally understand the devastation of losing your hair – apart from the chemotherapy it has been my Mums worst fear. We tried at first to find something that matched Mums hair exactly, which of course was never going to happen. So she got one that our hairdresser could cut, but unfortunately she got a bit scissor happy – you…[Read more]

Hi Eliz

Yes Mum is home – hoorah! Tired, but relieved this stage is over. Brave as always! Up this morning making my Dad bacon and eggs!

I have visions of old men coming up to you in the street patting your head! I hope you swatted them away like flies. When I was pregnant the check out lady in Asda said I had the largest bump she had…[Read more]

Hi Eliz

Thankyou so much for your kind reply. Yes, Mums had her line fitted and yes, there was a bed so as I type now she has the cyclophosphomide running through the drip. Not too much discomfort, she says she could feel the hugging and tugging. She was abit shaky after she had it done, possibly abit of shock but mainly due to hunger! so…[Read more]

Morning Dai

Thanks for that. Yes we will ask about anti sickness, Mums fear is the chemotherapy, we were told her hair would become thin after 2 weeks or so. This is all very real now. I just hope there will be a bed for her her on thursday so she can get it over with 🙁 As always she is very brave and knows its just got to be…[Read more]

Hi

Thanks Dai for your response

I spoke to Lynne today the specialist nurse (who is so lovely) and she went through the procedure again with me.

Mums going on thurs for Hickman line AND chemotherapy wash n rinse either thurs pm or fri am (hence the stay of 24 – 48 hours) So Mums 1 and 2 procedure is to be at the same time. The only snag…[Read more]

Morning guys

Thankyou for your replies.

I wonder if I got it wrong then? I could have sworn that they said she would have to stay in hospital for 24 – 48 hours. I do hope Mum can come home then as she hates staying in hospital. I have the email address of the Myeloma nurse Lynne so maybe I should contact her, although I dont like to be a…[Read more]