Hi Tina

Thats good news, and as Eve says you will be done and dusted for Christmas!

Wishing you all the very best for an "uneventful" SCT!

Love Ali xx

Hi Vicky

Just checking in to see how you are both doing? Hope everything went well with your SCT nurse yesterday:-) I know you dont want to tempt fate by giving dates and stuff and I completely understand. But, just to let you know I am thinking of you.

Love Ali xx

Hi Mari

Im sorry to hear Steve is having a rough ride. I remember this stage very well when my Mum was in. It does get better but whilst its happening its not nice for the patient or the "looker on". My Mum asked me not to visit for a couple of days as all she wanted to do was sleep and she hadnt got the energy to talk
even.

Big hugs to…[Read more]

Hi Jacqui

Yes, my Mum had her SCT 1st/2nd August. How are you feeling now? May I ask about your hair, has it made a re appearance yet? and if so could you describe it?

The Greek islands sound lovely, seems you have the same sort of idea as us. We just want a couple of weeks having fun in the sun, relaxing and being together:-).

Mum and…[Read more]

Hi Vicki

Thanks for listening to my little moans!

The immunisations are the childhood ones – like a newborn baby ( Polio , diptheria, tetanus and such like). Its funny as my baby nephew is having his at the moment! They are to start 4 months post SCT – so that will be December. Shes to have 1 set everymonth for 3 months. Her consultant…[Read more]

Hi Vicki

Sounds like you had a lovely weekend, it will do you both good to get out and about. Stayed out til 10pm – you dirty stop outs! 🙂

Glad you have dates, and yes let us know when Colins collected all those lovely millions of cells.

My Mums doing really good thankyou, except for the mouth ulcers and burning acid. Shes on lots of…[Read more]

Hi Sarah

Thats just fantastic news:-)

Enjoy!

Love Ali xx

Hi Chris

Enjoy the coast, hope the weather stays dry and sunny for you.

Maybe Pam left as she couldnt bare for Bobby to see her like that, but wasnt Ken her brother? there maybe some mention in the next episode! Lets hope.

Love Ali xx

Hi Mari

Just wishing Steve all the best for his SCT and hope that it all runs smoothly from now on.

Dont apolologise for not being around! seems you have had alot going on. I hope everything is ok with your Dad now.

Love Ali xx

Dear Cathy

That all sounds very positive news:-) Ivans had a rough ride hasnt he? with the added complication of the dialysis. I hope that he improves slowly but surely and he gets to come home soon, thats where he will get his strength back.

Thanks for posting – take care

Love Ali xx

Hi Chris

I too have been pondering what happened to Pam so I looked it up on wikepedia and found this [b][i]Season 10 saw Pam leave Bobby after she was involved in a car crash which resulted in her suffering severe burns. She disappeared from the hospital and Bobby never saw her again[/i] [/b],cant wait for Ken Barnes' return too ( how very sad…[Read more]

Hi Cathy

Just checking in to see how Ivans scan went? and how he is feeling.

I do hope you are taking care of yourself too, it can be very draining visiting hospital everyday. My dad found hed come home from visiting my Mum, then have to telephone round people to give updates which took about an hour and by that time it was bedtime and he…[Read more]

Hi Chris

Great news! Well done that man. That will give Vicki and Colin lots of encouragement.

You will have missed Dallas though, episode 2 8/10:-)

Please let us know when you get the date through for the big event.

Love Ali xx

Hi Helen

I hope your chest/cough is a little better? and good on your daughter for doing the Great North Run – bless her, shes brave 13 miles, has she done alot of training?:-)

Mums been on several types of antacid (if thats what they are?!), including Lanzoprazole. Been to see the consultant today who said to retry the Lanzoprazole but…[Read more]

HI Vicki and Colin

Well, firstly congratulations on the funding! That seems like a victory in itself:-)

Its no wonder Colin feels abit low (and you) we have said before about the rollercoaster ride this MM journey is. Highs and lows all the time and we are just not used to it are we?

I have no doubt though that when the time comes for…[Read more]

Dear Gill

Im so very sorry for your loss.

Love Ali xx

Hi Vicki

My Mums having a bit of bother at the moment. Shes still got a lot of acid in her stomach, which in turn has given her loads of ulcers in her mouth – she reckons about 30! They have tried her with 3 different types of antacid tablets but none are doing the trick. The acid wakes her up at night, then shes up for a few hours. Its…[Read more]

Hi Eve

Helen is right
When my Mum saw the specialist nurse 2 weeks ago she told us Mum would be randomised at 3 months, to either no maintenance, revlimid only or vorinostat and revlimid, which is version 5 of the Myeloma 11 trial (she said it was very new) so of course I got home and googled it and like you couldnt really find anything about…[Read more]

Hi Craig and Etta

Thankyou for posting, I was wondering how you were getting on.

What a relief Ettas home. My Mum had the bile/sickness – (shes been home 3 1/2 weeks) she still suffers quite badly from acid and as a result has a mouth full of ulcers. I dont recognise the woman in hospital to the woman now, Mums doing really well, still…[Read more]

Dear Cathy

Im sorry to hear that Ivan is having a rough ride of it.

As Eve says, try and catch hold of a Consultant and ask your questions (they used to do morning rounds with my Mum).

No wonder Ivan is feeling emotional – and you. Just stay as positive as you can (its so hard to look cheery when you visit and your loved one is soo ill…[Read more]