Hi Eve
Briliant news and especialy at this time of year. At Tom would say Onwards and Upwards. sounds like the finish line is in sight and do hope all your and Slims dreams come true for Christmas.
Im off out for dinner with son before he leaves again so time for a few tipples it would be rude not to especial when Im not driving!
Love Min

Dear Min thinking of you today on Peters birthday love Bridget xxx

Hi Eve lovely to get good news however small Enjoy love Bridget x

Hi Bridget Your post is not boring at all,a bit long (only joking) Michael seems to be in the same boat as yourself, he has also had none stop treatment for the last 4 years and he has been on Thalidomide several times, so it could be over use. Hes back tomorrow to see if he can have his Bendamustine, will let you know how he goes on.

Take…[Read more]

Hi Sue I am glad Michael is feeling a bit better since stopping Thalidomide. I think because it is a drug which has been ferquently used and I hadnt heard many negatives other than PN I underestimated its strength. It totally knocks me out but this may be partly due to the myeloma being active as well The other aspect for me is I have had about 4…[Read more]

Hi Sarah
it sounds like you timed out!!! go into your post and edit it and add what you lost then you can take your time How are you? Im feeling down today, peters birthday tommorow so sad.
Love Min

Hi Jenny,
I know where you are coming from, having been where you are in the past.
My husband was being treated by a so called kidney specialist who saw him every week took blood tests every week and and some point, when He told he her he had a dreadful pain in his back that co-incided with with a very elevated calcium reading in his blood test,…[Read more]

Hi Eve how awful for you both to have the added trauma after your mother-in-laws death.No wonder you have doubts Luckily mum arranged her funeral through Age Concern and was able to check it all out before signing up She always says its the best bargain of her life and sometimes amuses herself working out the cost of funerals now as opposed to 20…[Read more]

Hi Min what a lovely generous lady your friend was to think of sparing her husband , no wonder the church was packed. Min you should be proud of yourself for using power tools I am definitely a wimp when it comes to jobs like that! Much to Jeffs despair I am more likely to use a hammer! I am with you on the cardboard coffin though , cant really…[Read more]

Hi Mavis I do hope the snow stays away so that you can get to your grandchildren for christmas There is nothing like the seeing childrens faces on christmas morning, I bet they are just as excited as you are! All fingers and toes crossed for you In my house my husband and grandson are the tree decorators they do a much better job than I could Not…[Read more]

Hi Bridget,
A very dear friend and colleague of mine was dying of breast cancer and secondary brain tumour and she told me a few months before she died that she worried about how her husband was going to cope with organising her funeral.
I suggested that she should take the worry away by arranging it herself and she thought it was such a good…[Read more]

Hi Min Peters service sounds lovely a true celebration of his life . I think its such a shame we dont have our loved ones at home before a funeral it is so much more personal Its no wonder we find death and grieving so hard when everything is taken out of our hands and out of sight You mentioned the grandchildren were ok with seeing Peter too ,…[Read more]

Hi Tom Happy birthday to all of them

Suex

Hi Bridget and Tina, Michael hasnt had any treatment for a month his plateletts are still to low, we go back this Friday, we asked why they were still going down when he hasnt had any treatment apart from dex, she says it is such a powerful drug it stays in the system for weeks.

Regarding the Thalidomide Michael has felt much better since he…[Read more]

Hi David
Im pleased the service went well. That final goodbye is such a whirlwind I cannot remember much of Peters funeral but I do have a full copy of the humanist service we had.
In my case I chose a humanist who purely by co-incidence happened to be an ex chief Inspector in my police force.
He spent almost 4 hours with us asking a million…[Read more]

Hi Eve I agree planning your funeral is a good idea and makes it much more meaningful My mum has had hers planned and paid for for over 20 years now ! Age Concern ran a scheme where people over a certain age (cant remember what the age limit was) could pay a fixed price in installments, they also sent lots of helpful literature regarding…[Read more]

Good Morning Mavis thank you for your kind words It is a nuisance having to write off a whole day following the Bendamustine but I am going to discuss it at clinic and see if there is a solution No my hair is still here it would be very chilly without it! The extra pain which turned out to be a tumour showed despite low pp levels that myeloma was…[Read more]

Hi Dai beautiful words its a shame I have no sound on my laptop I would love to hear the song love Bridget x

Hi Tina yes I think it is Thalidomide thats turned me into a zombie! In the mornings I have wonky vision and frequent catnaps of less than five minutes drives me nuts Todaay and last night were write offs I felt dreadful within 2 hours of Bendamustine and just had to sleep through it , the headache is unbearable , its now about midnight and I am…[Read more]