Hi Teresa (my Irish Grandmother-In-Law had your spelling but was called Thirza):-)

Good luck with the trial, it sounds pretty powerful (I've been down the Velcade route). It sounds like a double whammy because Velcade has similar properties.8-)

I relapsed in January (confirmed January 9th) and was sent home with Revlimid and…[Read more]

Thanks Gill,

Given half the chance (and after a private word with my lead nurse) I will make it happen… although I won't play the mm card with Janet, I just need to assuage her fears and convince her that with Roy and Angie's support it is very doalble.:-)

On another matter, I recall the problems you were both having with Stephen's…[Read more]

Bridget,

You have been an absolute rock to so many of us for so long and yet you always manage to make us smile and feel relaxed… you do more than your part to make such an intrinsically morbid place to be into a delight at times.:-)

God bless you, I love you.8-)

Dai.

If you know what I meant then you are right to pretend that you don't… if you genuinely don't know what I meant then you don't need to pretend… best not really.:-D

But it was good wishes of the 'thank heaven for that' variety… I am sure that Stephen can translate.;-)

Go girl, pack now and go… and enjoy every single minute of your…[Read more]

Ha, you are right there Tom.

Min has explained to me that I can't make plans for Janet after I have gone… she is unique to herself and will deal with my passing as she fits, or as the occasion takes her… but I can't help looking at how our friends have dealt with loss and grief… from Roz, Tina, Sarah and Min and wonder which path will be…[Read more]

Hi Gill,

A few weeks ago Min decided it was time to move on from being an active member of the forum, although she may well look in from time to time.

I don't know if you have a facebook account but you can find her (and many of us) there. Look for Min Cato and request friendship.. if she is in a good mood she might sign you up.:-0…[Read more]

TFFT;-)

😀 😎 🙂

Dai.

Hi Tom 🙂 ,

In a nutshell my bloods have to be monitored closely to ensure that they do not drop to the point where either the prescription has to be [b]A[/b] altered (downward) or worse still, [b]B[/b] discontinued.:-(

After Cycle 1 there is a discernible drop but not to the point of either [b]A[/b] or [b]B[/b]… because of the nature of…[Read more]

Hi Terry,

This is the bit that we don't fully explain in the guide books. We usually offer a few homilies about taking it easy and letting it wash over you… grin and bear it, hunker down, go with the flow, etcetera, etcetera.:-|

You will get the advice and encouragements…' hold on for a little while longer', 'hang on in there', 'its…[Read more]

I am so sorry for your loss Jean… I too am close to my brother (14 months) and I know that he worries about me constantly. I hope that you and the rest of your brother's family find solace and comfort in each other at this time.

Regards

Dai.

AOK, normal, ditto, with knobs on… try not to sleep during the day… keep yourself awake with distracting things that don't encourage snoozing.:-)

I'm a fine one to talk… sleep, or rather the lack of it, is the bane of my life… Cousin Dex doesn't help but I know that a good night's sleep… a good seven hours or more without waking, is…[Read more]

Hi Gill,

My fingers are crossed for a false alarm, or at least something which may be unpleasant, needing whatever they can throw at it but not directly mm related and certainly not indicative of Rev failure. 😐

Stephen no longer has the strength and vitality of before but even so I could not manage to go to France doing little day by day…[Read more]

Thanks for that Bridget… as I have heard somewhere – 'Every Little Helps'.

The thing is, there are plenty of benefits, grants and bursaries available for long-term and terminal illness patients and their dependants but no central unit or help-point where you can go and find out what exactly is available and what is due to you. I find that…[Read more]

Hi Elizabeth and Bridget,

An American friend posted this and I watched with interest… mainly because she was so enthusiastic about Dr Wahis and the remarkable recovery she has made with this eating regime. I told Janet about it and she watched it with me… and then made me watch it for a third time.

We have done what we often do with…[Read more]

Thank you all for your supportive comments.

I am now on my rest week from the Revlimid… just me and my mate Dex (+ the usual suspects). My shoulder continues to improve but is still weal and doesn't take much to make it ache… but generally the pain has gone and it does seem to be getting stronger. Its my challenge to the Rev… fix the…[Read more]

My condolences to Jenny and a prayer for Mike.

I attended my first Nottingham Support Group meeting on Monday afternoon… approximately 22 in attendance – 50/50 mmer's and carers – and some of them were quite advanced. Only one of them has registered on this site (as a silent)… so we will never get to know just how many pass quietly over……[Read more]

Hi Eve,

Yes, I am going to put it to music… just four more lyrics to finish the FAWM project and then into the studio (well, my dining room actually). I have melodies for most of them and this one is already catered for so I'll do it first as a request from you.:-D

As for the rebel songs (and Eric Bogle) I have sung them all at one time…[Read more]