Hi Helen – you mention travel insurance. My husband was insured with LV for 10 years with myeloma excluded. However they paid out 3 times for a broken leg in France, cancelled holiday because of chest infection and the extra costs when he had heart failure in France so I can recommend them if you have problems.
In the last 5 years we only…[Read more]

Hello Lyn, I hope this doesn't sound a negative response to your message. My husband was diagnosed in 2000 and although the next 10 years (we were only given months at the beginning) were full of stress, anxiety and for him a lot of illness we also had 10 of the most fulfilling years of our lives. We knew every day was precious so we lived them to…[Read more]

Please don't worry Jean, you were not to know. Regards Claudette

Hi Jean
Thank you for your good wishes. Sadly my husband died a year ago after 10 years illness but I learnt so much in those 10 years.

Regards
Claudette

Hi All My husband's paraproteins never went higher than the mid 30s. A friend had paraproteins in the 60s but his disease was/is much milder than my husband's. As others have said, paraproteins are only a part of the disease and is why we cannot compare individuals – as in everything else we are all different. The haemotologist can give the best…[Read more]

My limited knowledge is that alcoholism results in reduced B12 and therefore neuropathy. B12 supplements are therefore given to alcoholics. I don't think it helps in myeloma.
Regards
Claudette

I'm pleased my long winded email has been so well received. Awful as myeloma is, Howard and I were very aware of others who died suddenly e.g. from a heart attack and left their families with shock and regrets. Emotionally Howard and I were prepared for his death for all the 10 years. Although I pointed out, when in A&E last year, that we hadn't…[Read more]

Dear Chrissie
I have just read your story for the first time and would like to offer some encouragement. My husband was diagnosed in November 2000. He was in renal failure within days and on dialysis for a few days before his kidneys kicked in again and functioned at 25% for 7 years. He had all your husband's problems and more. He had every side…[Read more]