Hi Gill what wonderful news after all the stress you have had recently Guess you will be off to France soon? Go and have fun, relax and enjoy life, put mm to the back of your minds Love to you and Stephen Bridget x

Hi Christine and welcome I am sure you will find this site as invaluable as I do. Sorry I cant be much help re collapsed vertebrae though. In my case I had 3 vertebrae completely dstroyed before being diagnosed, the doctors used to shake their heads in amazement because I was walking around , mind you the year of absolute agony was no fun Before I…[Read more]

Hi Wendy sorry I cant help with the itchy eyes Its great to hear you got a good result and are feeling well Heres to a very long remission!! Stay well love Bridget x

Hi Dai what a bugger!! It is so frustrating when you are relying on results like that and have no control over it!! I hope you can get a result next time and get on that trial. It sounds like your consultant is on the ball and I am sure she will come up with another plan if needed Love to you and Janet Bridget x

Hi Carol good to hear from you and even better to hear you are doing well . I was only on Revlimid for a short while and the fatigue was the worst side effect for me Have a good time in the sun that will recharge your batteries love Bridget x

Hi Ray welcome from me too . As Min has said there are lots of people on here who have had a transplant so you are in the right place to find answers to any queries you may have It isnt a picnic , although some get through it relatively easily but it is well worth doing! Hopefully you will sail through and have a very long remission afterwards Do…[Read more]

Ah Ray welcome
I think you mean autalgouse cant spell it but it means a transplant of your own harvested stem cells.
Dont worry there are lots of people on here who have been down the route your about to commence and hopefully they will offer you lots of advise should you need it, or just an ear when you feel you have had it all
Up to here…[Read more]

Good Luck with the new puppy Sarah, I dont envy you the running to the door every now and then but as its so much colder here in the frozen north I would want to wait till summer time when the door is permanently open !
The smell of new puppies is oohh so nice but the cleaning is ugh. My last one we had a cat flap on the back door and she used…[Read more]

Hi Helen
Our last holiday we used a company called insurancewith http://www.insurancewith.com/ they specialise with people with existing conditions and cover all cancers. Katherine refered to Revlamid as maintenanace therapy as oposed to chemotherapy and bearing in mind Peter had kidney damage and bone damage not to mention a double heart…[Read more]

Hi Jo welcome glad you have joined us . It sounds as if your partner is coping well and I am sure your support makes that possible. We all need an outlet though and there are so many lovely people on here to offer you support Good luck and keep posting Bridget

Hi sorry you have been feeling rotten hope it doesnt last long. Have you asked for sedation when you have your bone marrow biopsy? I would definitely advise sedation no point putting up with pain when there is a choice Good luck Bridget

Hi sarah,
I have had a whole day of weeping today and I blame the news. Yesterday evening they said it was Blue Monday
I thought what a load of tosh.
Today slept well woke up had breakfast went back to bed, slept for 2 hours and woke up disconsolate Havent stopped since and my nose wont stop running to accompany the tears. So thats another…[Read more]

Hi Val
My husband was taking quinine too but if he did not drink sufficient liquids the cramps in his legs won.
I found myself with cramps recently and once I drank more liquid it helped. Also I am told that leg warmers help. Weight lifters suffer cramps apparently and leg warmers increase the blood flow; or something like that!
Hope it helps
Min

Dear Dear Gill,
Its so hard being a carer and knowing that the time you have with you loved one is under the clock so to speak. I know exactly where you are coming from.
Peter was on prednisalone steroids for quite a long time before Dreaded Dex. the problems he had with prednisalone were more bone damage due to taking oral bone strength…[Read more]

Dear Gill what reason do they give for keeping Stephen on Dex? I know it helps a lot with pain relief but there are other drugs that would work too. I am now on Prednisalone which is as effective as Dex but much kinder I havent felt like tearing lumps of anyone since I have been n it . I would have a word with the specialist nurse and explain how…[Read more]

Dear Chrissie I am so sorry David lost the fight against this wretched illness , he fought hard with you by his side Dont have regrets savour the lovely memories you have David will always be with love Bridget x

Hi Clara its good to hear from you and brilliant to hear your dad got such a good result after his treatment. Now you can all get back some normality in your lives and relax , after all the stress of last year you certainly deserve some fun.Happy new year to your dad and all your family love Bridget x

Hi Eve not sure what your question is , Gary has qa sister who has just been diagnosed with mm. love Bridget x

Dear Chrissie
My deepest condolences to you and your family.

I can only imagine what you are feeling but it may help to know that, when Peter died I was so relieved he was no longer in pain, no longer worrying what was going to work and wasnt. I no longer had to watch the handsome well built man I loved wallowing in what the damn disease…[Read more]