Hi Jet great to hear you have had the magic word remission too , thankyou for sharing with us its always good to hear news like that Now you can put myeloma on a back burner hopefully for a very long time ,and go and enjoy life love Bridget

Hi Liz and Kev thankyou so much for sharing your wonderful news!! Having been through the mill it must feel great to hear the magic words ! Heres to a very long time before you need any treatment Now go and have some fun love Bridget x

Hi Pete welcome to our lovely band of people Great news about your remission fantastic length of time. I agree a positive attitude helps a lot and having the support of people who understand too , so you have definitely come to the right place Best wishes to you and your wife Bridget

Dear Jo happy anniversary! What a wonderful thing to celebrate 46 years is awesome. I do hope you are going to do something really special tomorrow , have a lovely time Bridgetx

Hi eveyone heres my word KNOWLEDGE leaving —-DGE love Bridget x

Hi Susannah I do hope the lower dose is better for Michael , all fingers and toes crossed ! I wasnt eligible for a Bendamustine trial as I am a non-secretor and the only way to monitor my mm now is mri and bone marrow biopsies The hospital does have a system though where if all the team agree then treatment can go ahead At the moment I am waiting…[Read more]

Time to get back to the subject matter of I love…… you all.

Hi Bridget You too have been through the mill,(just catching up) Revlimid was good for Michael I think why this treatment has hit him hard because he felt so well on it. We had a long chat with his consultant yesterday, she blames the very high dose Bendamustine for Michaels problems, shes hoping now thing s will settle down now its been reduced…[Read more]

Hi Gina what wonderful news! It may have been a bit of a mixed bag but its a very good start to get those numbers down!!Hopefully mum will feel better soon , I agree with Dai the drugs we take are often what make us feel lousy but as your mums system gets used to them it should get better. I hope you can all relax a bit now and go and have some…[Read more]

My Dear Friend Min after Dais lovely message to you there is very little to add. Please know that although Peter was the mmer you were and are the person who made so many friends on here.It feels wrong to pressure you to stay , if I were in your shoes I am not sure what I would want,but Min you would be missed by so many people! I can only imagine…[Read more]

Hi Tina thankyou thats reassuring to know after Revlimid Although to be fair the side-effects with Revlimid werent terrible just a real pain when combined with Dex . Watch this space ! love Bridgetx

Hi Nadine and welcome ,sorry I seem to have missed your original post. It sounds as if you and your mum are coping well with getting to grips with this myeloma lark. It struck me when you said you are being strong for your mum that perhaps she is doing exactly the same to protect you and this could be making it difficult to talk But try not to…[Read more]

Hi Jean I wondered what happened to that post!! I was writing about how exhausted the radiotherapy has made me feel and then I dont know what happened!! But I can honestly say I have never felt so tired in my lifeLast year they told me tiredness could be a side-effect of the RT but I didnt feel any different It may be because I still have these…[Read more]

Hi Mary and Theresa how lovely to hear from you. I am glad your holiday felt right and it must have been such a comfort for your mum that you were with her Both your parents must be very proud to have such lovely caring daughters, you are a credit to them Take care and please pass on my best wishes to your mum love Bridget xx

Hi Susannah wow you have certainly been kept busy!! I am glad to hear both Michael and your daughter are feeling better though but now is the time for you to look after yourself! Go and treat yourself to some pampering you deserve it! I will be starting Bendamuste in the next couple of weeks it was a choice between that and a course of heavy duty…[Read more]

Dear Tina Im so sorry I havent been posting over the last few weeks but this is the first time ive sat at the computer for weeks. Michael has been back in hospital with pneumonia,my daughter was rushed in about the same time (the other end of the County) and ive been doing my best to hold a full time job down, but there is a light at the end of…[Read more]

Dai,
You made me cry, mind you so does everything at the moment.
I thought I was prepared for all this.
How wrong, the reality is far worse than anything I imagined. Cannot motivate myslelf. Cannot sleep, cannot do much of anything and slowly going round the bend as cant remember much of anything.
Given that this darned cancer is incurable,…[Read more]

My word to follow that one is LAMINATED which leaves TED

Hi Paul not all doctors classify patients myeloma type to them so you will get various answers to your question When I was first diagnosed they were able to measure my paraprotein levels and therefore the level of myeloma in standard blood tests When this proved inaccurate after a couple of years, I relapsed with a large tumour and still had low…[Read more]