Dizzyliz replied to the topic I was at Hospital Today and consultant said in the forum Treatment 11 years, 9 months ago
Hi Tom,
Well done you, it is nerve racking going to clinic weather it's good news or not, so congrats! Tom! Keep on doing whatever it is its working!! (Vodka):-/ hmmm?
Keep well love liz & kev xx
Dizzyliz replied to the topic new arrival in the forum Off topic 11 years, 9 months ago
WOW!:-)
It was only 61/2 months since our second granddaughter was born how time flies!
A BIG CONGRATULATIONS!!! Jean, Pat, Dai & Janet what lovely news
Love liz & kev xxxxx
Dizzyliz replied to the topic Update on kev in the forum Treatment 11 years, 9 months ago
Hi all,
LOL!:-) it made me laugh reading these last few posts, vicki it's great to hear Colin's doing tai chi, kevs just trying to walk down to the bottom of the street without having to sit on someone's wall for a rest! That's his goal to get there and back without taking a break? I think they need all the encouragement to take these steps,…[Read more]
Dizzyliz replied to the topic Here We Go Again in the forum Treatment 11 years, 9 months ago
Hi Keith,
Sorry to hear you've had a bad week kev was actually just like that three weeks ago and I was willing him to fight it ( pnueamonia) but this last week he's been feeling great and so upbeat UNTIL this morning! Crashed down big style it's so frustrating for him, he's gone so weak and the pain has kicked in from the radiotherapy he had…[Read more]
Dizzyliz replied to the topic Information/Experience on relapse and velcade in the forum General 11 years, 9 months ago
Hello dan,
What a time you are a all having, I do hope they get your dads back & legs sorted soon, I bet he's looking forward to seeing your sisters you too for that matter, anyway dan let me introduce myself my names liz and care for hubby kev he was diagnosed with MM aug: 2010 also with fractured sternum and ribs after treatment CDT went on…[Read more]
Dizzyliz replied to the topic Here We Go Again in the forum Treatment 11 years, 10 months ago
Hi Keith,
I too am keeping fingers crossed hope CDT works well for you.
Take care love liz & kev xx
Dizzyliz replied to the topic Update on kev in the forum Treatment 11 years, 10 months ago
Hi Tom, vicki &colin,
I was just thinking the same Gas & Air! I didn't go in with kev for his BMB but he only had local, it must be a Northern thing? 🙂 LOL! Hope Colin's ok now after his tumble? I'm like a mother hen when kevs out and about and the last few weeks he's not done much but it is a worry with the bone damage and how fragile…[Read more]
Dizzyliz replied to the topic Update on kev in the forum Treatment 11 years, 10 months ago
Hi vicki & Colin,
Kevs infection as finally gone, had a couple of blasts of radiotherapy last week on his ribs so far so good! And restarted on his rev/dex yesterday cycle 3 so fingers crossed for a trouble free three weeks.
Hope Colin's keeping well and yourself too!
Take care liz & kev xx
Dizzyliz replied to the topic Update on kev in the forum Treatment 11 years, 10 months ago
Hi Tom,
Good to hear from you how are you and Elaine? Hope you had a good Xmas and new year.
Kevs all sorted and ready to begin his radiotherapy they did all the marking out and begin tomorrow so hopefully this will bring him some pain relief, I'm just hoping the weather doesn't get any worse, the road outside is like a ice rink, how you coping…[Read more]
Dizzyliz started the topic Update on kev. in the forum Treatment 11 years, 10 months ago
Hi all,
Well where do I start! Kev as been in hospital with pneumonia last week came home late Friday with a cocktail of drugs, it was his week off the revlimid. Yesterday was his clinic day and to begin cycle 3 rev/dex but have been given another week off the revlimid to get over this infection, on the positive side the Lg have come down from…[Read more]
Dizzyliz replied to the topic Calling Eve in the forum Off topic 11 years, 10 months ago
Hi eve,
We're just getting ready to go to clinic this morning, kev had 8 cycles velcade/ dex last three were reduced because of PN quite bad in his feet, then was told its not working anymore so went straight onto rev/dex 3rd cycle this week. He's got three vertabrae crumbling and a lot of bone damage to his ribs. Three hospital stays since…[Read more]
Dizzyliz replied to the topic Calling Eve in the forum Off topic 11 years, 10 months ago
Hello eve,
Lovely to hear of your NZ trip went well! Hope you get your arm sorted, don't post very much as kevs been in and out of hospital since last November with infections and hopefully got it sorted this time. I know what you mean about all the new and young people posting now its scary and shocking (too young!)
Anyway eve and slim…[Read more]
Dizzyliz replied to the topic Raise your hand if you hate dex lol in the forum General 11 years, 10 months ago
Hi all,
Kev takes dex 40mg once a week 8.am doesn't sleep the first night grumpy old man for a couple of days,
But then the crash! And we both dread it, I also think it masks a lot of his infections he's been having as they
Appear about the fourth day off dex! It's good in some ways not in others!!
Dexatude! I think it should be in the…[Read more]
Dizzyliz replied to the topic Bendamustine C1. in the forum Treatment 11 years, 10 months ago
Hello Dai,
Sorry just seen your reply, kev is home so I've been busy settling in at home and he'd probably call it fussing!
I agree with what you are saying and after treating kev with what seemed every antibiotic they had I'm hoping they've
Finally beat it. We are in clinic tomorrow so we've got a long list of questions and to begin his…[Read more]
Dizzyliz replied to the topic Relapsing in the forum General 11 years, 10 months ago
Hi Wendy,
I too hope this is just a blip Wendy and wow! Training for a triathlon you put me to shame, good for you!
Keep well and take care Wendy I'll keep my fingers crossed for you!
Love liz&kev xx
Dizzyliz replied to the topic Bendamustine C1. in the forum Treatment 11 years, 10 months ago
Hello Dai,
Glad to see your treatment is going well with no hospital for three weeks, so happy writing keep warm!
And bug free. Kevs in hospital this week with pneumonia but over the worse now and hopefully home in a couple of days,
It seems to be getting infection after infection but tbh I think it's the original one that's never really…[Read more]
Dizzyliz replied to the topic Yes it has bombed in the forum Treatment 11 years, 10 months ago
Hello Keith,
Early riser this morning so thought I'd pop in and catch up with what's happening, so sorry to hear bendamustine
As not worked for you. Here's hoping that CDT works for you, kevs back in hospital again! Pneumonia which as
Knocked him for six but hopefully turned the corner…[Read more]
Dizzyliz replied to the topic Happy Christmas and a HEALTHY New Year to you all in the forum Off topic 11 years, 11 months ago
Hello everyone,
Have a very happy Xmas and a happy new year!
Love liz&kev xxxx
Dizzyliz replied to the topic In Hospital… Again! in the forum Treatment 11 years, 11 months ago
Hello Dai,
Glad to hear you got home for Christmas hope its a good one for you and Janet.
Hope you and your family have a happy Christmas and healthy new year!
Happy birthday Dai love liz & kev xx
Dizzyliz replied to the topic 10 Months Post Transplant in the forum General 11 years, 11 months ago
What wonderful news Michelle!
Long may it continue, have a fabulous Christmas!
Love liz & kev xx