[AliParticipant]

Hi Mari

Good to hear the wonder drug has done the trick, and I hope you got a good phone call this evening saying how many Stephen has collected.

My hubby is like that with the packing…as long as hes got clean pants is what he says! but of course when we get there he starts with "why didnt you pack my blue tshirt" etc – men eh!

I am praying for the lovely weather to come as school hols are nearly upon us (lucky you). I have 2 boys aged 5 and 8 and being confined to the house is not something im looking forward to! Yes we are going to book to go away when Mum gets her date for SCT I will feel easier about making plans.

Are you driving Stephen to Kings tomorrow?

Love Ali x

[AliParticipant]

Hi Mari

I have posted on your other post too. Just want to say thanks for your support – It really means alot! I am very grateful that my Mum got what they need in the 1 go, the specialist nurse seemed very confident that 1 day is all it would take after the results of the blood tests came in, then she got the magic phone call last night.

Will be thinking of you again today….3 days on the machine? Will that get Stephen out of doing the packing for your hols? lol

Best of luck

Love Alison x

[AliParticipant]

Hey Mari

My fingers and toes are crossed for today, surely the extra gcsf and the plerixafor will do the trick. The nurses mentioned plerixafor to us last week and they were very confident it does the job very well. Like you say its just very expensive and they probably use it as plan B.

Im pleased you are able to still go on your jollies – a well earned rest is needed after this.

Please keep us informed

love Ali x

[AliParticipant]

Hi Vicki and Colin

Thankyou for your kind words. I am really pleased that she did it in 1 go! Mums chuffed she is spared another day at the hospital I think. I must say [b]I[/b] was exhausted last night! Its funny how by just sitting there makes you tired lol. Good luck to Colin – I hope its a breeze and he collects millions!

Hi Helen

Yes, what a relief! Mum cant fly as she had a clot and is taking clexane, but she and Dad are hoping to get away this week somewhere in this country – just a shame the weather is as it is. Hows work?

Love Alison x

[AliParticipant]

Hi Tom

You were crammed full of lovely cells anyhow, and its doing the trick nicely for you. I was under the impression you could only have 1 harvest procedure, but if you read Mari and Stephens story hes gone in today for his 2nd harvest.

Did heads roll at the hospital when that happened Tom?

Thanks for your kind message

Love Ali X

[AliParticipant]

Hi Mari

Im up and just about to get ready for todays events. Like Stephen , Mums got to be at hospital for 8.30am, at least the hospital is not too far (30 minute drive). The committee- spelling? at this time in a morning! (me and my Dad) are going along for support. Dads off work this week and I have put a days annual leave in. I have packed a picnic and am taking along the kids portable dvd player so we are not too fed up!. Mums been in terrible pain over the weekend, like you say lets hope the stem cells are doing their thing!.

Stephen is very brave – maybe its just something hes got to do alone, and lets hope you dont have to go with him on Wednesday and that he collects enough before then!

Will be thinking of you….

Love Alison x

Ps I will keep you informed

[AliParticipant]

Hi Mari,

I hope all is going to plan and you are both all set for Monday. My Mum (Margaret!) is very tired in the afternoon and is getting pain in her back and down her legs but we were assured yesterday that this is quite normal. We have got to be at daycase for between 8am – 8.30am – so much for a lie in! Plerixafor has been mentioned but i guess they see how you go first as the drug is so expensive.

Please can I get something straight in my mind? I understand this is Stephens 2nd SCT and they are collecting stem cells again? I had it in my head for some reason it was a process they could only do once (Not the SCT but the harvesting) I am truly relieved!

This forum, I have said many times is a godsend.

Have a lovely weekend

Love Alison xx

[AliParticipant]

Hi Etta

Another hurdle over, well done for your collection! A holiday to Oz sounds fantastic, where abouts do your daughters live? I lived there for a while, wish we were having some of their weather at the moment! Rest up now! xx

Hi Mari, my Mums name is Margaret. She doesnt post on here, prefering to know only as much as is necessary. I, on the other hand have found this site to be a godsend – thanks all 🙂

Love Ali x

[AliParticipant]

Hi Helen

Hoorah and well done! It was the "booked a holiday" part that made me giggle the most! Good for you 😀

Love Alison x

[AliParticipant]

Hi Mari,

Mums at City Hospital in Nottingham.
Speaking to her on the phone last night and shes been looking at some of the medication she has to take, one says she cannot drive and another says she cannot drink milk. Cant understand the latter one as on Monday (collection day) shes been told to have a milky breakfast. Looks like another phone call to the daycase unit!

Love Ali x

[AliParticipant]

Hi Dai

Sorry to hear your feeling poorly.

Hope it passes soon

Love Ali x

[AliParticipant]

Hi Helen

Yes shes on the myeloma xi trial. Rev/Dex/Cyclophosphomide to start with. Mum doesnt sleep well either – even before the Myeloma. Its always a talking point, how much shes been awake at night, my Nana is the same (oh what ive got to look forward to!) Hoping after the SCT is over she will get the Revlimid as maintenence although I thinks shes enjoying her sense of taste at the moment.

I think I saw somewhere that you are a nurse Helen? Hope the phased return goes well for you:-)

Love Alisonx

[AliParticipant]

HI Tom

Yes he did enjoy the bacon and eggs, dont think Mum could quite manage it though lol! xx

[AliParticipant]

Hi Vicki and Colin

Im glad you got on ok at the hospital today. Its good to meet the nurses isnt it?, they are all really nice and easy to talk to.

Yes, its going to be a very busy couple of months now. Will be sick of hospitals!

Mum is ok thanks. Very tired but has stopped feel sick now, it came in waves over the weekend, but today has not felt nauseous at all. She starts a whole host of tablets tomorrow (anti fungal, antibiotics etc) and starts the gcsfs. Collection to start Monday 16th. Just to let you know Vicki, she hasnt got any pain from the hickman line, its just a bit itchy where she has stitches.

Have a good evening

Love Ali x

[AliParticipant]

Hi Stephen

My Mum is not far behind you (pretty similar to Mari and Stephen). I do hope your transplant remains uneventful and I do love your choice of music!. Please, if your able to keep updating us – sending best wishes and hugs.

Love Ali x

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