Hi Stuart Ihave noticed this is happening to me , I have posted a few things over the weekien and they have vanished. When I have posted it gives the option for anyone to edit or delete can you helpat all

Sue

Hi Gill Pleased to hear Stephen has started treatment, Michael was on Revlimid and Dex, he had brilliant response to Revlimid with little or no side effets (total remission) the only down side to Revlimid is that while it is working you stay on it. As for the dex Michael has always had a really bad time with it, but they reduced it and hes not…[Read more]

I have no knowledge of these three, Peter was on Dex and Revlamind and he did ok but he was extremely tired and had terrible trots with it.
But as you know by now everyone responds differently depending on what kind of MM they have.
i sincerely hope that Stephen responds well to his new programme of drugs and there are not too many side…[Read more]

Hi Dai thanks for the tip working from the outside in sounds a good idea I will try that If Susannah or Tina reads this perhaps you can help me with some info I have developed an angry red rash on my feet and lower legs , ending just below the knees. Did Patrick ever have this ? Has Michael had anything similiar Susannah? How is Michael? I am…[Read more]

Short and sweet in a NUTSHELL —- ELL next love Bridget x

Hi everyone,
Well I am home the holiday is just a memory a very pleasant one as it happens I am totally rejuvenated as I slept for sometimes 10hrs a night AND 2 hrs by the pool which is an indication of how tired I was after 2and a bit years of caring for Peter
Most of that time I was working too, until March when I left work to spend some…[Read more]

Just bumping this up for newcomers who may not be aware of the under 50s site Bridget

Hi Eve Its so good to hear good news!

Love to you both
Sue x

Dear Bridget, chearfull as ever, I am so pleased your experience with bendamustine is proving to be working and that your coping with the side effects.
Its pioneers like yourself that are going to lead the way for the future of others with this bl***y disease,
I hope that you continue to make progress in the right direction, and that your able…[Read more]

Hi Mavis sorry to hear you are feeling a bit down , I think its inevitable we all do from time to time . Hopefully the visit from your daughter and grandchildren tomorrow will put the sunshine back in the world. I treasure my time with my grandchildren especially George who is the eldest ( I so we are very close.was there when he was born) , he…[Read more]

Hi Penny welcome your wonderfully positive attitude to mm will get you through it !! Being young and fit will also be a big help Just be careful to rest when your body demands it as treatment takes it out of you But I have no doubt you will be running, cycling and mountain walking again before very long Good luck and if you need support there…[Read more]

Nintendo NDS woud be mine but better no, so Weekends which we all love except when you need to see a Dr !
NDS it is again
Min

So glad to hear your on the mend Dai, cant go into the winter with a chest infection, now look after yourself and get the wooly scarves out ready for the frost and cold so you ward off any future chills.
Best wishes to you both
Min

Hi Eve and Slim,
I can just imagine the relief you both must of felt and big deep breaths and sigh's of joy all round.
Woud I be right in assuming that these results are some months old or are they the latest results? Iether way its very good and heartening news that velcade is doing its thing for him. I hope you can enjoy the rest of the…[Read more]

Hi Belles it must be awful seeing your mum suffer but at least you know its par for the course Hopefully it wont last long and then she will start to feel better Hang in there it will be worth it in the end when she gets a very long remission and you can both get back to normal life love to you both Bridget x

Hi Eve great news it was a long wait but bet it feels worth it now!! Hope you and Slim have got your mojo back today and go and celebrate and RELAX a bit love Bridget x

Hi Bridget

So pleased you are not having to many side effects from the Bendamustine, since Michael came off Thalidomide he hasnt felt quite as tired. Hes having more problems with the Bendamustine, hospital today no treatment hes nutropenic and his platelets are very low, so back again next Friday (hes having GCSF injections again)Hopefully…[Read more]

theres only one word to I can think of and that is Happy to be home again, with my three pooches and 2 Burmans.
The managerie has all misssed me and are equally HAPPY to be home too.
PPY for next player
Min

If you did swallow a dictionary you might need AROMATHERAPY to help with indigestion!! Leaving APY love Bridget x