Hi Andy,

Sorry to read about your hospital stay, hope everything will be sorted and your back on treatment, these infections and temperature spikes are always a worry and Steph was quick to act I would’ve done the same!

Keep well love liz & kev xx

Hi Richard, glad to read your finally home and you continue making good progress!
Keep well

Liz & kev xx

TonyF congratulations on one year sct keep well!

Liz& kev xx

Hi Tom,

Those dex days! Kev takes his early morning but he still gets his wide awake night, although they reduced his from 40mg to 20mg the only difference he’s noticed is his down days happen quicker which he’s not happy about but there not so powerful (if you get what I mean) but he gets a couple of good days and we try and live a normal life…[Read more]

Hello David,

Glad you got the right diagnosis in the end, these DVTs are a side effect of revlimid and kev as always taken aspirin from day one, he did have a scare when he had one of his chest infections, the dr said they can cause small ones to collect in the lower lung, but sometimes people cannot tolerate aspirin, I suppose it would be…[Read more]

Hi carol,

It seems such a long time since kev had his sct but I can remember he wanted to sleep a lot,
But he also remembers the nurses & drs bombarding him with tests blood transfusions Ect: but I kept telling him it’ll all be worth it but then he’d fall asleep! Hang in there carol and here’s hoping the next few days won’t be too bad,

Take care…[Read more]

Hi Andy,

Granthams not too far from me and as for beer festival to say its only 10 mins away and never been to one! Always wanted to but never got round to we will have to try and go am sure kev would enjoy, As for those dex days kevs is a Wednesday so no sleep tomorrow night that goes for me as well so we end up getting up rather early then…[Read more]

Hi carol,

Thinking of you over the next few days hope it all goes well and the side effects aren’t too bad.

Take care love liz xx

Hi Tom,

Glad it went ok for you, how’s Elaine doing from one carer to another as I suspect kevs a lot like you and I try to keep everything normal whilst watching him like a hawk, and those dex days ooh! Even I’ve started staying awake all night and end up on tea duties, LOL!

Take care both of you and keep well
Love liz & kev xx

Hello Mandy,

Sorry to hear your remission was only a few weeks , I’m a carer for my husband kev who got six months remission which was truly devastating at the time, kev said he knew something was wrong for a while before it was confirmed. That was over a year ago and after another relapse with velcade he is now been on revlimid and dex for a…[Read more]

hi Carol,

good luck for monday, kev did all the above and got away without having any problems with his mouth,so ice and mouth wash are well worth it all the best and take care!

love liz xx

hi Andy,

hope every things going well, i see your going to the lakes soon, mine & kevs favourite place and cornwall! so if we don’t manage to get abroad thats where we’ll be booking. i see you mention nottingham do you have family or friends here? as thats where we live, was it you who mentioned in the past attending the nottm beer festival?…[Read more]

hi Tom,

hope all goes well monday, kev had velcade/dex sub cut: twice weekly into his stomach
he got very good results zapping his lights chains very quick but the P/neuropthy got really bad and they cut it down to half so do mention it if it starts as they can control it and stop any damage setting in, but I’m sure you’ll be vigilant tom and…[Read more]

Hi Tom,
Welcome back glad you had a nice break, as I’ve told jean we only want to go to mainland Spain (two hours away) so we’re thinking the same as you? It’s me that’s worrying kev would go tomorrow if he could, I’m going to try a couple that jeans suggested.

Love liz & kev xx

Ps Tom has your new treatment been sorted?

Hi jean,

Thanx for that I will certainly look into the two you’ve mentioned,
When I tried to get insurance for kev last year as soon as I put that he was on strong pain relieve they refused him, I’m wondering weather to mention it next time?
I always feel its best to be honest in these matters, but then kev says we’re only going to mainland…[Read more]

Hi Tina,

Sorry to hear you were unwell especially over Xmas, kev seemed to get pnueamonia quite a lot last year, they’ve now put him on regular antibiotics which seems to have done the trick!
Glad they got on top of yours quickly and you continue to keep well!

A happy & continued good health for 2014.

Love liz x

Hello Lesley,

I’m a carer for my husband kev and I did a coffee morning in November just gone, have you requested the myeloma pack from this forum? I got some amazing merchandise to help with the day, the pack also contained some cake recipes, what I also did was just put cake recipes into search and your spoilt for choice! I raised £230 with…[Read more]

Hi Stuart,

Just to let you know I’ve managed to load my avatar successfully! Apologys if it’s too scary!
LOL! Scrolling is still sticky though.

Regards liz

Hi Stuart,

My version I’m using is 7.0.4 (11b554a) hope this helps

Regards liz