Hi Mandy
Tell your friend to put them in a carton of yogurt or similar desert. she wont feel them going down.

LYRICAL. As in songs? now really liking pop songs for some reason. I can recommend to cheer you up
Min
CAL for you

dear Dai,
So sorry to hear your news what a bug***.
I am sure by now you have both got over the blow you were dealt, but as always pick yourself up dust yourself off and head off for the next adventure.
the MM journey for some is so unfair, and the hope that the next new drug will work is amazing in the way it makes us bounce back ready for the…[Read more]

Hi Nicola good to hear your dad is home again and having a break from treatment Sometimes a short break is just the thing to get your strength back ready to fight the next round . I laughed out loud at your dads name for myeloma so tell him thanks from me for making my day ! Enjoy the time doing ordinary things together, the eating sounds good,…[Read more]

Oh Dai it really does seem unfair that your hard won remission was so short! It sounds as if your excellent doctors are really on the ball thoughwhich helps to take the sting out of it a bit though . I will cross everything for you to get the Carfilmozib on the trial Hang in there Dai your strength and wonderfully positive nature will get you…[Read more]

Thankyou all for your replies and kind words I really dont know what I would do without all my lovely cyber friends lots of love Bridget xx

Hi Helen and welcome I am glad you felt able to post on here to get some support , there are so many lovely people on here who may be able to help. Sorry I am not aware of links between myeloma and prostrate cancer though. Your fiance has certainly been through the mill and I am sure the future must seem very bleak at the moment but hopefully he…[Read more]

Hi Nicola it must be a reief for you that your dad has managed to go to the loo Hopefully as the build up clears his depression will ease Its hard to imagine how awful constipation can make you feel , my bowels stopped working for several weeks before I was diagnosed although I was lucky not to have a painful blockage With you by his side I am…[Read more]

Hi David how right you are when you say it puts things in perspective people are just amazing in giving to others when no-one would blame them for concentrating on themselves. A huge loss not only to her family but to so many others love Bridget x

Hi May I am glad you got up courage to post I am sure you will find it easier to cope with support on here. As I am sure you have realised myeloma is a very individual illness and we all react differently to the treatments so its hard to compare one person with another . Try not to get too down that the treatments your mum has had so far havent…[Read more]

Hi Dai
Should add that our Dr at the behest of the Macmillan nurse issued a form for Peter which was normaly given to patients who have only 6 months to live. Cant remember its name but in essence it provided a short cut to benefits without filling in too much paperwork.
I was upset about this as I worried that as he started to get better they…[Read more]

Great news Eve you must both be on cloud nine!! Poor Slim has been through so much it must such a relief Get travelling and enjoy all the things you have been dreaming of love Bridget x

I?m really pleased for you both, enjoy the rest of your life
Min

Hi Nicola so sorry your dad is having such an awful time, it must be so hard for you Its little wonder he is feeling down after having been through so much so try not to take it too much to heart when he talks of dying The doctors wouldnt put him through chemo if they didnt think he had a fighting chance. Did he have radiotherapy recently? That…[Read more]

Hi Min and Stuart it is reassuring to know there are people to help at our hospitals Those forms are such a nightmare I break out in a sweat even though my job entailed helping others fill out benefit forms , just cant do my own On the radio today there was a discussion on the proposed reforms to disability benefits , made me so angry there was…[Read more]

Good MOrning Bridget and Happy and better New Year for you all. Including me!

Will you still speak you when you are famous? Brilliant idea to take part and good on you.

I recall when Peter was first diagnosed with mm that the ?cancer ? social worker was in Peters room chatting to him about what he could claim. and when I interrupted them to…[Read more]

Hi Kay so sorry to hear your sct results are disappointing , I dont have any personal experience that would help but I am sending all the positive vibes I can your way Are you on Zometa or Parmidronate? One of these may help your bone pain which a lot of us have and those pains may not mean anything more sinister is happening just a rather…[Read more]

Hi Heather welcome to our merry band ! Good to hear your treatment has gone well so far and I remember that lost feeling after my sct 4 years ago It does get better though but remember you have been through a huge physical trauma as well as having to cope with the news you have myeloma. I was diagnosed 5 years ago after a year of agonising back…[Read more]