Hi Jean poor Frank isnt having a good time bless him . I know I had Pregablin and they made me feel very odd and I stopped after a couple of doses too , mind you for the life of me I cant remember why I was on them !! The trouble with shingles is it can take some time to show itself and the pain must be awful I hope others can give you more…[Read more]

Haha sorry me too I should have read your post properly sorry Good luck with the harvest Bridget

Thanks Dai.
I did a big 1st yesterday and went out to the police club to meet my old coleagues.
First time since I left to care for Peter 11 months ago. I felt terrified but got thru it and now waiting for the next hurdle what ever that is. The truth is I now know nothing will ever be as bad or difficult as saying goodbye to Peter.
I have a…[Read more]

Bridget I love this series and have been too busy of late to see the past few weeks, but they are saved on Sky,
Cant wait for the weekend when the family go home and I get to catch up on Eastenders too.
Min xx

Ah Mavis,
Peter often used the expression cant take it with you and contstantly made sure there was nothing left to take LOL
HIs attitude was Whats the point of working for it if you cant enjoy it its not there look at it on the bank statements
I was never of the same opinion and was constantly saving for the rainy day.
These days I think…[Read more]

Dear Sue thank you for thinking of me when you and Michael have so much on your plate too. I know how Michael feels about not knowing being the worst it is making me nervous too Today is the third day my dex pulse 40 mg a day for 4 days to try and stop the tumour from getting any bigger and crushing the spinal nerves Trouble is dex is just awful…[Read more]

Hi Liz thankyou I feel very lucky to have the support from you and all my cyber friends on here its what makes this site so special Take care and hope you have a good weekend love Bridget x

Dear Mavis thankyou for your kind words you always put things so well from the heart. I am lucky in being mobile still but that causes the medics to panic as I dont react the way they expect me to!! When I was diagnosed they couldnt work out how I was able to walk when 3 vertebrae had been destroyed and this time they are really anxious as the…[Read more]

Hi Terry good luck for Monday it wont be a walk in the park butit doesnt last for ever and to be drug free and have a long remission makes it worthwhile. I agree with David a laptop and phone are essential to stop boredom and you wont feel so isolated Perhaps you could ask if you can take your own pillow in hospital pillows are horrible npoisy…[Read more]

Dear Sue I can only imagine how tough the last few months have been for you both , it really seems so bloody unfair after all you have been through . I hope that radiotherapy does the trick , as you say its been caught early and from what I have read the success rate is pretty high. I can understand how poerless you must feel when there is no…[Read more]

Dear Tina Wish you lived nearer you are just the sort of person I could do with being around at the moment, my daughters are in bits, so its mum who is supporting them at the moment. Not all bad news had an operation last week they told me that it was early stages and hopefully have caught it before it has spread, this being the case I wont need…[Read more]

Dear Bridget Iwas so sorry when I read your post, ive been thinking of you alot recently. I suppose you are in limbo at the moment like Michael, Its not knowing whats next that gets to Michael he seems to cope with the rest.
God Bless
Suexx

Hi Kerry no wonder you are scaredits so bewildering and frightening at first but it will get better The plasmacytoma can be treated with steroids initially to reduce it and then radiotherapy is amazing at getting rid of tumours , I dont know if thats appropriate for your partner but I am sure his doctors will be looking at the best and quickest…[Read more]

Hello Tina So sorry i havent replied before but ive not been on the site for a couple of months. Not had a very good few months Michael came off the clinical trail back in November, hes not been very well since Christmas
had a couple of transfusions,his PPs have started to raise, but there is no offer of any more trials at the moment. He lost…[Read more]

Evening all I have now ordered the laptop from PC World who say I am saving £220 , well dont believe that but I am saving a £100 so very chuffed !! And it will arrive on Thursday yippee !What a difference a day makes love Bridget x

Hi Roberta lovely to hear from you and thankyou for your kind words. Sorry you have been unwell I hopethings start to get better for you very soonStay in touch when you are up to it love Bridget x

Hi Dai sorry I havent got round to answering you yet Revlimid , Velcade and Bendamustine failed to make any impact over periods of more than 3 months Each time a new tumour developed the latest is not the most painfulbut seems to have become very large in a short space of time so a bit scary especially the risk of paralysis I will certainly enjoy…[Read more]

Hi Dai it is such a nuisance when you cant get the results when you need them! Like you I used to be very responsive to blood tests until after my first relapse , since then I have become a non-secretor This is likely to excludeme from some trials as they will be unable to measure performance It is so frustrating so I know how you feel although…[Read more]

Hi Jean I got a bad fit of the giggles reading your post I could just picture it!! The other thing that struck me is how innocent people were in the fifties, so different from now Roll on Sunday evening ! love Bridget x