[AliParticipant]

Hi everyone

Thanks for your replies and advice – means alot!:-)

Mum was much brighter this morning – had a good nights sleep after having a little blue antisickness pill under her tongue last night. She had fish and chips for lunch and enjoyed it. When I left her at 2.30pm I could tell she was ready for a snooze(though she would never say so). She had soup for tea and a blackcurrant tart that my Dad took her in, so she is still eating quite well. This evening though she is a bit down as she waited until she felt sick before having anymore antisickness, Dad and I have both told her not to wait until she feels sick to take something (she was holding out for the blue pill again for a good nights sleep). Shes also had to have 2 bags of blood today. Mouthwash being used religiously Tom. On the whole though – a good day I think.

Vicki – I understand what you mean. The closer it becomes, you just want to get it over with. How are things with you guys?

Love Alison xx

[AliParticipant]

Dear Teresa

Im so sorry to hear your sad news about Peter.
Love Alison xx

[AliParticipant]

Hi Paul

Just checking in to see how things are going with you – and to let you know that you're being thought of.

Love Alison

[AliParticipant]

Hi Chris

I wish you well for your harvest tomorrow. My Mum has MM and had her cells collected a couple of weeks ago and SCT 1st August.

Fingers crossed you collect millions of little cells:-D

Keep us informed!

Alison x

[AliParticipant]

Hi Vicki

My Mum had the cyclophosphomide and the gcsf to mobilise, I was not aware this was not a standard sequence of events – hence the hairloss already. Her Hickman line is also on the right, she [b]does[/b] drive and rests one of those small chamois leather sponges that you would use to wipe your windscreen in between the seatbelt and her chest, she says its much more comfortable!

Love Alison x

[AliParticipant]

Hi Vicki and Colin

Im sorry that things didnt quite go to plan today – there was a lady when my Mum was there 2 weeks ago who had the same little blip. You say the nurses are not phased, and you are right, they have seen it all before and have tons of experience – its us that have not, and I think sometimes they forget thats its all new and scary for us, and disappointing when things dont quite go to plan. Like the others have said they will not stop! so please stay positive 🙂 and just prepare for a few more trips to the hospital this week.

I will be thinking of you

Love and a big hug from Ali x

[AliParticipant]

Hi Vicki and Colin

Just wanted to wish you luck for stem cell collection today, let us know how Colin gets on!.:-)

My Mum has got her date for SCT – next Wed 1st Aug unless a bed becomes available sooner – oh goodness – I dont think any of us expected it quite so quick, but as she had to wait a very long time for stem cell harvesting etc after her initial treatment they pulled out all the stops it seems!

Anyhow – happy harvesting!

Love Alison x

[AliParticipant]

Hey Paul

Just wanted to wish you all the very best for your SCT. I hope you find that you have an uneventful stay in hospital and a swift recovery. Yes, please keep us informed on your progress. My Mum is just a little behind you – her SCT date is 1st August unless there is a bed available sooner.

Love Ali x

[AliParticipant]

Hi Tina

Well done you! another hurdle over – enjoy and relax on your holidays, looks like the sun is shining for you.

Love Alison x

[AliParticipant]

Hi Mari

What a relief! Well done Steve! Have a much deserved rest, enjoy your holiday.

Love Alison x 😀

[AliParticipant]

Hi Stephen

Good to hear from you! Well done you. Take care of yourself and enjoy being back in your own bed.

Love Ali x

[AliParticipant]

Hi Helen

Mum did phone the daycase unit and she went down this pm (after a morning of shopping with me) she had bloods done and no sign of thrombosis showed up but the doc says it could be a small one? also could be an infection so she has some antibiotics just incase. She is back taking the clexane now. Potassium levels are a bit low so shes to eat bananas and drink orange juice, apart from all that and the fact shes got swollen eyes and dry itchy patches on her face shes fine! lol.

How brave of you to shave your own head, that must have been distressing. Mum has not yet looked at herself and she is adamant she will not. How very british of your hubby…more tea? If it werent such a sensitive subject I could have a small giggle.

Hi Dai

Yes my hubby does come up trumps at times and he has his uses:-) I hope you are feeling a little better today.

Hi Eve

I watched and collected up the hair and poured us a lovely glass of wine (a rarity for me as I dont usually drink – Mum raised an eyebrow!) Dad stood guard watching for the kids coming in from their friends house. Mum then put a scarf on and when my youngest boy came in he looked at Gran, then looked away,looked again and said "Gran, you look like a lady from a foreign country!" then he continued with his playing. It lightened the mood:-) How is Slim doing?

Love Alison x

[AliParticipant]

Hi Mari

Good news that the Stem Cells are being collected for sure. Its so mind numbingly boring being hooked up (as a watcher of this on Monday I can tell you I felt so drained!) and im sure that the prospect of a 4th day will not go down too well with Stephen – (you should have brought him 50 shades of grey to read lol)

Will you still be able to run with plan b? Stephen taking the train?

Well, Mums had a few "events" happen. Firstly her hair…was coming out just when she ran her hand through her hair. So, she decided she would sack it before it quit completely. She came round to borrow my hubbys clippers, but my lovely hubby set too and shaved her head (I said I would do it but possibly it would have been too upsetting a job) I dont know many son – in -laws that would have done that. Im still amazed by my very brave Mum, my hero.

Secondly she thinks she has another thrombosis, maybe its because she had to stop taking her clexane injection for a few days during the harvest? She goes to clinic on Monday, so we will find out then. I so understand the bad news associated with good news thing. Rollercoaster? Queasy?

Much Love Ali x

[AliParticipant]

Hi Mari

We are all rooting for Stephen! Tell him to get a wriggle on lol.

Yes, I do think you have to develope a certain strong will and determination and like you say its that that sees you through.

Fingers crossed it all works out in your favour Mari – get packing!

Love Ali x

[AliParticipant]

Hi Eliz

Yes she was very productive! All the pain over the weekend was definately worth it. Shes been to the coast today and ate fish and chips and felt better than she has done over the last few weeks! Fingers crossed for some good weather, I think we all deserve it!

Love Ali x

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