Hi Peggy wow you had a lucky escape! It just shows we cant afford to ignore our symptoms for too long , which I am guilty of ! Hopefully you will never have to be in that position again though so take care and look after yourself love Bridget x

Hi Christine its good to hear from you and great to hear Velcade is doing a good job getting your dads pps down . I remember being very frustrated when on Velcade because I felt so awful for the first part of my week off and others have said the same As its worked so well has anyone suggested a lowerd dose? It might be possible to lower the dose…[Read more]

Hi Mal and Bruce I hope Bruce isnt feeling too awful Happy anniversary , sorry its late didnt see your post . I am sure you will be able to celebrate in style once all this is behind you and life can be fun again love to you both Bridget x

Hi Deedee and welcome now that you have found this site and all the lovely people on here you need never feel you are alone in living with myeloma At first its so hard to come to terms with myeloma and everything it means , let alone all the medical terms and treatments but in a short while it will all start to make sense Just take it a day at a…[Read more]

Hi Caz and welcometo club none of us wanted to join. I was diagnosed 5 years ago and I have had the full range of treatment so far! On being diagnosed I had to have spinal reconstruction as 3 vertebrae were destroyed This was followed by CDT and SCT , which gave me 18 months partial remissionWhen I relapsed with a new tumour on my spine I went on…[Read more]

I have to say Debs you look fab with your bald head, cant remember the picture that preceeded this new one but hope you feel as well as you look
love
Min

Dear DeeDee
You have arrived at the right place for help, welcome to our merry band all of whom would rather not be here, but we help each other with advise or just by lending an ear when you feel down.
Dont despair, the illness and the medication will make him feel rotton, but once he responds to the medication and they get his problems under…[Read more]

Thank you David what a touching video Some people are truly special whatever life has dealt them Eve I have worked in special needs schools and they are wonderfully joyous places wher it does your soul good to spend time with the children love Bridget x

Dear Min its lovely to hear you feeling a bit more like yourself Have a wonderful holiday with Tony and his family , the endless sunshine and shopping doesnt sound too bad either ! It is so hard for children to understand how someone they love is gonebut your grandson will find a way to come to terms with it and having you there will help him a…[Read more]

Hi Eve like you life has taught me things always get better in the end too ! I have always told my children to smile when they are feeling down It may start off being a false smile but just keep on and people around you smile too , eventually there is nothing false about it Hope you and Slim are having a good weekend love Bridget x

Hi Gina thank you so much for keeping us up to date on how mums keeping , she has been in my thoughts a lot lately and its good to hear she is back on treatment . I think getting out and about is a great idea for lifting your mums spirits , I know when the longer I am stuck indoors when poorly the worse I feel . Hopefully there are still a few…[Read more]

Hi Mal and Bruce good to hear things are going well Bruce hopefully it wont be long before you are home again You both hve such a positive outlook on things I am sure it will help you get through the rough bits . Mal I hope you try and get some rest too its often much harder watching someone you love going through tough times and even just…[Read more]

I got no problems at all!
Min

Tina I envy you, I cant dive but used to love snorkelling in the Maldives our favourite haunt before peter took ill. We did Egypt a few time too and loved that nearly as much.
Like you I am a little apprehensive but have to 'dip my toe in the water" some time and really do need a break. It being Dubai and Tony working there is a bonus he is…[Read more]

Hi Sue good to hear your day wasnt too bad even if it was tiring( it always is!) Interesting news about the new trials I will keep my eyes and ears open too Incidentally my consultant feels that not being able to measure paraproteins should not prevent us from taking part in trialsas I had been told before , they can only measure any activity…[Read more]

Hi Eve and Helen A year on probably the longest year you have ever known,
your lives changed for ever, but hopefully things will get better for you both Dont feel selfish Eve Ive been married to Michael for 30years and hes had MM for 15 of them, how lucky he has been people say, thats not what I say,its robbed Michael of his life, well both of…[Read more]

Hi Another long day at the hospital,but not such a bad one. All Michaels bloods were very good so they went ahead with a lower dose Bendamustine and lower dose Thalidomide. We also had a long chat with the trial team,there are couple of trails on at the moment one is Pomalidomide, derivative from Revlimid, the other one a derivative from…[Read more]

Hi Craig
I looked after my husband and carried on working at the beginning of his diagnosis and I know how hard work it is even when your employer is trying to help you hospital appointments and the odd day when I didnt want to leave him as he was so ill make it ver exhausting for YOU.
I applied succesfully eventualy for a disability living…[Read more]

Hi Min and Mavis thankyou both .To be honest I am quite relieved I dont have to wait any longer to begin treatment , the doctor I saw today said he was just going to go ahead rather than waiting for funding approval , good man ! Iwill have to be very vigilant about getting myself to the hospital if I get an infection sooner rather than later ,…[Read more]