DaiCro replied to the topic Tiny voice recorder on sale till Sunday 1 April in the forum General 12 years, 8 months ago
Okay, loaded up photo's to Flickr… copied an url (or at least I think I have)…
Little mountain… click…[img]http://http://www.flickr.com/photos/43084913@N02/7034899025/in/set-72157629715206275[/img]
and…
DaiCro replied to the topic Tiny voice recorder on sale till Sunday 1 April in the forum General 12 years, 8 months ago
Ah, so you need a website or an online cache to store your images?
Dai.
DaiCro replied to the topic Will anything work? in the forum Treatment 12 years, 8 months ago
Hi Paul,
Velcade worked for me (at least while I was on it) but it was not the most pleasant of experiences with several nasty little side-effects issues/ Sense of taste was one of them… out of the window, I could have been chewing cardboard… but like you my buds revived during the rest week. :-/
I see Velcade as a bolt-cutter… it…[Read more]
DaiCro replied to the topic Will anything work? in the forum Treatment 12 years, 8 months ago
Hi Andy,
I really hope that Rev & Dex do the trick and get your pp's down to a workable level. Have they indicated the maximum allowable before treatment?
Before leaving Wales to seek refuge in Nottingham for mm treatment I was a 'Folk-Tales' CD story publisher and erstwhile Landlord. I feel proud of my achievement of being recognised and…[Read more]
DaiCro replied to the topic Tiny voice recorder on sale till Sunday 1 April in the forum General 12 years, 8 months ago
I'm with you on this Eve… lessons please Elizabeth. xxx
Dai.
DaiCro replied to the topic Just Made It in the forum Treatment 12 years, 8 months ago
Hi Eve,
How I managed to get through five full days on the harvester without needing a No.2 still escapes me. I am usually quite regular, (one of the things Janet found attractive about me when we first started courting – well, bless her, there wasn't a lot of choices) – I am convinced it was mind over matter (similar to miners who smoke a…[Read more]
DaiCro started the topic Just Giving…. in the forum Off topic 12 years, 8 months ago
I went to my eldest daughter Becky for lunch yesterday… with a couple of hours before she went to work to chill…. but we ended up discussing her 'Just Giving' day.
Bless her… she has secured a function centre wedding suite, complete with a fully licensed bar and separate coffee bar for an evening of fundraising events and has already…[Read more]
DaiCro replied to the topic Timely reminder – me on YouTube… in the forum Off topic 12 years, 8 months ago
Thank you Jean… I will check the link… May 27th 2008… perhaps an update is in order but it is part of my plan to upload a whole album's worth of my all-time favourite self-penned/collaboration songs.;-)
The process was quite easy on this occasion.. Neil sent me his basic lyric… I 'tidied' it up, wrote the bridge and the main part of…[Read more]
DaiCro replied to the topic Just Made It in the forum Treatment 12 years, 8 months ago
Excellent news Eve & Slim… at last something positive has come your way… enough for 2 SCT's.
I started my harvest schedule with a squeaky bum… by the end of the week, after 5 days on the m/c and 2 midnight returns for Pleraxifor (sp) injections, I just scraped in with 2.1m… and I had to wait until Monday am to find out! I was so…[Read more]
DaiCro replied to the topic Will anything work? in the forum Treatment 12 years, 8 months ago
What's your pp score Andy? Any movement at all since diagnosis? Have the medics indicated a figure for going ahead? Its good that there's no upward movement anyway… it sounds like your pp's need some sort of a kickstart in the right direction… perhaps you can get them to lick the equivalent of a PP3 battery.;-)
Let's hope the Rev & Dex…[Read more]
DaiCro replied to the topic Another 3 months in the forum General 12 years, 8 months ago
Good for you David… now put mm out of your mind until the few days before your next consult and enjoy your strength and health.8-)
Regards:-)
Dai.
DaiCro replied to the topic Another newbie in the forum Newcomers 12 years, 8 months ago
Hi Steph & Andy, may I wish you both a 'wish you didn't need to be here' welcome… but here you are and so are we but in no time at all it will be just 'us'.:-D
It's never 'only me', there is nothing new, from the most personal of side-effects (toilet troubles etc.,) to major procedures… there is always someone just ahead of you and soon…[Read more]
DaiCro replied to the topic Timely reminder – me on YouTube… in the forum Off topic 12 years, 8 months ago
Thank you Nettie,
Like your sterling and exciting jump, which left me breathless, it shows that we are more than the sum of this damned disease… that we have interests and skill-sets and achievements beyond those of suffering stoically.
😐
I wish we could get more people to use the off-topic to share their interests etc… 😎
Dai.
DaiCro replied to the topic finished my sct early, what now? in the forum General 12 years, 8 months ago
Hi all,
Well we have all heard the term 'frozen to the marrow'… and what have we all got in common? A cancer of the plasma cells in that very marrow… I know that I have virtually no regenerating marrow in my right arm, my upper left arm and my left femur… + my ribcage, which apparently looks like a pin cushion, with holes made by…[Read more]
DaiCro started the topic Timely reminder – me on YouTube…. in the forum Off topic 12 years, 8 months ago
Dex won't let me sleep so: I thought I'd let the hares see the bunny.:-D
A timely reminder of constant struggle and indefatigable spirit. My friend Neil from Ontario sent me this this morning:
http://www.thestar.com/news/canada/a…t-of-food?bn=1
And so I thought we might share our contribution… May, 27th 2008… four weeks after…[Read more]
DaiCro replied to the topic A traumatic start to my CDT! in the forum Treatment 12 years, 8 months ago
Ouch…
Sorry to hear you are having such a hard time of it Mavis… but you are in the right place and every test they do now will stand you in good stead once they have you balanced and going forward.
I too found that I was/am riddled. With a starting block stat of 3,600 Kappa Light Chains I am not surprised but although I was sent to see…[Read more]
DaiCro replied to the topic New bird(ish) in the forum General 12 years, 8 months ago
[b]Debs wrote and I quote:[/b]
[i]'Each site offers slightly different things…here you get a wider breadth of experience from lots of people that care very much, on the other site you can let rip in a way that this site won't let you unless you use lots of stars and hash signs!!!'[/i]
No longer the case people… I had a word with admin a…[Read more]
DaiCro replied to the topic Relapse after 5 years in the forum Newcomers 12 years, 8 months ago
I was declared in full remission after my course of Velcade… my expected 5 year SCT remission turned out to have lasted just 10 months.. and so I hoped for a year or so from Velcade after a miserable 6 months of bad side-effects… after three days in remission I came down with a cold (6th October, 2011) and still had it when I was declared…[Read more]
DaiCro replied to the topic New bird(ish) in the forum General 12 years, 8 months ago
Hi Kirsty,
I wish you as warm a welcome as can be expected… an unwelcome welcome if you like… an opposite, like the old TV programme, 'I Wish You Were(n't) Here'. But here you are so welcome.:-D
This is the only place on the net that you will ever need or ever need to be. 😎 🙂
There are a few American blogs and newsletters…[Read more]
DaiCro replied to the topic My beautiful brother in the forum End of Life and Grief 12 years, 8 months ago
It was untimely but I am so pleased for you that the farewell was both fair and well. Billy sounds like the sort of person you would like to lead you out… as for me I am opting for a DIY… on CD with pauses for whoever `i choose as my frontman… most likely my daughter Amy, a professional singer and used to the tech. I have included brief…[Read more]