Hi Charlie,

It appears Thalidomide has not agreed with my mum either. Just over 1 week into her 1st cycle and she collapsed at home yesterday. Unfortunately she broke her hip in the fall. At hospital her blood pressure has been very low and low oxygen levels in blood, she has pain in her chest and they are now treating her for a suspected…[Read more]

Hi Ali,

Thats's great news for your mum and for all of you! I'm so glad your mum is doing so well after her SCT, it is really encouraging to hear there are great highs to come from such lows. My mum has just started CDT today after her diagnosis in October. Her kidneys have significantly improved therefore she has been allowed thalidomide.…[Read more]

Thanks Jet,

We saw the consultant last week who was surprised mum's dosage of dex had not been reduced by the Dr we saw for the radiotherapy, therefore were told mum's body was addicted to dex and she needed to be weaned off it over 2 weeks. That's all done now and she's handled it really well. Luckily we asked for copies of the letters between…[Read more]

Thank you Eve,

I have been looking at the big pill boxes and suggested getting one to my
Mum, so I'm glad you've recommended getting one. I'm also looking at getting mum a thermometer, having read so much advice in this forum I think it might even been a comment from yourself about an ear thermometer to keep an eye on temperatures for signs…[Read more]

Vicky and Colin,

Best wishes to you both. Hoping all goes well, will be keeping an eye on your updates.

Emma. X

Thanks Vicki and Colin, good luck for next week and the following weeks for Colin's SCT. Hope all goes well, will keep an eye on your updates.

Emma. X

Hi everyone,

Thanks again to you all for sharing your experiences with MM with me. It seemed such a lonely place on Tuesday having heard the word 'Myeloma' for the first time. Your honesty is much appreciated, we know this won't be a walk in the park, but as Tom says it's 'Doable'. I've already prepared my mum for the 'Dexattitude' I have…[Read more]

Thanks Joanne,

I've been reading the forum every night for a week looking for answers to my questions. I felt it was right to join so I can talk to others in the know. Even before I wrote anything I felt like the forum had helped me understand what was going on a bit more and what we are likely to face in the future. It has given me hope…[Read more]

Thank you everyone who has taken time to reply. I've just got back from visiting mum in hospital, she seems to be enjoying the rest and being waited on! There's a sickness bug going round the hospital resulting in wards getting closed, typical just as they say her kidneys are improving, just hoping she doesn't pick it up.

Rachel, thanks for…[Read more]