Hi James sorry sct is stem cell transplant too lazy to write the whole thing!! I chose not to have maintenance – Thalidomide, because I felt I needed a break from all the drugs I was diagnosed in August 06, before I could have any chemo I had to have surgical reconstruction on my spine as 3 vertebrae had been destroyed before Iwas diagnosed By…[Read more]

Hi Min safe journey put your foot down so that you beat the snow!! Apparently this evening it will creep into this part of the world and carry on all night Brrrr! love Bridget x

Hi James welcome to the ste I am sure you will get lots of replies Sorry I cant help much with the maintenance issue as I chose not to have any after my sct 4 years ago . Bridget

Hi Jet so sorry to hear you didnt get any time from your sct Hang in there good luck with the allo love Bridget

About to get in the car and head off south to Daughters Hope I dont hit the snow on the way . My plan is to get there before it

Min

Hi Eve I was on Velcade a couple of years ago whilst on the Myeloma X Trial The first treatment of each cycle took the longest , questionaires etc then blood test and a wait of about an hour and a half or two hours for drugs to be made up From the second treatment onwards they used the previous blood results to make the infusion although there…[Read more]

Dear Roisin I am so sad to hear your father-in-law has died My condolences to you and yoyr family love Bridget x

ok Chrissie
check your junk mail box have sent u a message
Min

Chrissie
I did not eat for three weeks and sleeping was not on the menu for me either.
But now I am back to normal eating habits and putting back the weight I lost. Sleep is hit and miss but I normally take my tablet to bed ( computer tablet that is not a sleeping tablet) and lie there till I drop off fortunately it turns itself off when not…[Read more]

Hi Eve
When Peter was on velcade, his first few infusions were long days waiting mostly for the pharmacy to produce the product.
But as time wore on it got quicker and quicker, we found making an afternoon appointment meant that he did not have to spend a whole day there.
As time wore he he changed the times of his appointment to later in…[Read more]

Dear Chrissie
I understand entirely how you feel. 53years is a lifetime, and cannot be forgotten, or pushed to the back of your mind. Peter and i were married for 40years and its the strangest thing not having him here or knowing he is never coming home.
Some days I am fine and others without rhyme or reason I am down. Almost every day I am…[Read more]

Its very cold Bridget, and the chill in the air is cutting. The frozen north is still that,but no snow yet.we had a few mornings with frost and I dug my ski suit out to keep me warm while walking the dogs but not needed to use it yet.
I'm off to visit the grandchildren at weekend. Taking all the dogs for a change. Perhaps it will be warmer near…[Read more]

Hi Tom thanks I am checking out web sites and local shops too but I am still a bit nervous about buying a second hand one Maybe I will just have to save very hard, trouble is I am not a very patient person and I hate being without a computer !! Tell Elaine I am so impressed with her DIY skills , she puts me to shame Hope you are having a good…[Read more]

Hi Sarah I am very impressed by Henrys stem cell production!! I am one of the people who struggled to produce the minimum needed too Good luck with the next step please keep in touch love Bridget

Hi Cinzia and welcome to our group you will find lots of support here but what a shame you couldnt find anything closerto home . You had such a long hard haul to get a diagnosis it must have been a relief to find out the cause, and a huge shock at the same time Good to hear the CDT is getting good results , just dont overdo things as it does takes…[Read more]

Peter would be proud of me, I have been going mad with the cordless drill.
Fixed a curtain pole that kept falling down. ( Never had curtains when I had my man!) Next put up some metal tie backs to hold said curtains back when open.
Followed by a make up mirror really its a shaving mirror but as I am blind as a bat without my spectacles needed a…[Read more]

Hi Min thankyou for those ideas, I knew there would be someone with good ideas! I have a secret vice though ( I play the Sims on my laptop) which means fairly poerful laptop , mind you perhaps I could look for a support group to cure my Sims addiction , it would be much cheaper!! I got a local firm I trust to make sure my laptop was beyond repair…[Read more]

Cant comment on that but I I bought a 'tablet' recently if all you do is surf the net they are brilliant. But if you plan to do work on it then not much use with word etc.

Look at http://www.ebuyer.co.uk I have bought loads of stuff of them and they are really really well priced with good customer service.
Alternativly suggest you look up FACEBOOK…[Read more]

Bludy Brilliant,
Worth all the agrivation to hear those words, and in view of the fact the dex is doing the 'trick' best stick with what you know:-D .
Just put a gag on Steven so he cant be Monster Man:-S
Seriously though, I am really pleased for you both you deserve a lucky break and its your turn.
Love Minx
PS I recall Peter trying to…[Read more]