[DizzylizParticipant]

Hello Helen

Just read your post, congratulating you on getting through your 28 days post sct, I'm a carer for my hubby kev who is now coming up to post 6 months sct and doing well hair grown back straight! ( was curly b4) but as always kept it short.
He has had some niggles but getting stronger everyday and getting back doing his gardening, been fishing all day.
Goes to see the prof: end of the month so hopefully find out he's in remission! So Helen take it one day at a time listen to your body and take plenty of rest and you will get stronger everyday. Take care 🙂

Love liz & kev xx

[DizzylizParticipant]

Hello Bridget
Sorry to hear you are having such a bad time hope the pain subsides quickly!
When kev had radiotherapy after breaking his sternum it was a great help in releaving
The pain, so I hope it works for you and also I know the thought of the hospice worries you
But they are the best when it comes to pain relieve for the individual and putting your mind at rest.
Look after yourself Bridget and hope you soon start feeling better!

Love & hugs liz xx 🙂

[DizzylizParticipant]

Dear min
I am so sorry to hear Peter has passed away I've not been on the forum for a couple of days so to read of your sad news has shocked me! Like everyone else I want to send love and hugs to you and your family.

Thinking of you love liz & kev xx

[DizzylizParticipant]

Hi all,
My names liz and Kevin my hubby was diagnosed with mm august 2010 one year ago
Where's it gone! It's just been so full on with his treatment resulting in sct in April and hopefully
End of sept: will hear the words your in remission!! The best part of 2010 he was being treated
For frozen shoulder, and operated on bone damage to his knee and all the time the mm was getting
Worse it was having tests for anemia that confirmed he had mm and his kidneys were showing signs
Of failing but thankfully caught in time.

P.s. Let's hope we get a good outcome end of September?
Apart from some aches & pains he's doing ok!

Love to everyone xxxx liz.:-)

[DizzylizParticipant]

Dear Sarah ,I am so sorry to hear Gordon as past away, as a carer I can't begin to know what you are going
Through and this forum as bought us carers support and valuable information to help our beloved partners with this cruel
Desease! I can't bring myself to tell kev just yet. I am sending you and your family my love and heartfelt sympathy.

Forever in my thoughts love liz X

[DizzylizParticipant]

Hello Sarah,
Not posted for a while so sorry to hear Gordons not doing to well, but it must a comfort to have him home,
Me and kev send our love and hugs to you both.

Love liz xx

[DizzylizParticipant]

Hi Sarah

Sorry to hear Gordons second sct didn't work! although kevs on his 1st it's always a worry, they are doing great things with all the drugs and I'm a big reader of the forum and take note of all the good things you all write and take comfort from it all, hope it come right keep positive and I'll be thinking of you both on your break!

Enjoy love liz xx8-)

[DizzylizParticipant]

Thank you Sarah it's all very encouraging I've told kev and it lifts his mood a little when I'm reading all the posts and replys,
We just live in hope the next visit to clinic will be your in remission!

Dai, Glad to read you are feeling much better today!

Love liz xx 🙂

[DizzylizParticipant]

Hello Dai

Just been reading today's posts and sorry to hear you've been feeling low, and can't begin to know what it's like
On velcade. Kev's just 3 months post sct and getting lot of bone pain / really bad pn / and tired all the time, he is thinking
Of going back on tramadol to help him get through the night, we were even thinking of emailing our myeloma nurse to see if like you say there are symptoms/ side affects and the best way to deal with, it's all frustrating and I hope you are feeling better quite soon, love reading you're post's Dai keep thinking positive.

Love liz xx

[DizzylizParticipant]

Hi David
Great news! Have a loverly holiday let us know how you get on when you get back! 😎 🙂

Love liz xx

[DizzylizParticipant]

Hello Roz
Just been reading your posts I'm pretty new to this forum (April this year) my hubby Kev was diagnosed August2010 he is now just over 2months SCT had some scary moments and been on the forum for advice and everyone as been great, So sorry to hear of your loss and the idea of the memorial garden is just perfect and hope it brings you closer to your michael I know if it was kev it would me! Look after yourself I'll be thinking about you, as is everyone else.

Take care love liz xx:-)

[DizzylizParticipant]

Hello chrissie, just been reading your post sorry to hear your news but like everybody on this forum find it a great comfort with good advice and a bit of humor aswell, these first few months of treatment are hard and also wondered is it worth what they have to go through, in our case in the beginning I would have said the same as you but now since aug: 2010 kev is finely and slowly getting better he is now 2 months post stem cell transplant and things are looking really good.

Love to you and your family chrissie and hope things get a little better each day!

Love liz xx

[DizzylizParticipant]

Hello min,
Having just read your post thought I'd offer you both my love and support, hope the treatment goes well.
Thinking of you keep positive.

Love liz xx:-)

[DizzylizParticipant]

Hello Nicki,

Just read your post my hubby kev is now in his 7th week post sct, had a few hiccups (didn't seem it at the time)
But after reading how well Sam is doing it's just loverly to hear and gives us the boost we need, hope you have a great holiday! That's what we looking forward to.

Love liz xx

[DizzylizParticipant]

Hello everyone, thank you all for your input, I did ring the hospital and you are all right in that I should not have worried about ringing them and also it does seem to be bone pain from the GCSF which he did have for a couple of weeks after sct
Just up't his painkillers and it seems to be settling down.
Again thank you all what a lovely bunch you are!

Love liz xx

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