Dizzyliz replied to the topic Stem Cell Collection…it's an A* result in the forum Treatment 10 years, 10 months ago
Hi carol,
That’s absolutely fantastic collection! Hope you don’t have to wait long for there return,
Can’t believe your still working! Good on you, kevs had a lot of bone damage and severe PN
And struggles to walk anywhere, so not working anymore.
Hope everything goes to plan very very soon!
Best wishes and a happy 2014!
Love liz & kev xx
Dizzyliz replied to the topic Are we new ?? in the forum General 10 years, 10 months ago
Hi Tom
Enjoy your break which I’m sure you will, I was just thinking me & kev could do with some warm sun but kev can’t get any insurance any recommendations?
Happy new year Tom & Elaine
Love liz & kev xx
Dizzyliz replied to the topic New treatment starts today. in the forum Treatment 10 years, 10 months ago
Hi Andy,
I see revlimid as come to an end, I hope the new treatment works for you and you and Steph continue enjoying your trips in 2014! I was wondering if there’s anyone on the forum also on this drug pomolidamide? Kev is on cycle 13 of revlimid and in the beginning had a rough ride with various side effects, he now seems to have settled down…[Read more]
Dizzyliz replied to the topic Will this be my last cycle? in the forum Treatment 10 years, 11 months ago
Hi Andy,
Just trying to catch up with posts as I’ve not been onto the forum for awhile a lot of changes and my iPad doesn’t like the new look site? But hopefully the web team will sort it.
I was interested to see you are on cycle 22 here’s hoping it carries on doing good and you get to 24! Kevs only half way but hopefully settled into it now…[Read more]
Dizzyliz replied to the topic New look website in the forum Off topic 10 years, 11 months ago
Hi just thought I’d let you know I have a iPad 2 and finding it very frustrating scrolling down it seems to be sticking! If you know what I mean?
Regards liz
Dizzyliz replied to the topic Revlimid continues to work its majic in the forum Treatment 10 years, 11 months ago
Hi David,
Just getting my head around this new site and catching up with all the posts as I have not been posting for a while. I’m glad to see revlimid is working for you kev is on cycle 12 and doing well, he has been getting quite a lot of chest infections but we think they have now got on top of things and he’s taking antibiotics until…[Read more]
Dizzyliz replied to the topic It's Back in the forum Treatment 10 years, 11 months ago
Hello Tom,
Sorry to hear your news,am certain your positivety will help you through this again,
I will keep my fingers crossed you get another four years! I know I’ve not been posting for some time (been poorly ) kevs not doing to bad he’s on cycle 12 of revlimid and at the moment he’s stable, hopefully I will now continue to pop in to the forum…[Read more]
Dizzyliz replied to the topic Keith Hindmarch in the forum End of Life and Grief 11 years, 6 months ago
Thankyou Andy,
Your written words were just what I couldn't quite convey at this very sad time, as kevs carer I get very emotional when one of the mm,ers passes away, Keith was always there with words of advice and comfort! Andy it would be lovely to think you'll be representing everyone on the forum Thankyou for that. R.I.P.…[Read more]
Dizzyliz replied to the topic Keith Hindmarch in the forum End of Life and Grief 11 years, 6 months ago
Dear sue,
My sincere condolences to you and the family, r.i.p. Keith!
Love liz & kev xx
Dizzyliz started the topic Treatment update.. in the forum Treatment 11 years, 9 months ago
Hi all,
Kev went for his four week checkup after getting over his pnueamonia and having a extra week off treatment his light chains are going in the right direction from 450 to 42!! Yes you read right and we are so pleased kevs even feeling tons better so let's hope this continues the less we see the hospital the better for now anyway!
Keep…[Read more]
Dizzyliz replied to the topic Michael in the forum End of Life and Grief 11 years, 9 months ago
Dear sue,
Just to send my condolences to you and your family,
You are in our thoughts love liz & kev xx
Dizzyliz replied to the topic Sam has relapsed. in the forum General 11 years, 9 months ago
Hi Nicki,
Sorry to hear Sam as relapsed and also having your own health issues, I care for my hubby kev who was diagnosed August 2010 had SCT April 2011 but sadly relapsed the following may 2012 and went straight onto velcade/ dex it worked well and he had the full eight cycles with the last three reduced because of PN in his feet & hands and…[Read more]
Dizzyliz replied to the topic MRI scan in the forum Treatment 11 years, 9 months ago
Hello David,
Sorry to read that MM is on the up its good there on the ball and hope the MRI goes well
Thinking of you keep well! Love liz & kev xx
Dizzyliz replied to the topic Bone Marrow Biopsy in the forum General 11 years, 9 months ago
Hi trish,
Fingers & everything else crossed for wed: the wait is like being in slow motion, hope all goes well and the news is good!
Thinking of you love liz & kev xx
Dizzyliz replied to the topic Ian in rehab in the forum General 11 years, 9 months ago
Hi Maureen,
Been reading your posts I'm a carer for hubby kev and the longest I've been away from him was when he had his sct ( three weeks) and the visiting does catch up with you. You must miss him terribly and I hope that Ian will be back home pretty soon
I will be keeping fingers crossed keep well.
Love liz & kev xx
Dizzyliz replied to the topic First time for everything… in the forum Treatment 11 years, 9 months ago
Hello Dai
Popped in to see how everyone's doing, sorry to hear of the long wait in DC it's happened to us and when your feeling tired and unable to sit on those horrible chairs, kevs nearly walked a couple of times I even blamed the chairs for my sciatica.
Anyway Dai glad you got to talk to someone in the end and good luck with your next…[Read more]
Dizzyliz replied to the topic Got call at las in the forum Treatment 11 years, 9 months ago
Hi jean
Will be thinking of you and frank hope all goes well, I will keeping looking in for updates take care.
Love liz & kev xx
Dizzyliz replied to the topic Pete's SCT – Done – now the recovery!!! in the forum Treatment 11 years, 9 months ago
Hi Ann & pete,
Good luck with the treatment time will fly by or though it won't seem like it at the time, hope all goes well!
Love liz & kev xx
Dizzyliz replied to the topic Three little words…… in the forum General 11 years, 9 months ago
Hi vicki & Colin,
Brilliant news, were so pleased for you both! Long may it last.
Love liz & kev xx
Dizzyliz replied to the topic Good News, Bad News and Old News Just Out… in the forum Treatment 11 years, 9 months ago
Hello Dai,
That's great news, here's hoping you continue to respond to your new regime, by the way isn't it great to have Jenny back in clinic, I think her and Sarah make a good team.
Keep well Dai and Janet, love liz & kev xx