Hi Gill Im sorry to hear of your bad news but i think your oncologist is out of order. How does he know if Revlimid will work or not, Velcade didnt work for Michael (hubby) and we had to fight for Revlimid as it wasnt availiable in our area at the time, but it was never mentioned that it wouldnt work, infact Michael was on it for 18months and had…[Read more]

Its under General with the title Free light chains increase after sct
Sharpy can be found under her name and its her last post I believe spelt it wrong above sorry
Min

Dear Mari
Please read Sharpie 's last post it makes lots of sense her explanation of pp going up as told to her.
It may help to calm your fears. I know all too well how easy it is to get on the panic step. When you have more information you will feel much calmer. I hope
Love
Min

I know how it is Sarah,
I came home from my daughters on Monday to an empty house. No one to tell of my week away.
Been trying to put a new blind up in the kitchen and its taken me all day.
Peter was so handy about the house, and you cant find a workman for love or money just to put a blind up.
Just had a big bubble and weep first one since…[Read more]

Dear Gill,
there is a BBC programme Rip Of Britain with angela rippon gloria honeyford and they are worth a try.
then there is BBC watchdog programme they love this kind of thing.
In the meanwhile does Stephen get Disability living allowance? if not he should as well as the Motability side of it.
peter got all of it and his Macmillan nurse…[Read more]

Dear Mari I am so sorry to hear Steves pp have risen But as Gill said hang in there they may yet go back down It sounds as if your doctor is quite laid back about it too Mari you are so good at supporting others on here please dont ever feel you are a burden , it couldnt be further from the truth and we are all here for you and Steve whenever you…[Read more]

Hi Gill I cannot believe the arrogance of these banks!! No wonder you are spitting feathers how dare they treat you like that after years of being loyal customers! If I remember rightly HSBC are runnning a tv ad campaign based on meeting local needs Perhaps you could start with your local paer and radio station stressing the local angle They may…[Read more]

Keith Peter used to get what they called 'cover' when having transfusions to stop an alergic reaction. Just an anti histamine IV. Might be worth asking about.
Min

I know where your coming from Roz, being alone with no one to chat to or make a cup of tea etc is very different to how I imagined.
Not sure if i can get used to this quiet life who do I moan to when theres rubbish on the TV! Who is going to make sure I come home safe when I take the dogs out. Its very hard.
It will take some getting used to.
Min

Absolutly Brilliant new Dai… get on and enjoy your life.
Min

WOOHOO BRILLIANT NEWS!! Dai its wonderful to hear you have been given freedom from the beast I really hope its for a very long time. Now you can both have fun and live life to the max again Thank goodness you made the journey from Wales and away from that awful doctor , when you did. I was so upset when I read your first post on here, its a…[Read more]

Hi Debs if ever a rant was needed that one was ! How infuriating for you and why dont they listen to us the people who are on the sharp end of their service . I had problems after seeing a pain consultant , between him and my gp it took weeks to get my morphine and pregablin sorted out Actually I dont take the pregablin anymore it made me very…[Read more]

Hi Ettas hubby I hope she is feeling better by now . I agree its good to let someone look after you now and again but sometimes its hard to let them do it A lot of doctors dont agree with staging now we have so many new drugs and treatments its not as relevant as it used to be so try not to worry love Bridget

Good morning Min thank you so much for starting my day with a giggle The image of you emptying the water out of your wellies like that is priceless , I bet the dogs thought you had lost it Watch out though as I bet Daisy will be bursting to tell the world how her nan wet herself!! Tee-hee Shame about the racy sportscar , dont suppose it would be…[Read more]

Hi Dai what rotten luck to pick up an infectionnits so maddening isnt it ! Heres hoping the anti -biotics do the trick sooner rather than later so you can get on with your next velcade. LAots of love Dai feel better soon Bridget x

Hi Etta welcome No wonder you are in a spin , at first it all seems so hard to take in but it will get easier in a short time as you get used to the routines of taking all those meds You have already been given good advice as to anti-sickness tablets and I agree that Zometa can affect you but it tends to be temporary The main thing is to let the…[Read more]

Yes Bridget I do feel a lot better but not sure it will continue when I get back to being n my own. But I plan to do lots of test drives. Unfortunatly my new car has to be capable of totoing 3 labradors so no racy sportscars for me. My old dog has been with me this week and had some extra attention during which I noticed that he is going deaf, and…[Read more]

Hi Terry crikey you have certainly been through the mill in the last few years yet you sound so positive and upbeat which I am sure has a lot to do with keeping well I was diagnosed 5 years ago after a year of agonising back pain which meant 3 vertebrae were eaten up Amazingly I did not have any problems walking much to my doctors astonishment…[Read more]

Hi Tom thanks your good wishes keep me going . Funny you like the heat now I am still not happy in very hot weather and have to stay in the shade But heres to many more sunny days to cheer us up love Bridget x

Hi Min lovely to hear from you and it sounds as if your visit to your daughter has helped restore your spirits Yes I will be starting Bendamustine as soon as each member of the team has agreed to it . I am not eligible for a trial as my pps are immeasurable Fingers crossed it will put the beast back in its box for a while longer !! Have a safe…[Read more]